SuperCam Strong

Updates on Cameron's progress and fundraising information With a quick response from family, friends and emergency personnel, Cam was revived in the ambulance.

On October 10, 2021, the Taft family experienced a horrific tragedy when their youngest son Cameron (22 months) had a near-fatal drowning accident. He was taken to Elmhurst Hospital and was transferred to Lurie Children's Hospital in Chicago, IL, where he remained in the ICU until November 1st. Cameron was on a ventilator for the first nine days fighting for his life. Mo and Chaz were given news t

hat no parent wants to hear, and that they needed to make a decision. Mo was always taught "Where there is life, there is hope". Cam still had life in him! Testing showed that Cameron sustained a severe brain injury and the road to recovery would be long one. They are ready to take on that road! Cam showed progress at Lurie. He was taken off the ventilator and could breath on his own. GOD IS GOOD! He kept making positive steps in the right direction. After three weeks at Lurie, he was transferred to in-patient rehab at Shirley Ryan Ability Lab, where receives extensive therapy every day. He continues to make progress and keeps amazing everyone! He has a long road ahead, but he keeps proving everybody wrong and keeps showing us that he has incredible strength! We are sharing this page because we believe in power of prayer. The more people that pray for Cam, the better his outcome will be. We will be posting updates on his progress and will be sharing any future fundraising efforts. Please, say a prayer for Cameron every day. Hug and kiss your loved ones tight because you never know what a day could bring. We thank our lucky stars that we get to spend another day giving Cam and his brothers every day kisses!

* If you would like to donate in any way to the Taft family, there is a gofundme link at the top of SuperCam strong page or you can send it to the Taft family directly at

Zelle- 1-773-406-1852
Venmo- -Weber-14

* If you would like to buy SuperCam bracelets we are accepting any donation you would like to give. Please send us a message on our SuperCam messenger and let us know how many bracelets you would like and where we can send them to. You can send your donations to Courtney Weber at

Zelle- 1-773-717-0617
Venmo- Courtney-Weber-5

Thank you to all for your continued support!

08/26/2026

Look who lost another tooth!!

08/24/2026

Cameron has a lot of fun at Therapy! He really enjoys the swing! He has been using his button to say some words beautifully! He loves that he can communicate with it. He is in there and he definitely understands and loves that he can communicate! Check out the video! (don’t mind the mosquito bite on his face… With all of his allergy symptoms he now has a thing called Skeeter syndrome when he gets bit by a mosquito bite… Just add one more thing on the plate!)

08/03/2026

Finally got to see the mast cell specialist at Children’s Wisconsin. He was great! He definitely believes Cam has chronic Urticaria. He suggested starting him and not only the antihistamines and mast cell stabilizer he’s been on but also starting a shot for allergies. He wanted to talk to his G.I Doctor first to see if one of the shots would be better than the other concerning all of his G.I. issues. They were thinking either Xolair or Dupixent. Once we hear back from his G.I doctor we will go from there. Overall, it was a great meeting! We have an upcoming neurology appointment this week as well. Seizure wise he has been doing great! I haven’t noticed any seizures since getting all of his mast cell/allergy issues under control. I’ll keep you guys posted on what neurology says.
Overall Summer has been great! A lot of hanging with his brothers and enjoying each other’s company! Thanks again for all of the love and support!

07/19/2026

Cam had a fun day fishing with his fam! 🎣

07/09/2026

Thank you president DeSimone for your continued support! Always a great time! Selling out fast if you’re interested!

06/30/2026

Cam has been having a great summer so far! Since upping his antihistamines to a very high dose with a mast cell stabilizer, the hives have stopped. We also started doing a breathing treatment/shaky vest in the morning and evening to help with his secretions which has also helped tremendously. I have not needed to suction him in over a month.
We had a dermatology appointment and everything looked great! We had another cerebral palsy/orthopedic appointment where we decided we should try something for his very stiff tone in his body. We started him on a low dose of baclofen. We also decided to try a round of Botox in his limbs to help with the stiffness. I have seen a little bit of a change with that so far, but it does take a few weeks to fully kick in. Im looking forward to seeing if that helps him! I am so grateful so for the Nursing help that I’ve had as well. They have been awesome! It really helps me run Cameron‘s brothers around to their extra curricular activities without making him go with, especially when he’s not feeling the greatest.
We also started speech therapy back up and he had been using his AAC device really well! He definitely follows commands and is getting a better hang of it!
Looking forward to the rest of a great summer!

05/27/2026

Since coming home from Mayo, we have upped Cameron‘s antihistamines by a lot! He is now on 30 ML of antihistamines daily, a mass cell stabilizer, and a nasal spray. This seems to have helped him so much! I am not seeing any breakthrough hives or discoloration of the legs since starting the higher dose.

We also talked to the pharmacist from Mayo about how he metabolize his different medication‘s. There were no major medication’s that he is on that aren’t being metabolize correctly, which is a good thing. It did show some pain medication’s we use that should be switched, and some seizure medications he doesn’t metabolize well (but he is currently not on any of those) so he’s in a good spot!

The reflux study from Children’s Wisconsin that came back and showed terrible reflux (160 reflux episodes a day) We upped his esomeprazole from once a day to twice a day. That didn’t help much. The G.I. doctor mentioned starting him on baclofen (muscle relaxer) because that could be used as an off label medication for reflux. We also saw his orthopedic doctor at Wisconsin since we’ve been back as well. He had his hips x-rayed again. His right hip is still at 45% out, but his left hip did come out a little further from 60% to 90%. They too mentioned starting baclofen to relax his muscle tone.

We did start the baclofen. The great news is baclofen is helping with his muscle tone. He does seem a little bit looser, and it seems to be helping with his reflux! I also started him on twice a day breathing treatments with a shaky vest to see if that would help with reflux/congestion. It seems to be working! we will keep up with this as a daily regimen for him since he’s been doing so well with it.

He also finished his first year of kindergarten! He had such a great year and made so many friends! We couldn’t be more proud of this boy!

05/22/2026

Cameron would like to introduce himself!

05/02/2026

Mayo, update…

It was great! Before we left for Mayo, Cam had a pH impedance test done at Children’s Wisconsin. We got those results back which we’re not good. We don’t have the full results, but it did show he is refluxing. At least 120 times in the 24 hours he was tested. He is on omeprazole, Pepcid and being fed through the J tube (which bypasses his stomach), so there should be no reason he is refluxing, but he is! Once we get the final results of that back his G.I. team and myself will get a plan together to figure out next steps.

The pediatric Doctor Who was overseeing Cam‘s case at Mayo ordered a blood test to see how Cameron metabolizes his medicines. We got those results back which show he does metabolize them very differently. Either he’s metabolizing them too slow or too fast meaning if it is too slow, it could cause buildup and have some toxicity going on in his body and if it’s too fast, the meds aren’t doing anything for him. I have a zoom with The pharmacist from Mayo on May 4 to go over all of his medicines and put forth a plan that Will better suit him. Looking forward to that.

His EEG at Mayo looked good. It was only an hour long, but it did show no seizures, which was great! He did have a 24 hour blood pressure test done which also was great. No problems with that. He had an ultrasound of his kidneys and bladder, which were all normal too!

Allergy saw him and diagnosed him with chronic urticaria. That diagnosis is under the mast cell activation syndrome umbrella but it happens way more frequently than a normal MCAS episode. Chronic urticaria can happen daily many times a day.

When we got to Mayo, he was on 10 ML‘s of antihistamines. They since have upped them a lot! We can go up to 40 ML‘s a day with him because of this diagnosis. I’m slowly titrating up to make sure he doesn’t react. They also added in Flonase for nasal congestion which he gets every day. Hopefully overtime, this will help his symptoms.

I’m really hoping to get to the bottom of the reflux issue to get him more comfortable. It’s obviously been a bother to him and I’m glad we are addressing it! Keep you all posted on that when I know more.

It’s been great to be back home with the family! As you all know, his favorite is hanging out with his brothers! He’s also gaining more friends at school, which is so awesome to hear about when he gets home. He definitely is a ladies man!

04/20/2026

Today was go time!

Today was awesome! The first doctor we saw was the pediatrician. He was a wealth of knowledge. . He studied Cam‘s case and had lots of information to give us. The most interesting thing about it is he mentioned that Cam could have some sort of genes (DNA) which may not let him absorbi his medicines or food that he takes the right way. He mentioned a blood test called pharmocogenomic testing.He ordered that test right away and we got that done. We should have the results for those tests in about 7 to 10 business days. He already booked an appointment with us via Zoom with a pharmacist to go over the results and to figure out medicines and foods that would better fit Cam’s needs if he does in fact have this.

We then saw G.I./nutrition. This is one of Cam‘s biggest issues is feeding with pain which leads to congestion. She thinks we are on the right path with his growth curve. Since starting the mast cell stabilizer he has been tolerating feeds better and has put on some good weight. She mentioned a couple tricks that we could try using food coloring to see if when in fact, I am suctioning him if I’m if he’s refluxing gastric secretions rather than oral secretions. I will try that when we get home. Otherwise she thinks it’s more of a mast cell or absorption problem.

We then saw dermatology who took a good look at him. She was concerned with the color of his legs. She thought it could be a circulatory issue or affiliated with mast cell. We are scheduled for a 24 hour blood pressure test tomorrow as well as an EEG. She also mentioned talking to allergy when we see them on Wednesday about starting singular which can also help with mast cell activation syndrome if he in fact has that. Tomorrow we are getting a lot of tests done. Looking forward to seeing allergy and nephrology on Wednesday. I will keep you posted when we have more answers.

Thank you again for all of the love and support! 🦸‍♂️💪🏻

Address

Bensenville, IL
60106

Telephone

+17734061852

Website

http://www.supercamstrong.org/

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