LVADStrong Patient Support Organization, Inc.

04/06/2026

Traveling with an LVAD can feel overwhelming at first.

What happens at security?
What if there is a delay?
Do I have enough power?

These are real questions.

The good news is that travel is possible with the right preparation. Many LVAD patients are able to fly and take trips safely when they plan ahead.

We created a guide based on real experience to help you navigate those moments with more confidence.

Take a look here:
https://www.lvadstrong.org/traveling-with-an-lvad/

04/02/2026

Free support group TONIGHT. Link at lvadstrong.org/supportgroup/

03/31/2026

Join us this Thursday at 7 PM EST for our LVADStrong Virtual Peer Support Group.

Living with an LVAD changes everything. It helps to talk to people who actually understand.

This is a space for patients, caregivers, and anyone connected to the LVAD community to share experiences, ask questions, or just listen.

No pressure. No expectations. Just real conversation.

This is peer support only. No medical advice is provided.

Join here:
https://www.lvadstrong.org/supportgroup/

03/27/2026

We’re starting something simple.

A peer support group for LVAD patients and caregivers.

No presentations. No pressure. Just real conversation with people who understand what this life actually feels like.

You can talk, listen, or just show up.

Thursday, April 2
7:00 – 8:00 PM (Eastern)

Sign up:
https://forms.gle/Rc7MWgw1SndLj2Eo9

Learn more:
https://www.lvadstrong.org/supportgroup/

Join here:
https://meet.google.com/ezn-qecg-axx

Dial-in: +1 513-843-1126
PIN: 275 603 421 #

This is a peer support space. No medical advice will be given.

03/07/2026

The First Night Home

The first night home after implant is something many people never forget.

The hospital feels safe. Monitored. Structured.

Home feels quiet.

Too quiet.

Every sound is amplified. Every alarm feels urgent.

Adjustment takes time. There is no switch that flips from hospital to “normal.”

If you remember that first night, you are not alone.

03/04/2026

Caregivers Live This Too

When someone receives an LVAD, the whole household changes.

Caregivers learn equipment.
They sleep lighter.
They carry quiet fear they rarely talk about.

Support should not stop with the patient.

If you are a caregiver navigating this life, you matter here.

https://www.lvadstrong.org

LVADStrong empowers patients and caregivers through support, education, and connection. We believe that no one should face this journey alone — and that with the right care, understanding, and community, LVAD patients can live stronger, fuller lives.

03/02/2026

Heart failure and LVADs don’t just affect the body—they weigh on the mind. 💙 Our resource list includes mental health and peer support options you can explore with your team.

More resources: https://www.lvadstrong.org/resources/explore-more-resources/

02/28/2026

Your LVAD story might be exactly what someone else needs to hear. 💬 Patients, caregivers, and clinicians are welcome to share.

Share here: https://rpst.in/06wwk

02/28/2026

What Survival Actually Means

People say, “You’re lucky to be alive.”

And that’s true.

But survival with advanced heart failure is not the end of the story. It’s the beginning of a new one.

It means batteries.
It means planning around power.
It means alarms in the middle of the night.
It means learning how to be a different version of yourself.

You can be grateful and overwhelmed at the same time.

Both are allowed.

Connect: [email protected]

02/25/2026

Heart Failure Is Not One Story

Heart failure does not look the same for everyone.

Some people are older.
Some are in their 30s and 40s.
Some were healthy and working a few months ago.

There is no single face of advanced heart failure.

The more we tell diverse stories, the more people feel seen.

[email protected]