Epilepsy Association of WNY, Inc.

10/19/2026

Join us for the 4th Annual Epilepsy Conference hosted by the Epilepsy Association of Western New York!

📅 Saturday, November 7, 2026
⏰ 10 AM – 2 PM
📍 Classics V Banquet Center, Amherst, NY

This FREE, in-person event is open to individuals living with epilepsy, caregivers, families, and medical professionals.

Connect with our featured speakers, learn about mental health and epilepsy, epilepsy genetics, surgical evaluations, advocacy and transition support, and hear a personal story from members of our epilepsy community.

Lunch and refreshments will be provided. Donations are always welcome!

Reserve your spot today! Registration is available at the link below.

🔗 Register here: https://secure.qgiv.com/for/epilepsyassociationofwesternnewyork/event/4thannual2026epilepsyawarenessconference/

We look forward to connecting, learning, and advocating together!

10/19/2026

SUDEP is when someone with epilepsy, who was otherwise healthy, unexpectedly dies. In SUDEP cases, no other cause of death is found when an autopsy is done.

Dr. Crino and Ashley provide an overview of SUDEP, including what you need to know to have informed conversations with your medical team about your/your loved one’s risk. They also share resources for grief support and how you can support TSC research through tissue donation.

Watch the webinar: https://www.youtube.com/watch?v=ueg5fQxxuCw

Presented by: Peter Crino, MD, PhD, TSC Clinic Director at the Univ...

10/18/2026

In this episode of the EF podcast, Dr. Kim Pargeon, board member of Cameron Boyce Foundation, tackles an audience-requested topic: SUDEP. There are so many questions, and she guides us through all of them.

Watch Here: https://www.youtube.com/watch?v=hmAa-vUbPVI

In this episode, we tackle an audience-requested topic: SUDEP. Ther...

10/17/2026

Understanding Sudden Unexpected Death in
Epilepsy (SUDEP) is a difficult, but essential part of epilepsy safety.

Join Alliance America, Dr. Satya Gedela of Nemours Children’s Health, and Caitlin Bernard-Vincent, LCSW, on Wednesday, October 28 at 12 pm ET for a free, one-hour webinar covering risk factors, prevention, and support for families.

Register here:
https://us06web.zoom.us/meeting/register/yYPdnrzAStK1gMvKsleJew #/registration

Welcome! You are invited to join a meeting: Understanding SUDEP Webinar . After registering, you will receive a confirmation email about joining the meeting.

10/16/2026

We’re Posting All Week to !

In recognition of World SUDEP Awareness Day on Wednesday, October 21, 2026, the Epilepsy Association of Western New York will be sharing information all week to raise awareness about Sudden Unexpected Death in Epilepsy (SUDEP).

This year’s theme, reminds us that open conversations about SUDEP, seizure safety, and risk prevention can help save lives.

Follow along throughout the week as we share facts, resources, and information to help individuals and families affected by epilepsy better understand SUDEP and the importance of seizure safety.

Every conversation matters. Every shared resource makes a difference.

Together, let's raise awareness, start conversations, and help !

10/15/2026

Before heading out for a night of trick-or-treating, keep these tips in mind to help make the evening safer and more enjoyable for everyone living with epilepsy.

From all of us at the EAN, we wish you a safe, happy, and spooky Halloween! 🎃💜

10/09/2026

It's hard to be a teen. Having epilepsy makes it even harder. Meet other teens, ask questions, learn from experts, and have a weekend full of fun!

Register today at epiny.org/events

10/09/2026

10/09/2026

Thank you to everyone who joined us for the 25th Anniversary Maggie Lee 5K Run/Walk for Epilepsy Awareness!

It was a special day bringing our community together to honor Maggie’s legacy, raise awareness, and support individuals and families affected by epilepsy. We are so grateful to everyone who walked, ran, volunteered, donated, and helped make this milestone event so memorable!

Here’s a look back at some of our favorite moments from this incredible day. 💜