Georgia PKU Connect

Georgia PKU Connect Our mission is to connect PKU families and individuals with the support and resources they need to manage PKU and live healthy, productive lives.

PKU is a rare genetic metabolic disorder requiring lifelong treatment to prevent disability.

Only 2 more days left to register! Don’t miss out on 2026 Camp Connect!
08/14/2026

Only 2 more days left to register! Don’t miss out on 2026 Camp Connect!

πŸ“£ Register Today for Camp Connect!

Georgia PKU Connect’s 15th Annual PKU Family Camp will be September 11-13 (Friday-Sunday) at Camp Twin Lakes in Winder, Georgia. Community members outside of Georgia are always welcome!

Visit https://georgiapku.org/camp2026 for details and registration to secure your spot.

Email [email protected] with any questions!

Navigating PKU Opportunity 🧑For Birmingham, AL & Cary, NC families  Join PTC Therapeutics for a special PKU community ev...
08/07/2026

Navigating PKU Opportunity 🧑
For Birmingham, AL & Cary, NC families

Join PTC Therapeutics for a special PKU community event 🎨 Swipe left for more info on both events!

Birmingham, AL
πŸ“… Saturday, August 22
⏰ 12:00 PM – 3:00 PM ET
RSVP by August 19

Cary, NC
πŸ“… Saturday, September 26
⏰ 12:00 PM – 3:00 PM ET
RSVP by September 23

πŸ“© RSVP to Karina Lambertini at
[email protected] or 732-253-2647

We hope to see you there! 😊

We had the best time at the National PKU Alliance (NPKUA)   conference in Illinois last weekend! πŸ’™πŸ§‘ A fantastic few days...
07/21/2026

We had the best time at the National PKU Alliance (NPKUA) conference in Illinois last weekend! πŸ’™πŸ§‘ A fantastic few days connecting with others and learning about what’s new with PKU.

We’re looking forward to the 2028 Conference in Orlando, FL! We hope to see you there 😊✈️🌴

Registration for camp is still open! A nice weekend full of fun and community. Follow the link to join us 😊
07/08/2026

Registration for camp is still open! A nice weekend full of fun and community. Follow the link to join us 😊

πŸ“£ Register Today for Camp Connect!

Georgia PKU Connect’s 15th Annual PKU Family Camp will be September 11-13 (Friday-Sunday) at Camp Twin Lakes in Winder, Georgia. Community members outside of Georgia are always welcome!

Visit https://georgiapku.org/camp2026 for details and registration to secure your spot.

Email [email protected] with any questions!

Special thank you to all those who donated to our fundraiser to help support the    campaign for PKU Awareness Month dur...
06/02/2026

Special thank you to all those who donated to our fundraiser to help support the campaign for PKU Awareness Month during the month of May πŸ’™

And thank you to everyone who came out to our own walk this past Saturday! We appreciate all that participated in a fun morning of community and support (swipe for pics!) πŸŒ³πŸƒβ€β™‚οΈ

Reminder! Great opportunity starting next week.
05/29/2026

Reminder! Great opportunity starting next week.

Great opportunity to connect with others this summer β˜€οΈ πŸ’œπŸ˜Ž

This is a support group for parents and caregivers of metabolic patients. It is a space to connect over shared experiences and to support one another in your journeys. We will discuss resources and topics like caregiver identity, managing stress, and building resilience.

Please contact Stephanie directly with any questions. [email protected].

Join us tomorrow morning for our   event for PKU Awareness Month! 😊 Details below and in the Eventbrite link.
05/29/2026

Join us tomorrow morning for our event for PKU Awareness Month! 😊 Details below and in the Eventbrite link.

πŸƒπŸš΄ Join us for a chance to get together for the Move Your Pheet fundraiser! Georgia PKU Connect is getting together to walk, move our feet and celebrate PKU Awareness Month.🚢🀸

⏰ 9:30 AM - 11:30 AM
πŸ“… Saturday May 30th, 2026
🌳 Mason Mill Park, Decatur, GA β˜€οΈ
πŸ‘• Wear your Move Your Pheet T-Shirt or a blue t-shirt!

Check out the event here:
https://www.eventbrite.com/e/move-your-pheet-walk-with-ga-pku-connect-tickets-1990020204000

If you are unable to attend, you can still donate to the fundraiser by visiting:
https://secure.qgiv.com/event/2026moveyourpheet/team/1030696

We hope to see you there! 😊

πŸ“£ Register Today for Camp Connect! Georgia PKU Connect’s 15th Annual PKU Family Camp will be September 11-13 (Friday-Sun...
05/22/2026

πŸ“£ Register Today for Camp Connect!

Georgia PKU Connect’s 15th Annual PKU Family Camp will be September 11-13 (Friday-Sunday) at Camp Twin Lakes in Winder, Georgia. Community members outside of Georgia are always welcome!

Visit https://georgiapku.org/camp2026 for details and registration to secure your spot.

Email [email protected] with any questions!

πŸƒπŸš΄ Join us for a chance to get together for the Move Your Pheet fundraiser! Georgia PKU Connect is getting together to w...
05/20/2026

πŸƒπŸš΄ Join us for a chance to get together for the Move Your Pheet fundraiser! Georgia PKU Connect is getting together to walk, move our feet and celebrate PKU Awareness Month.🚢🀸

⏰ 9:30 AM - 11:30 AM
πŸ“… Saturday May 30th, 2026
🌳 Mason Mill Park, Decatur, GA β˜€οΈ
πŸ‘• Wear your Move Your Pheet T-Shirt or a blue t-shirt!

Check out the event here:
https://www.eventbrite.com/e/move-your-pheet-walk-with-ga-pku-connect-tickets-1990020204000

If you are unable to attend, you can still donate to the fundraiser by visiting:
https://secure.qgiv.com/event/2026moveyourpheet/team/1030696

We hope to see you there! 😊

Great opportunity to connect with others this summer β˜€οΈ πŸ’œπŸ˜ŽThis is a support group for parents and caregivers of metaboli...
05/11/2026

Great opportunity to connect with others this summer β˜€οΈ πŸ’œπŸ˜Ž

This is a support group for parents and caregivers of metabolic patients. It is a space to connect over shared experiences and to support one another in your journeys. We will discuss resources and topics like caregiver identity, managing stress, and building resilience.

Please contact Stephanie directly with any questions. [email protected].

Address

Brookhaven, GA

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