Cure4Jada

Cure4Jada Support Jada's healing process and spread awareness about Lyme disease and other tick borne disease a Ticks are common here. No Big Deal!

Six year old Jada was bitten by a deer tick in April 2013, in North Idaho. We go to the woods, come home, find a tick and remove it. Lyme Disease simply does not exist in North Idaho... Or so we thought! Jada's mom and dad were raised in this county and have never heard of someone contracting Lyme Disease from a tick here. (We had heard of Rocky Mountain Spotted Fever in Montana.) Growing up we al

ways heard, "There is no Lyme Disease here, that is an East Coast thing!" Unfortunately, that isn't true. Ticks that carry disease (all ticks actually) know no boundaries! With in 24 hours of that early spring hike; Jada became very ill, we thought she had the flu. But, her neck hurt, too, and she had swollen lymph nodes, swollen to the size of a golf ball in two spots on her neck. An extremely high fever, muscle aches, headache, vision changes (blurred), fatigue, lethargic, nerve pain up and down her legs. Mommy found a tick in her hair by day 4, it had a strange red bull's eye around it! We did not know that Jada actually had the symptoms of early onset Lyme disease. We took her to the doctor. We showed him the lymph nodes. We did NOT mention that tick to the doctor that day. We did not get her tested; as Lyme disease "doesn't exist" in North Idaho. Four long, painful months passed as Jada kept getting sicker, losing her energy. All summer Jada was having strange pains, vision changes including blurred vision and light sensitivity, sleep disturbances waking up in the middle of the night crying out in pain, complaining of "little bugs" under her skin, severe headaches, body aches, nerve pain and tingling sensations all over, everyday a new pain would come up; as her brothers and sisters had fun running, playing, swimming, riding their bikes, being happy healthy kids with out care Jada sat idly by on the side lines watching, saying "I am just tired momma". Every night Jada would scream out in pain, waking up to severe pain all over her body, crying she would seek comfort at her mom and dad's bedside. No matter what we did, it offered little or no comfort. We would take Jada in to the Doctor, he would find nothing wrong. Occasionally he would order blood work that looked as though she had a viral infection that would soon clear. "No big deal" they would tell us. We were lost, trying to figure out if our child was truly sick (she didn't "look sick"), or was she simply having growing pains and in need of some more attention in this big family. We weren't connecting these symptoms to the tick. Jada had yet another monthly high fever in August, this time with several of the other symptoms so severe she couldn't move from the couch, so we again took her into the doctor. After all the blood work we had done, and all the doctor visits that had produced nothing, we finally told the Doctor about the tick and had her tested for Lyme Disease. On Jada's 7th birthday, the blood work came back and we found out she is positive for the bacteria that causes Lyme Disease!

01/19/2024

Lyme can and is just as bad or worse than cancer in many ways. Many patients cannot even find a doctor to treat them, and those of us that do have to pay tens of thousands of dollars, even hundreds of thousands, out of pocket for treatment which takes a minimum of two years. It is a very debilitating disease and people do die from it daily. You just don't hear about it. I am trying to find the right course of treatment for me now, as I have had it so long that I can't just go in and kill it, or I could die. I have to help my body repair some damage first. This will be a long journey, but I am ready to live my life again!!

05/16/2021
The root of inflammation is excessive turnover of cells. We all lose cells, and up to a certain point, it’s perfectly no...
01/22/2021

The root of inflammation is excessive turnover of cells. We all lose cells, and up to a certain point, it’s perfectly normal. Cells in the body are constantly wearing out, getting injured, or being invaded by microbes. In fact, we typically lose 50-70 billion cells every day. While much of cellular turnover is accounted for by cells that are shed from the body, such as skin and intestinal cells, tissues inside the body are losing cells, too.

To break the cycle of pain, Dr. Bill Rawls says it’s crucial to reduce your microbial load, strengthen your immune system, and support your cells.

01/22/2021

Chronic Lyme disease is a research disadvantaged disease. Compared to other diseases very little clinical research has been conducted—particularly for the treatment of chronic Lyme disease where patients remain ill for six or more months following a short course of antibiotics. The National Institute of Health has funded just three clinical trial grants for the treatment of chronic Lyme disease.

Although Lyme disease is estimated to have over 400,000 cases per year, data from clinicaltrial.gov indicates that research for Lyme disease trails behind leprosy, which has an incidence of less than 200 cases a year (Goswami 2013). To date, pharma has shown no interest in developing new treatment drugs for chronic Lyme disease.

09/19/2020

With 300,000 new cases per year, and more than a third of patients failing treatment, these data clearly show we are creating a huge public health burden. Based on Aucott's research showing 11% will be disabled after standard treatment, Lyme disease is likely generating at least 30,000 new disabilities each year, which would average $14,400 per person in Social Security Disability payments. If every newly disabled chronic Lyme patient started receiving disability, this would amount to an additional $432 million per year, a significant chunk of the almost $10 billion in total annual Social Security Disability payments.

In 2014, the NIH expects to fund $21 million in Lyme disease research, which amounts to only $70 per new case, and represents less than half a percent of the NIH's 2014 infectious diseases budget. For comparison, AIDS incidence is 50,000 new cases per year and accounts for three-fifths of the $5 billion NIH infectious diseases budget, or $60,000 per new case. If NIH won't increase the Lyme disease research budget, the Social Security Administration should be very interested in putting some pressure on them to do so. We can't afford not to put more money into research for a disabling disease that should be entirely preventable.

09/16/2020

You can strengthen your immune system. Vit D, A, C, Zinc, iodine, selenium, and melatonin. Read Doris Loh's research.

ORLANDO, Fla. (Ivanhoe Newswire) -- Fever, chills, shortness of breath, fatigue, muscle aches, body aches, headaches, na...
09/12/2020

ORLANDO, Fla. (Ivanhoe Newswire) -- Fever, chills, shortness of breath, fatigue, muscle aches, body aches, headaches, nausea, vomiting -- sounds like the symptoms of COVID-19. But actually, it’s Lyme disease. And this year is expected to be an exceptionally bad year for ticks.

Doctors say Lyme disease is often misdiagnosed as chronic fatigue, fibromyalgia, lupus, multiple sclerosis and even dementia. But there is one telltale sign.

08/31/2020

Basic Information about Lyme Disease
by The International Lyme and Associated Diseases Society

1 Lyme disease is transmitted by the bite of a tick, and the disease is prevalent across the United States and throughout the world. Ticks know no borders and respect no boundaries. A patient's county of residence does not accurately reflect his or her Lyme disease risk because people travel, pets travel, and ticks travel. This creates a dynamic situation with many opportunities for exposure to Lyme disease for each individual.
2 Lyme disease is a clinical diagnosis. The disease is caused by a spiral-shaped bacteria (spirochete) called Borrelia burgdorferi. The Lyme spirochete can cause infection of multiple organs and produce a wide range of symptoms. Case reports in the medical literature document the protean manifestations of Lyme disease, and familiarity with its varied presentations is key to recognizing disseminated disease.
3 Fewer than 50% of patients with Lyme disease recall a tick bite. In some studies this number is as low as 15% in culture-proven infection with the Lyme spirochete.
4 Fewer than 50% of patients with Lyme disease recall any rash. Although the erythema migrans (EM) or “bull’s-eye” rash is considered classic, it is not the most common dermatologic manifestation of early-localized Lyme infection. Atypical forms of this rash are seen far more commonly. It is important to know that the EM rash is pathognomonic of Lyme disease and requires no further verification prior to starting an appropriate course of antibiotic therapy.
5 The Centers for Disease Control and Prevention (CDC) surveillance criteria for Lyme disease were devised to track a narrow band of cases for epidemiologic purposes. As stated on the CDC website, the surveillance criteria were never intended to be used as diagnostic criteria, nor were they meant to define the entire scope of Lyme disease.
6 The ELISA screening test is unreliable. The test misses 35% of culture proven Lyme disease (only 65% sensitivity) and is unacceptable as the first step of a two-step screening protocol. By definition, a screening test should have at least 95% sensitivity.
7 Of patients with acute culture-proven Lyme disease, 20–30% remain seronegative on serial Western Blot sampling. Antibody titers also appear to decline over time; thus while the Western Blot may remain positive for months, it may not always be sensitive enough to detect chronic infection with the Lyme spirochete. For “epidemiological purposes” the CDC eliminated from the Western Blot analysis the reading of bands 31 and 34. These bands are so specific to Borrelia burgdorferi that they were chosen for vaccine development. Since a vaccine for Lyme disease is currently unavailable, however, a positive 31 or 34 band is highly indicative of Borrelia burgdorferi exposure. Yet these bands are not reported in commercial Lyme tests.
8 When used as part of a diagnostic evaluation for Lyme disease, the Western Blot should be performed by a laboratory that reads and reports all of the bands related to Borrelia burgdorferi. Laboratories that use FDA approved kits (for instance, the Mardx Marblot®) are restricted from reporting all of the bands, as they must abide by the rules of the manufacturer. These rules are set up in accordance with the CDCs surveillance criteria and increase the risk of false-negative results. The commercial kits may be useful for surveillance purposes, but they offer too little information to be useful in patient management.
9 There are 5 subspecies of Borrelia burgdorferi, over 100 strains in the US, and 300 strains worldwide. This diversity is thought to contribute to the antigenic variability of the spirochete and its ability to evade the immune system and antibiotic therapy, leading to chronic infection.
10 Testing for Babesia, Anaplasma, Ehrlichia and Bartonella (other tick-transmitted organisms) should be performed. The presence of co-infection with these organisms points to probable infection with the Lyme spirochete as well. If these coinfections are left untreated, their continued presence increases morbidity and prevents successful treatment of Lyme disease.
11 A preponderance of evidence indicates that active ongoing spirochetal infection with or without other tick-borne coinfections is the cause of the persistent symptoms in chronic Lyme disease.
12 There has never been a study demonstrating that 30 days of antibiotic treatment cures chronic Lyme disease. However there is a plethora of documentation in the US and European medical literature demonstrating by histology and culture techniques that short courses of antibiotic treatment fail to eradicate the Lyme spirochete. Short treatment courses have resulted in upwards of a 40% relapse rate, especially if treatment is delayed.
13 Most cases of chronic Lyme disease require an extended course of antibiotic therapy to achieve symptomatic relief. The return of symptoms and evidence of the continued presence of Borrelia burgdorferi indicates the need for further treatment. The very real consequences of untreated chronic persistent Lyme infection far outweigh the potential consequences of long-term antibiotic therapy.
14 Many patients with chronic Lyme disease require prolonged treatment until the patient is symptom-free. Relapses occur and retreatment may be required. There are no tests currently available to prove
that the organism is eradicated or that the patient with chronic Lyme disease is cured.
15 Like syphilis in the 19th century, Lyme disease has been called the great imitator and should be considered in the differential diagnosis of rheumatologic and neurologic conditions, as well as chronic fatigue syndrome, fibromyalgia, somatization disorder and any difficult-to-diagnose multi-system illness.

Disclaimer: The foregoing information is for educational purposes only. It is not intended to replace or supersede patient care by a healthcare provider. If an individual suspects the presence of a tick-borne illness, that individual should consult a healthcare provider who is familiar with the diagnosis and treatment of tick-borne diseases.

Taken from ILADS .ORG, Please see their website~

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