Georgia PKU Connect

09/17/2026

Thank you to everyone for another great year of Camp Connect! Check out a few snapshots of the fun we had ☀️🐎🏹🧁🧗‍♀️

A big thank you to BioMarin Pharmaceutical Inc. & the National PKU Alliance for providing grant funding to make having camp possible for our campers and families.

We could also have not done it without our other sponsors - Ajinomoto Cambrooke Metabolic Nutrition, Cycle Vita, Kiele Health, Nutricia Metabolics-US, PTC Therapeutics, Rare Disease Research, Maze Therapeutics, PKU Perspectives & Promin Metabolics.

And last, but not least, we couldn’t do it without our partnership with Camp Twin Lakes and all of our wonderful volunteers. Another successful year of annual family camp - 15 years of community, connection and lasting memories!

We had so much fun and can’t wait to see everyone next year 😊

08/14/2026

Only 2 more days left to register! Don’t miss out on 2026 Camp Connect!

📣 Register Today for Camp Connect!

Georgia PKU Connect’s 15th Annual PKU Family Camp will be September 11-13 (Friday-Sunday) at Camp Twin Lakes in Winder, Georgia. Community members outside of Georgia are always welcome!

Visit https://georgiapku.org/camp2026 for details and registration to secure your spot.

Email [email protected] with any questions!

08/07/2026

Navigating PKU Opportunity 🧡
For Birmingham, AL & Cary, NC families

Join PTC Therapeutics for a special PKU community event 🎨 Swipe left for more info on both events!

Birmingham, AL
📅 Saturday, August 22
⏰ 12:00 PM – 3:00 PM ET
RSVP by August 19

Cary, NC
📅 Saturday, September 26
⏰ 12:00 PM – 3:00 PM ET
RSVP by September 23

📩 RSVP to Karina Lambertini at
[email protected] or 732-253-2647

We hope to see you there! 😊

07/21/2026

We had the best time at the National PKU Alliance (NPKUA) conference in Illinois last weekend! 💙🧡 A fantastic few days connecting with others and learning about what’s new with PKU.

We’re looking forward to the 2028 Conference in Orlando, FL! We hope to see you there 😊✈️🌴

07/08/2026

Registration for camp is still open! A nice weekend full of fun and community. Follow the link to join us 😊

📣 Register Today for Camp Connect!

Georgia PKU Connect’s 15th Annual PKU Family Camp will be September 11-13 (Friday-Sunday) at Camp Twin Lakes in Winder, Georgia. Community members outside of Georgia are always welcome!

Visit https://georgiapku.org/camp2026 for details and registration to secure your spot.

Email [email protected] with any questions!

06/02/2026

Special thank you to all those who donated to our fundraiser to help support the campaign for PKU Awareness Month during the month of May 💙

And thank you to everyone who came out to our own walk this past Saturday! We appreciate all that participated in a fun morning of community and support (swipe for pics!) 🌳🏃‍♂️

05/29/2026

Reminder! Great opportunity starting next week.

Great opportunity to connect with others this summer ☀️ 💜😎

This is a support group for parents and caregivers of metabolic patients. It is a space to connect over shared experiences and to support one another in your journeys. We will discuss resources and topics like caregiver identity, managing stress, and building resilience.

Please contact Stephanie directly with any questions. [email protected].

05/29/2026

Join us tomorrow morning for our event for PKU Awareness Month! 😊 Details below and in the Eventbrite link.

🏃🚴 Join us for a chance to get together for the Move Your Pheet fundraiser! Georgia PKU Connect is getting together to walk, move our feet and celebrate PKU Awareness Month.🚶🤸

⏰ 9:30 AM - 11:30 AM
📅 Saturday May 30th, 2026
🌳 Mason Mill Park, Decatur, GA ☀️
👕 Wear your Move Your Pheet T-Shirt or a blue t-shirt!

Check out the event here:
https://www.eventbrite.com/e/move-your-pheet-walk-with-ga-pku-connect-tickets-1990020204000

If you are unable to attend, you can still donate to the fundraiser by visiting:
https://secure.qgiv.com/event/2026moveyourpheet/team/1030696

We hope to see you there! 😊

05/22/2026

📣 Register Today for Camp Connect!

Georgia PKU Connect’s 15th Annual PKU Family Camp will be September 11-13 (Friday-Sunday) at Camp Twin Lakes in Winder, Georgia. Community members outside of Georgia are always welcome!

Visit https://georgiapku.org/camp2026 for details and registration to secure your spot.

Email [email protected] with any questions!

05/20/2026

🏃🚴 Join us for a chance to get together for the Move Your Pheet fundraiser! Georgia PKU Connect is getting together to walk, move our feet and celebrate PKU Awareness Month.🚶🤸

⏰ 9:30 AM - 11:30 AM
📅 Saturday May 30th, 2026
🌳 Mason Mill Park, Decatur, GA ☀️
👕 Wear your Move Your Pheet T-Shirt or a blue t-shirt!

Check out the event here:
https://www.eventbrite.com/e/move-your-pheet-walk-with-ga-pku-connect-tickets-1990020204000

If you are unable to attend, you can still donate to the fundraiser by visiting:
https://secure.qgiv.com/event/2026moveyourpheet/team/1030696

We hope to see you there! 😊