Give NF

Give NF Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Give NF, Nonprofit Organization, 7449 68th Street, Caledonia, MI.

GiveNF is a nonprofit organization committed to raising funds for research focused on the advancement of treatment, knowledge, and cure for Neurofibromatosis (NF)

Today, May 22nd, is World NF2 Related Schwannomatosis Day (NF2-SWN)What is NF2-SWN? đź’™This type of NF occurs in about 1 i...
05/22/2026

Today, May 22nd, is World NF2 Related Schwannomatosis Day (NF2-SWN)

What is NF2-SWN? đź’™

This type of NF occurs in about 1 in 25,000 people. NF2-SWN is characterized by hearing loss or tinnitus (ringing in the ears), which is the result of benign tumors that form on the vestibular nerve in the brain. The hallmark of NF2-SWN is the appearance of bilateral vestibular schwannomas (benign tumors), on both sides of the vestibular nerve.
People with NF2-SWN may also develop schwannomas in other parts of the body or may develop other types of benign brain or spinal tumors. NF2-related schwannomatosis was formerly called neurofibromatosis type 2, or NF2, but was reclassified under the umbrella term schwannomatosis in 2022. NF2-SWN is usually diagnosed in young adulthood.

Want to learn more about NF2?
Here is a great organization that focuses on NF2 Related Schwannomatosis research and cure:
https://curenf2.org

May is NF Awareness Month. We are sharing facts about Neurofibromatosis. These facts can be shared to help us spread awa...
05/19/2026

May is NF Awareness Month. We are sharing facts about Neurofibromatosis. These facts can be shared to help us spread awareness and teach others about NF!

âť“How common is NFâť“

NF (all types) affects approximately 1 in every 2,000 births, or approximately 4 million people worldwide. Anyone can be born with NF, and it affects all genders, races, and ethnicities equally. It is more common than cystic fibrosis, Duchenne muscular dystrophy, and Huntington's disease combined. However, most people have never heard of this genetic disorder.

Therefore, it is commonly referred to as, "the most common genetic disorder you've never heard of."
That lack of awareness is exactly why we do what we do at GiveNF. By sharing facts, hosting events, and building community, we hope to help more people understand NF. We believe that awareness leads to impact, support for families, research, and ultimately a cure.

05/16/2026

It always comes back to community💙 Without it… we wouldn’t be able to accomplish what we are setting out to do. To our family, friends, strangers that have become friends, and those we have yet to meet- Thank you! If you’re new here- welcome to the family! Join us in the fight towards Neurofibromatosis Awareness and Research! 💚 We are beyond excited to see familiar and new faces tomorrow at Walk 4 NF!

Special shout out to our Gold Level Walk 4 NF sponsor, Grand Haven Custom Molding. We’re proud to recognize GHCM as a va...
05/14/2026

Special shout out to our Gold Level Walk 4 NF sponsor, Grand Haven Custom Molding. We’re proud to recognize GHCM as a valued supporter of our upcoming Walk 4 NF benefiting GiveNF and the Neurofibromatosis Michigan Medical Travel Grant.
This event is free to attend and is made possible through the generosity and commitment of our sponsors. Join us in thanking Grand Haven Custom Molding: https://www.ghcmolding.com
Want to attend? See details below!

📆 May 17th
đź‘źWalk along the White Pine Trail, Starting and ending at Third Nature Brewing Company
👉GiveNF.org/Events

Two Walks, One Weekend. đź’™Join us next weekend for community, creativity, and support for Neurofibromatosis (NF) Awarenes...
05/10/2026

Two Walks, One Weekend. đź’™
Join us next weekend for community, creativity, and support for Neurofibromatosis (NF) Awareness!
🎨 Saturday, May 16
2nd Annual Art Show & Fun Walk for NF Research at McGraft Park (Muskegon)
Enjoy local art, a fun walk, inspiration stations, and a silent auction—all for a great cause. Proceeds going to NF research!
Register here: https://www.zeffy.com/.../ticketing/nf-art-fair-and-fun-walk
đź‘ź Sunday, May 17
Walk 4 NF by Give NF
A family-friendly walk along the White Pine Trail (up to 3 miles), ending at Third Nature Brewing for community, food, and fun. Proceeds going to NF Michigan's Medical Travel Grant.
Register here: givenf.org/events
Whether you come for one or both, you’ll be helping raise awareness and support critical NF research.
Let’s show up strong for the NF community 💪
Bring your friends, your family, and your energy!

Happy Mother’s Day to the moms, grandmas, and mother figures who make so much possible every single day. 💙Behind every c...
05/10/2026

Happy Mother’s Day to the moms, grandmas, and mother figures who make so much possible every single day. 💙
Behind every child, every family, and every mission like GiveNF is the love, strength, sacrifice, and support of incredible women who show up without hesitation.
Today we celebrate the moments, the memories, and the mothers who make it all possible.

Special shout out to our Gold Level Walk 4 NF sponsor, . We’re proud to recognize Window World as a valued supporter of...
05/08/2026

Special shout out to our Gold Level Walk 4 NF sponsor, . We’re proud to recognize Window World as a valued supporter of our upcoming Walk 4 NF benefiting GiveNF and the Neurofibromatosis Michigan Medical Travel Grant.

This event is free to attend and is made possible through the generosity and commitment of our sponsors. Join us in thanking Window World: https://www.windowworldmidmichigan.com

Want to attend? See details below!
*While registration isn't required, it does help us keep track for food and shirts!

📆 May 17th
đź‘źWalk along the White Pine Trail, Starting and ending at Third Nature Brewing Company
👉GiveNF.org/Events

Classification of Neurofibromatosis (NF) can be tricky to understand. It is generally accepted that there are two main t...
05/07/2026

Classification of Neurofibromatosis (NF) can be tricky to understand.

It is generally accepted that there are two main types of NF
đź’™ Neurofibromatosis Type 1 (NF1)
đź’™ All types of Schwannomatosis (SWN), including NF2-related Schwannomatosis (NF2-SWN; Previously NF2)

SWN beyond that which is NF2-SWN is very rare and more recently identified. Some publications and organizations classify this as a third distinct form.

May is NF Awareness Months. These facts can be shared to help us spread awareness and teach others!

May is NF Awareness Month and this May, we’re moving with purpose 💛We’re launching the Mile for NF Challenge to raise aw...
05/04/2026

May is NF Awareness Month and this May, we’re moving with purpose 💛
We’re launching the Mile for NF Challenge to raise awareness for Neurofibromatosis, to share our mission at GiveNF, and to build momentum for our Walk 4 NF event.
Are president started it for us. If you see this, consider yourself tagged!
Here’s how to join:
👟 Walk, run or bike for 1 mile. If that isn’t feasible, do what you can whether that’s 17 feet or 22 miles
📸 Document
đź’¬ Share why you walk or a fact about NF
🏷 Tag us + 2-3 friends to keep it going
NF1 affects 1 in 2,500 people—and many are still fighting for awareness, research, and support.
Let’s show up for them, one step at a time.

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7449 68th Street
Caledonia, MI
49316

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