Georgia PKU Connect

06/02/2026

Special thank you to all those who donated to our fundraiser to help support the campaign for PKU Awareness Month during the month of May 💙

And thank you to everyone who came out to our own walk this past Saturday! We appreciate all that participated in a fun morning of community and support (swipe for pics!) 🌳🏃‍♂️

05/29/2026

Reminder! Great opportunity starting next week.

Great opportunity to connect with others this summer ☀️ 💜😎

This is a support group for parents and caregivers of metabolic patients. It is a space to connect over shared experiences and to support one another in your journeys. We will discuss resources and topics like caregiver identity, managing stress, and building resilience.

Please contact Stephanie directly with any questions. [email protected].

05/29/2026

Join us tomorrow morning for our event for PKU Awareness Month! 😊 Details below and in the Eventbrite link.

🏃🚴 Join us for a chance to get together for the Move Your Pheet fundraiser! Georgia PKU Connect is getting together to walk, move our feet and celebrate PKU Awareness Month.🚶🤸

⏰ 9:30 AM - 11:30 AM
📅 Saturday May 30th, 2026
🌳 Mason Mill Park, Decatur, GA ☀️
👕 Wear your Move Your Pheet T-Shirt or a blue t-shirt!

Check out the event here:
https://www.eventbrite.com/e/move-your-pheet-walk-with-ga-pku-connect-tickets-1990020204000

If you are unable to attend, you can still donate to the fundraiser by visiting:
https://secure.qgiv.com/event/2026moveyourpheet/team/1030696

We hope to see you there! 😊

05/22/2026

📣 Register Today for Camp Connect!

Georgia PKU Connect’s 15th Annual PKU Family Camp will be September 11-13 (Friday-Sunday) at Camp Twin Lakes in Winder, Georgia. Community members outside of Georgia are always welcome!

Visit https://georgiapku.org/camp2026 for details and registration to secure your spot.

Email [email protected] with any questions!

05/20/2026

🏃🚴 Join us for a chance to get together for the Move Your Pheet fundraiser! Georgia PKU Connect is getting together to walk, move our feet and celebrate PKU Awareness Month.🚶🤸

⏰ 9:30 AM - 11:30 AM
📅 Saturday May 30th, 2026
🌳 Mason Mill Park, Decatur, GA ☀️
👕 Wear your Move Your Pheet T-Shirt or a blue t-shirt!

Check out the event here:
https://www.eventbrite.com/e/move-your-pheet-walk-with-ga-pku-connect-tickets-1990020204000

If you are unable to attend, you can still donate to the fundraiser by visiting:
https://secure.qgiv.com/event/2026moveyourpheet/team/1030696

We hope to see you there! 😊

05/11/2026

Great opportunity to connect with others this summer ☀️ 💜😎

This is a support group for parents and caregivers of metabolic patients. It is a space to connect over shared experiences and to support one another in your journeys. We will discuss resources and topics like caregiver identity, managing stress, and building resilience.

Please contact Stephanie directly with any questions. [email protected].

05/06/2026

For the whole month of May 🌸 - we are celebrating PKU Awareness Month 💚

There are many ways to celebrate and get involved 👉

✔️ Share your story with us directly! What has your experience been living with PKU? We want to hear from you 👂
✔️ Join the Move Your Pheet Challenge! Raise money for both Georgia PKU Connect and the NPKUA through getting active 🏃
✔️ Tag us in your photos 📸 we want to see all the cool things you’re doing to celebrate PKU Awareness!

For more info on how to donate to the fundraiser, please visit: https://secure.qgiv.com/event/2026moveyourpheet/team/1030696

04/21/2026

🤸‍♀️Move Your Pheet 👟🏃 Sign up to join this FUNdraiser for the NPKUA (and Georgia PKU Connect!) to raise money for PKU support and research.

📅 The month of May! (May 1-31)
🏡 Virtual - from your own home, favorite park or gym!

📩 Register online at the NPKUA website. Follow these steps 📋

✔️ Step 1: Register and join the Georgia PKU Connect team!
✔️ Step 2: Invite friends, family and colleagues to move with you or cheer you on.
✔️ Step 3: Share your fundraising page and invite your network to donate to support the cause.
✔️ Step 4: Get moving throughout the month of May by walking, running or biking. Share your progress and celebrate every step along the way — or skip the movement and simply focus on fundraising for PKU!

https://www.npkua.org/moveyourpheet/

Post your pics and tag us throughout the month of May 😊

04/15/2026

🦁 Navigating PKU at Zoo Atlanta!

You’re invited! Join PTC Therapeutics for a special PKU community event 🐾

📅 Saturday, April 25
⏰ 10:30 AM – 1:30 PM

🎉 Lunch, including low-protein options and complimentary parking provided

📩 RSVP to Karina Lambertini at
[email protected] or 732-253-2647

We hope to see you there! 😊

04/14/2026

Spring & summer are upon us 🌸🌼 And we’ve got an exciting few months of events lined up! More details to come so keep an eye out for more info. Comment below on which one you’re most excited for 👀 ☺️