Fragile X Association of Southern California

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Burbank, CA
Fragile X Association of Southern California

This is the Official Page of the Fragile X Association of Southern California. Spread the word! Our mission is to promote awareness of Fragile X
Syndrome. Cal.

Our organization was formed to promote public awareness of Fragile X Syndrome with special emphasis on educators and health care professionals; provide a forum for families of children with Fragile X and support scientific research on Fragile X. We are very excited to launch this resource group for families in Southern California who are affected by Fragile X Syndrome. This Facebook group is part

of the National Fragile X Foundation’s Community Support Network. The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness and advance research toward improved treatments and a cure for Fragile X. We encourage you to connect to other families in Southern California who are affected by Fragile X Syndrome. The foundation's mission is to serve you by connecting and supporting individuals and families through the Community Support Network (CSN). Information and events will be posted here throughout the year and we encourage you to invite other families in So. to join this group. Visit www.fraxsocal.org for more information on resources about Fragile X Syndrome and associated disorders.

06/18/2026

Structure helps create a sense of safety and predictability.

Daily routines can make a big difference in helping individuals with Fragile X feel more comfortable and prepared for what’s next.

See how we support families: https://fraxsocal.org/

06/16/2026

Connection makes a difference. Having people who understand your experience can change how you move through each day and how supported you feel along the way.

That sense of community can bring encouragement, shared insight, and a place to turn when you need it most.

Join the Fragile X Caregiver Circle to meet people who are going through what you are!

Sign up today at: https://us02web.zoom.us/meeting/register/EuFLkST5SHSk8SJVd_FFiQ #/registration

06/13/2026

Every family’s journey with Fragile X is unique, but no one has to go through it without support. We’re here to connect, uplift, and walk alongside you.

Find community at: https://fraxsocal.org/

06/11/2026

Siblings of individuals with Fragile X grow up with a unique perspective. They learn patience, empathy, and resilience in ways that shape how they see the world.

Their experiences are an important part of the story, and they deserve support too.

Learn more about family support: https://fraxsocal.org/

06/10/2026

You are always invited to the Fragile X Caregiver Circle!

We meet on the second Tuesday of each month at 10:30 PM EST for open, supportive conversations with others who understand what daily life can look like. It’s a space to talk through challenges, share experiences, and hear what’s helped others along the way.

There’s no pressure, just a community that’s here for you whenever you’re ready to join.

Save your spot here: https://us02web.zoom.us/meeting/register/EuFLkST5SHSk8SJVd_FFiQ #/registration

06/09/2026

While so much focus is on care, siblings also need space to feel supported and understood.
Support can look like:

✔️ Having open conversations about their feelings
✔️ Spending one-on-one time with a parent or caregiver
✔️ Connecting with other siblings who share similar experiences
✔️ Access to age-appropriate resources and guidance
✔️ Being included in family discussions in a way that feels safe

Creating space for siblings helps strengthen the entire family.
Learn more about support and resources: https://fraxsocal.org/

06/08/2026

Every family’s journey with Fragile X is different, and each day can bring its own challenges and wins. Having access to support and information can help make that path feel more manageable.

We’re here to walk alongside you with resources, connection, and community.

Learn more about our resources: https://fraxsocal.org/

06/05/2026

Evenings are all about creating a sense of calm and predictability.

For many families, bedtime with Fragile X includes structured routines like quiet activities, dimming lights, limiting stimulation, and following the same steps each night. Transitions can still be challenging, so consistency helps signal that it’s time to wind down.

Some nights are smoother than others, and that’s okay. What matters is creating a routine that brings comfort, supports rest, and helps everyone reset for the next day.

Find support and resources here: https://fraxsocal.org/

06/03/2026

Caregiver burnout is a state of physical, emotional, and mental exhaustion that can come from caring for others over time.

It can show up as feeling overwhelmed, constantly tired, emotionally drained, or disconnected. When you’re giving so much of yourself each day, it’s easy to put your own needs last.

Recognizing burnout is the first step toward getting the support you deserve.

Join a Fragile X Caregiver Circle at: https://us02web.zoom.us/meeting/register/EuFLkST5SHSk8SJVd_FFiQ #/registration

06/01/2026

Caregiver circles, community events, and ongoing support groups are all part of how we bring families together.

We create spaces where experiences can be shared, questions can be asked, and real connections are built with people who understand life with Fragile X.

Every touchpoint is designed to help families feel seen, heard, and supported.
See how to get involved: https://fraxsocal.org/

Address

Burbank, CA

Telephone

+18187544227

Website

http://www.fraxsocal.org/

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