Silas' Saga

Silas' Saga Join me on my Journey as I conquer the daily battles of living with Spastic Quadriplegia CP Welcome To Silas' Saga! He is also very feisty, stubborn and sneaky!

We are here to give a glimpse into our journey raising our amazing son Silas. Let me start off by saying, our warrior Silas has the most contagious laugh, brightest smile, and funniest little personalty. Although Silas is non-verbal, he can tell stories with his eyes, and shows love and all emotions in his own unique way. After suffering a traumatic brain injury at birth, Silas lives daily with Sp

astic Quadriplegia Cerebral Palsy and a host of other secondary diagnosis. We love to share Silas' journey to help create awareness for differently abled children. We love to show the positive and happy moments, as well as the hard and emotional moments. We try to be as transparent as we can for new followers who might stumble upon our page after receiving their child's diagnosis and trying to find anything to grasp onto to help them understand the world they are entering into and know they are not alone. We share our journey for caregivers, parents, grandparents, educators and community members. We hope that after meeting Silas and following along you can better understand his world and see just how alike and ABLE he is, just like everyone else! We hope that if you see someone in your community who is differently abled, that you will feel the courage to come say Hi, use compassion, ask questions, and interact. Everyone is different, and everyone is worthy, and Silas reminds us of this everyday!

05/29/2026

When you celebrate Birthday’s on borrowed time...they hit different. These are the milestones that were never promised to us. These are the only ones I care about him reaching. These can’t be written into baby books with fill in the blanks. There will never be enough space to write in the details or truly explain how this feels. You’ll know it and understand it if you ever walk a similar path to ours. But to others it’s hard to put into words what birthdays mean for kiddos like Si. Telling us his age is one of his most used phrases on his eye gaze. He loves to shout his age out, to blast it on repeat. I’m sure he’s just as proud to be 15 as we are to see him reach 15. Let’s make 15 a great one bud! Here’s to the great going forward. 🤍

05/05/2026

While Moms away playing in AZ, Silas and Dad are doing great back home and he is trying to pull a quick one with Dad to get out of his chair. Hahahahahahaah 🤣🤣🤣☠️ This kid cracks us up!

We’re still trying to fully adjust back home here! So I haven’t posted a big update on our new routine with Si but I wil...
04/25/2026

We’re still trying to fully adjust back home here! So I haven’t posted a big update on our new routine with Si but I will share this weekend. Just trying to fully adjust to new equipment, new protocols for airway clearance and positioning. It’s been a lot. But just so glad to be home!

Address

300 Longwood Ave
Boston, MA

Website

https://outshinelabels.com/collections/silas-brown

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