LymeLight Foundation

08/28/2026

A full circle journey of generosity and legacy! 💚

Several years ago, our grant recipient Patrick received a LymeLight treatment grant to help cover the costs of his Lyme disease care. Before receiving the grant, Patrick was bedridden for more than 6 months on 2 different occasions due to Lyme and tick-borne diseases. At the time of his last grant award, Patrick reported being more than 75% better! Recently, with the passing of Patrick’s grandmother, Marielena, his family chose LymeLight Foundation to receive donations made in her memory. Those donations are now approaching $1,200 and will help support other children battling Lyme disease, bringing Patrick’s LymeLight journey full circle.

“Marielena was an amazing person and a Lyme warrior. My son Patrick is also a Lyme warrior. We chose your foundation for donations in honor of my dear mother-in-law because we are so grateful that Patrick was fortunate enough to be a recipient of one of your grants. Thanks to your grant, Patrick was able to receive the care he needed and is now a healthy, active, successful college student. These donations in her honor are the perfect way to give back.”

-Dianne, mother of LymeLight Grant Recipient, Patrick

📷 These pictures of Patrick with his grandmother are of cherished memories that celebrate their special bond.

08/27/2026

JUST ANNOUNCED: Music for Action ft. Young the Giant & St. Lucia
RSVP @ music4action.org → enter to win VIP tickets; not required for entry

Sept 22, . Free in Central Park, Capital One City Parks Foundation co-hosted with LymeLnk
Come for music in the park. Learn about the effects of climate change on tick-borne diseases. Leave ready to get back outside safely.

With support from Steven & Alexandra Cohen Foundation, Global Lyme Alliance, LymeLight Foundation, Project Lyme, The Quiet Epidemic

cityparksfoundation.org/events/music-for-action/

08/26/2026

We're so excited to see our LymeLight Grant Recipient mother, Whitney Helen Goetsch on the NEWS!

Five years after a tick bite, Whitney Goetsch finally had an explanation for what she was experiencing—and a story she wanted to tell.

Her symptoms began two months after the bite, but it would take years before she was diagnosed with late-stage Lyme disease and multiple co-infections. She was later also diagnosed with alpha-gal syndrome. Her illness has caused severe fatigue, mobility challenges, and problems related to her autonomic nervous system.

Writing gave Whitney a way to make sense of those difficult years. Her book, ‘Waves,’ grew from that experience and from a desire to make something meaningful out of it.

Today, she’s sharing her story in hopes that greater understanding can help others facing their own long search for answers.

Read more by Dakota News Now: https://www.dakotanewsnow.com/2026/08/15/volga-woman-finds-healing-by-writing-about-her-experience-with-lyme-disease/

08/24/2026

Meet Kate, one of our new LymeLight Grant Recipients! She’s an undergraduate at Concordia University Texas and plans to graduate with her BA in English this December.

"Thank you so much for welcoming me into the wonderful community of LymeLight. You’ve seriously given me and my family so much hope. I’ve just started my journey. Now that I have the funds, I will be re-testing my Lyme strains and my specialist in integrative health will be going after the strands to see how to help me best.”

When she's not studying, Kate enjoys crocheting, knitting, reading, and has a special fascination with bugs. 🧶📚🐞

We're honored to be part of your journey, Kate, and we're cheering you on every step of the way.

08/22/2026

Sharing deep personal health experiences takes time, effort, and care. After receiving feedback from the community, HHS has extended the submission deadline for the LymeX Healthathon!

🗓️ NEW Deadline: Friday, August 28, 2026, at 11.59pm ET

How to use the additional time:
🎨 Refine your visuals: If you chose to do a written narrative, polish up your mandatory infographic or visual layout.
☑️ Confirm submission requirements: Is your entry complete? Did you add the audio/video component? Did you add an image?
🌟 Maximize your prize eligibility: Take an hour to submit your Case Report to the CURE ID platform to put yourself in the running for the $100,000 Grand Prize.

Having technical problems? You can email your complete submission to [email protected] we will upload it for you.

👉 Review the updated timeline (also linked in bio): lymex.crowdicity.com/hubbub/communitypage/23460

08/19/2026

Grant Recipient Judah and his sweet cat, Garfield 🐾💚

"I cannot express how grateful we are to you, the donors, and the LymeLight Foundation, for all you do for the Lyme disease community. Thank you! Thank you! As I type this, Judah is getting his additional IGeneX labs drawn. We would not have been able to do that without your help. We are so grateful."

– Bethany, mother of LymeLight grant recipient, Judah

Thanks to the generosity of our community, Judah's family can access critical testing, supplements, and treatments that were previously out of reach. Every grant helps bring hope to families navigating the challenges of Lyme disease, and we're honored to be part of their journey.

08/18/2026

Actor and Lyme disease advocate Dennis Quaid joined HHS Secretary Robert F. Kennedy Jr. to announce major new efforts to advance Lyme and tick-borne disease research, diagnostics and patient care. 💚

Quaid, who has personally battled Lyme disease, emphasized the human impact behind the nearly half a million Americans diagnosed and treated each year:
“Behind every one of those numbers is a person, a family and a community looking for answers.”

We’re inspired to see Lyme disease receiving greater national attention and continued investment in better research, diagnosis and care.

Read the full article here (and linked in bio): oann.com/newsroom/rfk-jr-and-actor-dennis-quaid-announce-federal-actions-against-lyme-disease-and-tick-borne-illnesses

08/17/2026

We're so happy to share an update from Abby, who spoke at our recent LymeLight 2026 Grant Recipient Reception and shared her story! 💚

She enjoyed celebrating Midsummer in June, a cherished Swedish tradition, surrounded by family and friends and her Swedish fiancé Linus – a lovely reminder that moments of joy are really important in the healing journey. Thank you, Abby, for continuing to share your story with us. Your resilience inspires hope throughout the Lyme community, and we're honored to be cheering you on every step of the way. 🪻

08/14/2026

Project Lyme () recently shared an important editorial published in Frontiers in Child & Adolescent Psychiatry examining how Lyme disease, other infections, immune dysfunction, and inflammation may contribute to neuropsychiatric symptoms in some children. 💚

“The future of pediatric psychiatry may depend less on refining symptom labels and more on identifying what lies beneath them.”

The editorial highlights the importance of considering potentially treatable underlying medical conditions, especially when psychiatric symptoms are severe or do not improve with conventional treatment.

🗞️ Read the full editorial (also linked in our bio): https://www.frontiersin.org/journals/child-and-adolescent-psychiatry/articles/10.3389/frcha.2026.1889961/full

08/12/2026

Our wonderful grant recipient, Esther, designed and made the beautiful dress she's wearing in this photo. A talented young seamstress, she continues to inspire us despite living with Lyme disease, Bartonella, Alpha-gal Syndrome, and other complex medical conditions. 🧵🪡

Right now, Esther is going through an especially difficult time and is unable to move without fainting. We're keeping her and her family in our hearts and prayers and sending so much hope for brighter days ahead.

When Esther's family received their LymeLight Foundation grant, her mom, Lisa, shared: "I immediately burst into tears ... I can hardly believe she was accepted. She has gone through so much."

Because of our generous donors and community, families like Esther's can focus on hope and healing instead treatment obstacles and facing the journey alone. 💚