Lyme Treatment Foundation

10/08/2026

Our board member, Dr. Caitlin Doody, will be presenting her PhD research on PTSD and illness uncertainty in chronic Lyme disease at the Tick-Borne Illness Global Summit on October 11. We’re proud to support Caitlin’s work bringing attention to the emotional burden of chronic Lyme disease and its importance in patient care.

Dr. Caitlin Doody, PhD, Family Nurse Practitioner

FREE ONLINE EVENT 🕷️🌎 The Tick-Borne Illness Global Summit starts this week!
Taking place October 8–11, this free online event is a great opportunity for patients, families, caregivers, and healthcare professionals to learn more about the Lyme and tick-borne illness complex from a variety of speakers and perspectives.
I’m honored to be part of this year’s speaker lineup and will be presenting:
PTSD and Illness Uncertainty in Chronic Lyme Disease
My presentation shares findings from my PhD research examining post-traumatic stress symptoms and illness uncertainty in adults living with chronic Lyme disease.
I’ll discuss the relationship between illness uncertainty and symptoms of post-traumatic stress, and why recognizing the emotional and psychological burden of chronic Lyme is an important part of understanding the whole patient experience.
Importantly, acknowledging the psychological impact of chronic Lyme does not diminish or invalidate the physical experience of Lyme disease. Instead, it helps us better understand the complexity of living with chronic illness.
📅 My presentation is on Sunday, October 11
⏰ 4:30 PM EDT
💻 FREE + ONLINE
Whether you’re living with tick-borne illness, supporting someone who is, or caring for these patients clinically, this summit is a great opportunity to learn more about the Lyme and tick-borne illness complex.
🎟️ Registration is FREE — reserve your seat through the link in my bio!

10/04/2026

Check for ticks. Learn more today at lymetreatmentfoundation.org 💚

10/02/2026

We’re excited to share that our Founder & Executive Director, Wendy Phillips, has begun the M.S. in Pharmacology program at the University of California, Irvine. 💛💙

After Lyme disease forced Wendy to step away from graduate school 10 years ago, her experience ultimately led her to found the Lyme Treatment Foundation. Today, she is returning to graduate school to pursue an M.S. in Pharmacology at UC Irvine, bringing both her lived experience and years of work in the Lyme community into the classroom. She will use the knowledge and training she gains to strengthen LTF’s research efforts and help advance better solutions for people affected by Lyme disease.

We’re incredibly excited to see how this training will contribute to the work ahead at LTF. 🔬


Lymedisease.org

10/01/2026

This terrible infection wreaks havoc on the body. Have you have been impacted by bartonella? 💚

09/17/2026

Lyme disease patients — we want to hear from you. 💚

If you have been impacted by Lyme disease, please take a few minutes to complete this patient survey:

🔗 https://docs.google.com/forms/d/e/1FAIpQLSd8r42DMiTEV8NBEHNpRLJq05GRicu_71X2hPYxPivAQYy6BQ/viewform?pli=1

The PathwayAI team is gathering patient experiences through the HHS TOPx Tech Sprint to better understand the Lyme disease patient journey and the broader impact of the disease — including diagnostic delays, healthcare costs, lost work, disability, and the impact on patients and their families.

The more patients who respond, the better the data can reflect what the Lyme community is actually experiencing.

Please take a few minutes to share your experience, and share this post so we can reach as many Lyme disease patients as possible. 💚

Lymedisease.org

The GreenAcorn team is participating in Phase II of the HHS TOPx Tech Sprint for AI and Invisible Illness. Our project, PathwayAI, is exploring how data can better describe the patient journey and the human and economic burden associated with Lyme disease, particularly the period between the beginni...

09/14/2026

We are so proud to share that we have awarded 581 Lyme disease testing and treatment grants since launching in February 2019! 💚 Thank you all for your incredible support. We look forward to helping more this winter! Learn more about what we do or make a donation at lymetreatmentfoundation.org.

08/31/2026

Eight years ago, I came up with an idea to help other people afford Lyme disease treatment after my own horrific battle with the disease.

In 2017, I was 26 years old and was dealing with a systemic, undiagnosed illness that included symptoms like heart problems, seizures, and neuropathy. A year before, in 2016, I had to leave my graduate program, where I was studying biochemistry and loving what I was doing.

In June 2017, I was diagnosed by a nurse in the hospital who sent me to my current Lyme doctor, Dr. Jody Greenfield, who saved my life.

A year into treatment, I kept waking up from nightmares thinking of all the people who couldn’t afford treatment.

In July 2018, I came up with the rough idea of the foundation. My family helped me come up with the name, and I incorporated the Lyme Treatment Foundation on August 1, 2018.

I was still too sick to actually start the nonprofit, so we officially launched in February 2019.

Since then, we’ve awarded 581 testing and treatment grants, funded research at the University of Oxford, had our billboard up in Times Square, advocated on Capitol Hill and won awards that gave us more publicity and helped us fundraise harder.

Never in my wildest dreams, when I started the Lyme Treatment Foundation from my bed, did I imagine it would become what it is today.

I’m so proud of what we’ve accomplished so far, but I think the next eight years will be even bigger.

Thank you for all your support. We can’t wait to help more people in 2027.

Keep fighting. 💚
Lymedisease.org

08/26/2026

Thank you to Enterprise Holdings Foundation for awarding the Lyme Treatment Foundation $11,500 since 2023! 💚 These funds have benefited our treatment grant program. Thank you for your support!

08/18/2026

Thank you Robert F. Kennedy, Jr. and Dennis Quaid for bringing greater attention to Lyme and tick-borne diseases and the need for improved diagnosis, research, and patient care. 💚