The LAM Foundation

The LAM Foundation Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from The LAM Foundation, Cincinnati, OH.

Our mission: To catalyze new treatments—and ultimately a cure—for LAM by advancing research, supporting compassionate care, and amplifying the voice of women with rare diseases.

We can't wait to see you! Join us TOMORROW for our 2026 Day of Giving — a night to come together as the LAM community an...
09/02/2026

We can't wait to see you! Join us TOMORROW for our 2026 Day of Giving — a night to come together as the LAM community and Fund A Cure for LAM.

ATTEND: Free virtual event, Sept 3 | 7 PM ET — research updates, patient stories, and a toast to our community. RSVP and log in anytime.

DONATE: A generous donor will unlock an extra $50,000 if we raise $300,000 together. Every gift counts!

STAY TO THE END for a special announcement, trivia prizes, and the reveal of our Cruise for a Cure supporter.

Let's get one step closer to a world without LAM.

RSVP for the live event: https://www.thelamfoundation.org/event/day-of-giving-virtual-celebration/

The LAM Foundation is proud to celebrate the publication of new research from Mary Beth Brown, PT, PhD, and her collabor...
09/01/2026

The LAM Foundation is proud to celebrate the publication of new research from Mary Beth Brown, PT, PhD, and her collaborators, including Dr. Claire Child, at the University of Washington.

This research is in response to a need identified at The LAM Foundation’s 2017 LAM Patient Benefit Conference in Los Angeles where patients, researchers, and clinicians came together to identify the questions that mattered most to people living with LAM. Fatigue was noted as a significant impact on quality of life and researchers heard the call to action.

In response, Dr. Brown questioned: Could changes in skeletal muscle help explain the increased fatigue experienced by people with LAM?

Read More: https://www.thelamfoundation.org/new-discoveries-inspired-by-the-patient-voice/

Meet Abby Passeri, co-LAM liaison for the Mid-Atlantic states Region 5. Diagnosed in 2023, Abby sprang to action to hel...
08/31/2026

Meet Abby Passeri, co-LAM liaison for the Mid-Atlantic states Region 5. Diagnosed in 2023, Abby sprang to action to help LAM patients through service as a liaison, LAM advocate, and member of our board of directors. She has lived the journey of fear and misdiagnosis and brings her experience, compassion, and passion to all that she does.

The LAM Foundation is deeply grateful for the commitment of our LAM Liaisons like Abby who provide communities of care for women with LAM. LAM Liaisons are a listening ear, a source of empathy, and facilitators of resources and support for women navigating the unique challenges of this disease.

Click the link below to learn more about the LAM Liaison Network and to find a liaison in your area.

https://bit.ly/46qbsuA

We are excited to share a peek at progress from a promising Foundation funded study led by Dr. Roya Babaei Jadidi at the...
08/30/2026

We are excited to share a peek at progress from a promising Foundation funded study led by Dr. Roya Babaei Jadidi at the University of Nottingham. Her current research, Targeting IL-6 Signaling to Restore Alveolar Regeneration in Lymphangioleiomyomatosis, is exploring how LAM may interfere with the lung’s ability to repair itself.

Read more: https://ow.ly/YpIW50ZFT4s

It was great to see our rare disease friends at the TSC World Conference in Aurora, CO earlier this month. Thank you for...
08/28/2026

It was great to see our rare disease friends at the TSC World Conference in Aurora, CO earlier this month. Thank you for allowing us to advance research on behalf of our communities.

TSC Alliance

We all have a reason why we give.Maybe your why is yourself, a loved one, or a friend. Whatever your why, this is our m...
08/27/2026

We all have a reason why we give.

Maybe your why is yourself, a loved one, or a friend.

Whatever your why, this is our moment to act.

Because of this community, women who once faced LAM with no treatment have hope. Research funded by The LAM Foundation helped bring sirolimus from the laboratory to women who needed it.

An anonymous donor is challenging our community: Raise $300,000. Unlock $50,000.

Every gift brings us closer to $350,000 for the people, programs and progress that will lead us to a cure.

So today, we are asking you to remember your why.

What does a world without LAM mean to you?

Make a gift today that reflects your answer.
thelamfoundation.org/donate

Together, we have changed the future of LAM before.
Together, we can change it again.

The LAM Foundation continues to work to shape a better future for those living with LAM. Recently, LAM Advocates Nerys S...
08/26/2026

The LAM Foundation continues to work to shape a better future for those living with LAM. Recently, LAM Advocates Nerys Silva, Kelly O’Toole Leonard, Kate Musgrove Racoff, Jennifer Boyd, Sarah Alexander, and Cindy Beasley met with their congressional leaders to educate them about the importance of the Supplemental Oxygen Access Reform (SOAR) Act for our community. Connecting the lived experience of people with LAM to policy and decision makers is a powerful tool to bring about meaningful change. Learn more about how you can advocate for the SOAR Act at: https://www.thelamfoundation.org/soar/

We are grateful for the opportunity to participate annually through EveryLife Foundation’s Rare Across America week.

"I don’t like being told “no.” When it comes to living with Lymphangioleiomyomatosis (LAM), I research, adapt, and advoc...
08/25/2026

"I don’t like being told “no.”

When it comes to living with Lymphangioleiomyomatosis (LAM), I research, adapt, and advocate not only for myself, but for the thousands of women living with LAM. That advocacy has included supporting the SOAR Act, legislation designed to improve access to supplemental oxygen for people with chronic lung disease. Until recently I believed I was fighting for others, then I became the patient who was told “no.” "

Click the link below to read Cindy's full story and why the Supplemental Oxygen Access Reform Act (SOAR Act) is vital for those who need portable oxygen to live a full life.

https://ow.ly/BpIc50ZFny6

This year's Day of Giving will celebrate the space you created with The LAM Foundation as the trusted source of communit...
08/22/2026

This year's Day of Giving will celebrate the space you created with The LAM Foundation as the trusted source of community, education and advocacy for patients. And the connection between that community and the compassionate clinicians and dedicated scientists who move us forward towards a world without LAM.

A gift on September 3rd will support the people programs and progress that will lead to a cure for LAM.

Swipe through the graphics to see three examples of the impact your gift will make.

Give now: thelamfoundation.org/donate

Address

Cincinnati, OH

Opening Hours

Monday 9am - 5:30pm
Tuesday 9am - 5:30pm
Wednesday 9am - 5:30pm
Thursday 9am - 5:30pm
Friday 9am - 5:30pm

Telephone

+15137776889

Website

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