PheoPara Alliance

09/29/2017

Greetings All! By the end of October, we are phasing out this FB page. If you would like to follow what the Pheo Para Alliance is doing for the community please go to: facebook.com/PheoPara

Advocacy, awareness and support for those affected by /

09/01/2017

HERE IS OUR BIG NEWS!!!!
PRESS RELEASE
Pheo Para Alliance and Pheo Para Troopers to Merge
Bethesda, Maryland – Pheo Para Alliance and Pheo Para Troopers, the two most recognized global nonprofit organizations focusing on pheochromocytoma and paraganglioma (pheo/para), have announced their intentions to merge. The goal of the merger is to optimize assistance to patients of this orphan cancer.
Historically, the Pheo Para Alliance has focused on donor programs that support research and medical advances, while the Pheo Para Troopers created a grassroots campaign for direct patient support. The decision to merge comes at a time when both organizations are poised for a period of significant growth. Combining research, funding and patient direct support will make the new Pheo Para Alliance the most comprehensive pheo/para patient organization on the globe.
Emily Collins, Chair of the Pheo Para Alliance’s Board of Directors, stated that “We have always been partners – we helped to fund the Pheo Para Troopers initially – we have several connections for fundraising and want to be more involved with patient direct services to compliment the numerous research grants we fund.”
“The Pheo Para Troopers has quickly become a well-recognized and respected organization internationally in the world of pheo/para… With the merger, we expect to see the realization of our mission through a much broader resource pool” says Allen Wilson, President of the Pheo Para Trooper’s Board of Directors.
Matthew Capogreco, Secretary for the Pheo Para Troopers and a founding member of that organization, sums up the benefits he envisions: “In the end, patients, researchers, and members of the medical community will benefit from this forward-thinking move. As it has been for both organizations in the past, the primary goal of the new Pheo Para Alliance will be to increase awareness of the number-one most misdiagnosed cancer –- pheochromocytoma. Both groups firmly believe the success of this merger will be measured in the lives saved.”
Both Pheo Para Alliance and Pheo Para Troopers are registered 501(c)(3) nonprofit corporations.

08/30/2017

Check out the video from the Pheo Para Troopers today! Big news from down under in Australia!

07/07/2017

We are still enjoying photos of our recent event at the Australian Embassy last month where we honored research being done in Australia and supported in part by the Pheo Para Alliance.
Researchers Dr. Richard Tothill and Dr. Rory Clifton-Bligh along with Australian Ambassador Joe Hockey and Minister Counsellor Anthony Murfett celebrated the work being done to benefit patients worldwide. Also joining the festivities were members of the Pheo Para Alliance and the Pheo Para Troopers
and Dr. Karel Pacek, Dr. Art Tischler, Dr. Karen T. Adams and other honored guests. We can't wait to do another event!

07/03/2017

Thank you to our speakers: Pheo Para Alliance Board Chair Emily Collins, Dr. Rory Clifton-Bligh, Australian Ambassador Joe Hockey, Dr. Richard Tothill, Australian Minister of Industry, Science and Education Anthony Murfett, Pheo Para Alliance Board Member and Pheo Para Trooper President, Allen Wilson.
An extra thank you to Dr. Karel Pacak, Dr. Karen Adams and Dr. Art Tischler for supporting this event and gracing us with your presence.

07/03/2017

Look where we were on June 15th! Many thanks to the Australian Embassy for hosting us.

06/04/2017

For those who are coming to our event on June 15th, don't forget to RSVP as we will need your name for our list and you will need your identification to be admitted to the Australian Embassy. We look forward to seeing you soon with some of the most important researchers in the pheochromocytoma and paraganglioma field. Come meet them and hear what they have to say. See you soon!

05/28/2017

Please joint us!

Save the date! June 15th at the Australian Embassy in Washington, DC.

05/06/2017

Come join our event! Australia comes to the US with lots of great information. Join us at the Australian Embassy!

Save the date! June 15th at the Australian Embassy in Washington, DC.

04/14/2017

Save the date! June 15th at the Australian Embassy in Washington, DC.

02/14/2017

Interesting read about a famous feud and a rare genetic disease!

The Hatfields vs. the McCoys is the best-known feud in U.S. history. and now science has shown there may be a genetic component to it.

01/30/2017

Check out our website! We have some new features coming soon so keep checking back. pheo-paraalliance.org