The Sumaira Foundation

05/29/2026

🇬🇭 And just like that, the AFRICTRIMS Patient Day was a success! ✨

We were joined by 100+ MOGAD, MS and NMOSD patients and their loved ones for a day of education, connection and empowerment.

The Sumaira Foundation was proud and honored to sponsor this important and inspiring gathering alongside The Nerve of My Multiple Sclerosis CIC and MSIF.

05/29/2026

Understanding insurance coverage can be overwhelming, especially when treatment decisions are impacted by policies like step therapy.

Join us Monday, June 8 at 5:00 PM PT / 8:00 PM ET for an important conversation with Dr. Rosemarie Walch about how insurance requirements can influence access to care for people living with rare neuroimmune disorders. https://us02web.zoom.us/webinar/register/WN_XvuJTRLTTliLyLrwh1gTTg

In this webinar, "Understanding Step Therapy: How Insurance Decisions Shape Neuroimmune Treatment", Dr. Walch will explain:
💡What is step therapy
💡Why step therapy exists
💡How step therapy can affect treatment timelines, medication access and patient outcomes

Attendees will also learn practical strategies for navigating insurance barriers, advocating for appropriate care and working with their healthcare teams throughout the process. Those who attend live will have the opportunity to ask questions during the session.

This program is made possible with support from Amgen.

05/28/2026

TSF in Africa 🩷🧡💛

Meet Letitia, an NMOSD warrior and cancer survivor. She joined the Foundation in 2020 as TSF’s first international Ambassador, representing South Africa 🇿🇦 Today, she serves as TSF’s International Ambassador Liaison, leading the program across Africa, Asia and Europe.

Meet Lois, who is also living with neuromyelitis optica and serves as TSF’s Ghanaian-Scottish Ambassador 🇬🇭🏴󠁧󠁢󠁳󠁣󠁴󠁿. Lois works closely with the TSF leadership team to support global expansion efforts.

We’re excited to be in Accra as sponsors of the very first AFRICTRIMS and Patient Day 🦄

05/28/2026

05/28/2026

🇨🇦 Rencontrez les experts à Montréal! ✨

Joignez-vous à nous le samedi 13 juin pour notre prochaine Journée des patients sur les maladies neuro-inflammatoires rares et apparentées, présentée en collaboration avec le Dr Adil Harroud McGill University et en partenariat avec Muscular Dystrophy Canada et IgG4ward

📍 Événement gratuit en présentiel
🗓 Samedi 13 juin 2026
🔗 Inscrivez-vous ici : www.tinyurl.com/TSFMontrealFR

Les participants auront l’occasion d’apprendre directement auprès d’experts de renommée et de poser leurs questions lors de séances en direct mettant en vedette :

🌺 Dr Hugues Allard-Chamard
🌺 Dr Philippe-Antoine Bilodeau
🌺 Dr Paul Giacomini
🌺 Dr Adil Harroud

Nous réunissons des patients, proches aidants, familles, chercheurs, cliniciens et défenseurs des communautés CIDP, MG, MOGAD et NMOSD pour une journée d’éducation, d’échanges et de soutien.

05/28/2026

🇨🇦 Meet the experts in Montreal! ✨

Join us on Saturday, June 13th for our upcoming Patient Day for Rare Neuroinflammatory & Related Disorders presented in collaboration with Dr. Adil Harroud (McGill University) and in partnership with Muscular Dystrophy Canada and IgG4ward!

📍 Free in-person event
🗓 Saturday, June 13, 2026
🔗 Register here: www.tinyurl.com/TSFMontreal

Attendees will have the opportunity to learn directly from leading experts and ask questions during live sessions featuring:

🌺 Dr. Hugues Allard‑Chamard
🌺 Dr. Philippe-Antoine Bilodeau
🌺 Dr. Paul Giacomini
🌺 Dr. Adil Harroud

We’re bringing together patients, caregivers, families, researchers, clinicians, and advocates from the CIDP, MG, MOGAD and NMOSD communities for a day of education, connection and support.

05/26/2026

You’ve likely heard about CAR-T but do you know what it is and what it means for those living with rare neuroimmune disorders?

Join us on June 17th at 5:00 PM EST for an informative and patient-friendly webinar featuring Dr. Michael Levy and Dr. Marcela Maus, experts from Massachusetts General Hospital/Harvard Medical School, who will break down this complex treatment approach in a way that's easy to understand.

During this time, our expert speakers will educate our live audience about what CAR-T is, how it works and why researchers are hopeful about its potential in conditions like NMOSD, MOGAD and beyond.

Whether you’re newly diagnosed, living with a condition, or supporting a loved one, this session is designed to empower you with knowledge, clarity and hope for the future of this breakthrough treatment.

Attendees who join live will also have the opportunity to ask questions directly to the experts during the Q&A portion. This webinar will be recorded and made available for replay on TSF’s YouTube channel.

This program was made possible with support from Amgen.

You’ve likely heard about CAR-T but do you know what it is and what it means for those living with rare neuroimmune disorders? Join us on June 17th at 5:00 PM EST for an informative and patient-friendly webinar featuring Dr. Michael Levy and Dr. Marcela Maus, experts from Massachusetts General Hos...

05/25/2026

Minnesota-area SPS community members — join us in Rochester this June!

The SPSRF is proud to partner with The Sumaira Foundation, Autoimmune Encephalitis Alliance, and MG Holistic Society for an upcoming Patient Day for Rare Neuroinflammatory & Related Disorders on Saturday, June 20 at the Mayo Civic Center in Rochester, MN.

Hosted in collaboration with Dr. Eoin Flanagan and Dr. John Chen from Mayo Clinic Rochester, this free event brings together patients, caregivers, clinicians, researchers, and advocates for a day of education, connection, and community.

Lunch will be provided, but registration is required by June 17.

Register here: www.tinyurl.com/TSFRochester

05/25/2026

🇿🇦 TSF is thrilled to welcome Priya as our newest Ambassador of South Africa!

Priya wishes to use her voice to stand for those who feel unseen, and as an NMOSD patient and ambassador, her mission is to create awareness, build connection and remind every patient that they are not alone in their journey. Priya believes that rare diseases can feel isolating, but that there is strength in shared experiences and community.

Priya is also deeply passionate about educating the world beyond patients, because understanding begins with awareness. She believes that not all disabilities are visible, and through advocacy, we can create a more compassionate, informed and supportive space for everyone affected.

Welcome, Priya!