Phaware Global Association

Phaware Global Association Help make the 🌎 . Engage for a cure 💜💙💚🧡❤️ Are You ? PH patients experience symptoms such as shortness of breath, dizziness and fatigue.

Pulmonary hypertension (PH) is a rare, life-threatening disease affecting the arteries of the lungs that can lead to right heart failure. Pulmonary hypertension (PH) is a rare, chronic illness of the lungs that affects the functioning of the heart and can lead to right heart failure. While there’s currently no cure, there are 16 FDA-approved therapies available to help patients live better lives.

Without treatment, mean survivability is only 2.8 years. OUR APPROACH
phaware is devoted to elevating our mission by making the public, news media, donors and investors of pulmonary hypertension. phaware ignites the global conversation and heightens PH awareness in unprecedented ways. Our prime directive is to capture, engage and enable diagnosed and undiagnosed PH patients, caregivers, and medical professions by providing them with digital content focused on education, resources and knowledge. Join the global conversation. Become . Follow us on Facebook, Twitter, Instagram, Pinterest & Vine. Get the phaware mobile app (on the Apple and Google Play app store). phaware® is a 501(c)3 organization. © Copyright 2015. All Rights Reserved. Sponsorship support provided by Actelion Pharmaceuticals US, Inc. and by Bayer

The views and opinions expressed in the phaware™ podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

Three Generations. One Gene. A Rare Disease She Couldn’t Outrun.Dawn Ogden has lived her entire adult life under the sha...
06/23/2026

Three Generations. One Gene. A Rare Disease She Couldn’t Outrun.

Dawn Ogden has lived her entire adult life under the shadow of pulmonary hypertension. After losing her sister and watching her father battle the disease, Dawn learned it was genetic—and that she carried it. What followed was a lifetime of testing, fear, and impossible choices as she faced the reality that the same gene could shape her children’s futures. podcast ep 578

Three Generations. One Gene. A Rare Disease She Couldn’t Outrun. Dawn Ogden has lived her entire adult life under the shadow of pulmonary hypertension. After losing her sister and watching her father battle the disease, Dawn learned it was genetic—and that she carried it. What followed was a lif...

Tuesday 23 June, join us live on Zoom from 9am-10 am PT | 12pm - pm ET, as we explore the digital tools and real-world a...
06/19/2026

Tuesday 23 June, join us live on Zoom from 9am-10 am PT | 12pm - pm ET, as we explore the digital tools and real-world approaches that are already available — and already making a difference, for pulmonary arterial hypertension patients. From rehabilitating at home, self-managing your condition with an app and staying connected with your clinical team remotely, to accessing mental health support online: practical solutions for everyday life.
https://us06web.zoom.us/j/85494455611?pwd=b2XyxEXJEIsuvl46iQYkTuTo8nRfKv.1
Meeting ID: 854 9445 5611
Passcode: 865516

She Went Looking for Answers but built a Lifeline. Before Zoom and Facebook groups, PH patient, Carla Kinsey, had only a...
06/18/2026

She Went Looking for Answers but built a Lifeline. Before Zoom and Facebook groups, PH patient, Carla Kinsey, had only a voice on a phone line. That loneliness pushed her to do something terrifying: start a support group herself. Phaware Global Association podcast ep 577 https://ow.ly/4zNA50ZcnFh

06/16/2026

She Went Looking for Answers but built a Lifeline. Before Zoom and Facebook groups, PH patient, Carla Kinsey, had only a voice on a phone line. That loneliness pushed her to do something terrifying: start a support group herself. podcast ep 577

Living with pulmonary hypertension comes with enough challenges, having the right tools can help make the journey a litt...
06/12/2026

Living with pulmonary hypertension comes with enough challenges, having the right tools can help make the journey a little easier. đź’ś

That's why we're excited to share that our partner, Phaware Global have launched the latest update to the HeartWorks app.

📲Built specifically for the PH community, HeartWorks helps users track symptoms, monitor their health, and stay engaged in their care journey—all in one place.

Have you tried the updated app yet? Tell us your favorite feature in the comments!

Get the Heart Works - phaware app in the Apple and Google Play app stores.
📲 Learn more and download the latest version here: https://www.phaware.global/heartworksapp

06/12/2026

Nola struggled when she was first diagnosed with pulmonary arterial hypertension (PAH), but she found encouragement in support groups. As a patient advocate, she encourages other people with PAH to open up and share their experiences with others. Learn more about Nola's story: https://outnumberpah.com/nola/ MSD Invents

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