The Matthew and Andrew Akin Foundation

04/16/2023

HLH Families,

The world-renowned experts at the HLH Center of Excellence at Cincinnati Children's Hospital have created a new registry in hopes of gathering detailed information about the experiences of a broad range of patients with HLH. Hopefully, this registry will help to fill gaps in understanding that have persisted despite decades of study. Both HLH survivors and angels in the US and Canada are eligible to enroll.

Visit here to enroll -

The Registry is aimed at advancing what is known about HLH and will help doctors to better diagnose and manage HLH and improve treatment outcomes for future patients

12/16/2020

This has run on the local news in St. Louis the past two nights. We're very happy that we're able to help the families that are unfortunately following in our footsteps.

No one would have blamed the Akin family if they just gave up. Instead, they are giving back

07/16/2020

We have the American Red Cross Bloodmobile coming to All Star Dodge Chrysler Jeep Ram on Thursday, July 30th. Please join us in helping those in need.

Here's information about our upcoming American Red Cross blood drive. Schedule an appointment.

08/20/2019

Come join us for a blood drive this Friday at All Star Dodge Chrysler Jeep Ram.

Here's information about our upcoming American Red Cross blood drive. Schedule an appointment.

06/01/2019

It is so frustrating that so many news outlets continue to report the facts about HLH incorrectly. The family keeps telling the news outlets that only 15 other children have been diagnosed with HLH and then that is what the reporters report. I know over 15 children myself that have battled HLH!

The 11-year-old fan battling HLH has inspired the St. Louis defenseman and his teammates in their Stanley Cup playoff march.

02/05/2019

I’m very excited that my amazing wife has been invited by Representative Ann Wagner to attend the State of the Union Address tomorrow night.

State of Union ritual populates audience with a mosaic of interests, personalities.

01/25/2019

We love our buddy Dr. Kumar and are so thankful that he has ridden with us for all these years.

Our knowledge of how to diagnose and recognize HLH remains the biggest challenge when treating this condition. We have made great strides thanks to the collaboration of doctors from around the country and there is hope for HLH families.

11/27/2018

Kristin and I with the Franklin family and Dana Harkin from Sobi. Aspen was truly the star of the show today!

11/27/2018

Kristin and I were asked to speak today at Sobi’s internal launch for Gamifant, the first drug ever specifically made for the fight against HLH. We had an amazing day and great things are ahead for the HLH community!