Shanton ALS Foundation

08/29/2023

08/29/2023

“In ALS clinical trials, efficacy is often assessed via subjective patient or clinician reports. The authors introduce a machine-learned severity score based on wearable sensor data from daily activities, which is reliable, sensitive, and could reduce clinical trial sizes.”

08/29/2023

To make sure that researchers are adhering to legal and ethical guidelines, research studies in the US, including those involving people with ALS, must seek the input of an Institutional Review Board (IRB). Read more about what an IRB is here: www.als.net/news/what-is-an-institutional-review-board-irb/

08/29/2023

ALS TDI is excited to have partnered with Roon (roon.com) to create a free platform for people navigating ALS. Roon consists of short-form Q&A videos from various ALS experts (including ALS TDI's own Nadia Sethi, Alan Premasiri, and Carol Hamilton!) The app aims to help to answer the many questions that come up throughout the ALS journey. To learn more about Roon, you can register to attend our next "Meet Your ALS Orgs" on September 26th. Register now at https://www.als.net/als-town-hall/

08/29/2023

Fore! Get ready for an unforgettable day of golfing for a purpose. Join us at Cog Hill Golf & Country Club on September 6th for the ALS Classic Golf Tournament. Your participation helps make a difference. Register today: alsclassic.org

08/17/2023

Meet Shelby! Shelby, seen here on the left, joined ALS TDI in 2021 as a Science Intern II after the diagnosis of a family member with ALS. As an intern, Shelby splits her time between the Zebrafish facility and performing nucleic acid purification in the lab. Shelby also assists in prepping kits and other materials for the ARC study. She is also the resident expert on all things cool and keeps the rest of us in the know about trends and what concerts are coming to town. You can learn more about our amazing team here: www.als.net/about-als-tdi/als-tdi-team/

08/17/2023

We are in AWE of our friend, Lorri, host of the "I'm Dying to Tell You" podcast and person living with ALS for 19 years, who just completed 400 miles for her virtual Tri-State Trek! Here you can read more about Lorri, her ride, and her drive to : www.als.net/news/lorri-carey-tri-state-trek/

08/17/2023

We are just one month away from the ALS TDI Walk for Research, taking place in Newton, MA! The event is kid and dog friendly and all proceeds benefit ALS research at ALS TDI. Grab your Ken and join us for a great Sunday walk! https://fundraise.als.net/walkforresearch

08/17/2023

08/17/2023

It's . We would not be able to do what we do every day without the generosity of our supporters. Thank you to all who are with us in the fight against !

03/21/2019

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