Superior Mesenteric Artery Syndrome Research Awareness and Support

Superior Mesenteric Artery Syndrome Research Awareness and Support We are a registered non-profit with the ultimate goals of raising awareness of SMAS, educating others on SMAS and assisting those with SMAS financially.

If you will be attending the Ehlers Danlos Society Global Learning Conference in Allen, Texas July 24-26 you have the ch...
06/13/2026

If you will be attending the Ehlers Danlos Society Global Learning Conference in Allen, Texas July 24-26 you have the chance to participate in the BioBank Research Study. The Ehlers Danlos Society is looking for participants with EDS and also unaffected individuals to join the study.

Link to register: https://www.ehlers-danlos.com/biobank/

I invite you to follow Taysvision and follow Jodie’s journey of grief and healing and sharing her beautiful daughter Tay...
06/12/2026

I invite you to follow Taysvision and follow Jodie’s journey of grief and healing and sharing her beautiful daughter Taylah.

This was Tay.

A lot of people see this photo and notice a beautiful girl sitting on a beach towel.

I see sunshine.

Tay loved the beach. She loved feeling good in her own skin. She was a self-confessed fake tan addict who treated a fresh tan like most people treat oxygen. The pink bikini, the sunglasses, the giant yellow towel—it all just worked.

Looking at this photo now, I can’t help but smile at how perfectly that towel matched her.

Bright.
Warm.
Impossible to ignore.

Just like Tay.

What this photo doesn’t show is how unwell she already was.

By this stage, her body was fighting battles that most people couldn’t see. Yet somehow she still found a way to show up with her smile, her confidence, and that beautiful energy that made people gravitate towards her.

We often say that when Tay left us, the lights went out.

Looking at this photo, it’s easy to understand why.

She carried so much sunshine of her own. ☀️💛

I’ve been thinking about sharing more stories about Tay.

Not just her illness, but the funny stories, the sarcastic comments, the family memories, and the moments that made her who she was.

Some of these stories are chapters from the book.

Some are stories that never made it onto the pages.

Would you like to hear more Tay stories?

SMAS in the news. Heartbreaking to read how someone so young is self-isolating because they are worried that their appea...
06/11/2026

SMAS in the news. Heartbreaking to read how someone so young is self-isolating because they are worried that their appearance will frighten small children.

Kelsey at the age of just 20, has almost died several times and has next to no quality of life. 'This illness has destroyed my family. There are daily worries that I am going to die.'

Rest in Peace beautiful SMAS Warrior Francesca “Frannie” Rossetti 🕊️ In loving memory, today we request that you take a ...
06/10/2026

Rest in Peace beautiful SMAS Warrior Francesca “Frannie” Rossetti 🕊️
In loving memory, today we request that you take a moment to reach out to a friend, inquire about their well-being, actively listen, and reassure them that they are not an inconvenience. Dealing with SMAS can be challenging on the easiest of days, the difficult days can become unimaginable.

From Daniela O’Neill-My daughter is 19 and an aspiring filmmaker who has POTS, MCAS and SMAS (and likely hEDS as well). ...
06/06/2026

From Daniela O’Neill-

My daughter is 19 and an aspiring filmmaker who has POTS, MCAS and SMAS (and likely hEDS as well). She has produced a feature-length documentary, Chronically, that captures the medical & lived experiences of 5 teen girls from around the world (including herself) with chronic illness & rarer diagnoses. Four have POTS (along with other conditions such as EDS, vascular compressions). Her film is currently available to view online from anywhere in the world as part of the Toronto Lift-Off Film Festival 2026 until July 8. If you go to their website https://liftoff.network/toronto-lift-off-film-festival-2026/
, it is part of the Features Programme ($15 CDN to view all the Feature films).

Her goal in making this film is to spread awareness and call attention to the toll that these long and frustrating medical journeys and conditions can have on teens. Please feel free to share any or all of this information. Once the festival circuit is over, she plans to make it wore widely accessible to all. She also has more information on social media under her name, Taite Koehler. (I’m sharing this with her permission.)

Rest in Peace Warrior Marie Mar. Please remember her family and friends in this difficult time. 🕊️
06/02/2026

Rest in Peace Warrior Marie Mar. Please remember her family and friends in this difficult time. 🕊️

What’s one thing you wish people understood about SMAS? Share your thoughts below ⬇️
05/29/2026

What’s one thing you wish people understood about SMAS?

Share your thoughts below ⬇️

05/24/2026

Pro tip to get your doctor to listen to you if you can’t get proper pain management.

Please help us Celebrate Tara Williams , President of the Superior Mesenteric Artery Syndrome Research Awareness and Sup...
05/23/2026

Please help us Celebrate Tara Williams , President of the Superior Mesenteric Artery Syndrome Research Awareness and Support Nonprofit by donating to our fundraising campaign in honor of her last year in the 30s!
Thank you for being our leader, our rock, and our driving spirit!

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PO Box 555
Bonham, TX
75418

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