SuperCam Strong

Updates on Cameron's progress and fundraising information With a quick response from family, friends and emergency personnel, Cam was revived in the ambulance.

On October 10, 2021, the Taft family experienced a horrific tragedy when their youngest son Cameron (22 months) had a near-fatal drowning accident. He was taken to Elmhurst Hospital and was transferred to Lurie Children's Hospital in Chicago, IL, where he remained in the ICU until November 1st. Cameron was on a ventilator for the first nine days fighting for his life. Mo and Chaz were given news t

hat no parent wants to hear, and that they needed to make a decision. Mo was always taught "Where there is life, there is hope". Cam still had life in him! Testing showed that Cameron sustained a severe brain injury and the road to recovery would be long one. They are ready to take on that road! Cam showed progress at Lurie. He was taken off the ventilator and could breath on his own. GOD IS GOOD! He kept making positive steps in the right direction. After three weeks at Lurie, he was transferred to in-patient rehab at Shirley Ryan Ability Lab, where receives extensive therapy every day. He continues to make progress and keeps amazing everyone! He has a long road ahead, but he keeps proving everybody wrong and keeps showing us that he has incredible strength! We are sharing this page because we believe in power of prayer. The more people that pray for Cam, the better his outcome will be. We will be posting updates on his progress and will be sharing any future fundraising efforts. Please, say a prayer for Cameron every day. Hug and kiss your loved ones tight because you never know what a day could bring. We thank our lucky stars that we get to spend another day giving Cam and his brothers every day kisses!

* If you would like to donate in any way to the Taft family, there is a gofundme link at the top of SuperCam strong page or you can send it to the Taft family directly at

Zelle- 1-773-406-1852
Venmo- -Weber-14

* If you would like to buy SuperCam bracelets we are accepting any donation you would like to give. Please send us a message on our SuperCam messenger and let us know how many bracelets you would like and where we can send them to. You can send your donations to Courtney Weber at

Zelle- 1-773-717-0617
Venmo- Courtney-Weber-5

Thank you to all for your continued support!

05/27/2026

Since coming home from Mayo, we have upped Cameron‘s antihistamines by a lot! He is now on 30 ML of antihistamines daily, a mass cell stabilizer, and a nasal spray. This seems to have helped him so much! I am not seeing any breakthrough hives or discoloration of the legs since starting the higher dose.

We also talked to the pharmacist from Mayo about how he metabolize his different medication‘s. There were no major medication’s that he is on that aren’t being metabolize correctly, which is a good thing. It did show some pain medication’s we use that should be switched, and some seizure medications he doesn’t metabolize well (but he is currently not on any of those) so he’s in a good spot!

The reflux study from Children’s Wisconsin that came back and showed terrible reflux (160 reflux episodes a day) We upped his esomeprazole from once a day to twice a day. That didn’t help much. The G.I. doctor mentioned starting him on baclofen (muscle relaxer) because that could be used as an off label medication for reflux. We also saw his orthopedic doctor at Wisconsin since we’ve been back as well. He had his hips x-rayed again. His right hip is still at 45% out, but his left hip did come out a little further from 60% to 90%. They too mentioned starting baclofen to relax his muscle tone.

We did start the baclofen. The great news is baclofen is helping with his muscle tone. He does seem a little bit looser, and it seems to be helping with his reflux! I also started him on twice a day breathing treatments with a shaky vest to see if that would help with reflux/congestion. It seems to be working! we will keep up with this as a daily regimen for him since he’s been doing so well with it.

He also finished his first year of kindergarten! He had such a great year and made so many friends! We couldn’t be more proud of this boy!

05/22/2026

Cameron would like to introduce himself!

05/02/2026

Mayo, update…

It was great! Before we left for Mayo, Cam had a pH impedance test done at Children’s Wisconsin. We got those results back which we’re not good. We don’t have the full results, but it did show he is refluxing. At least 120 times in the 24 hours he was tested. He is on omeprazole, Pepcid and being fed through the J tube (which bypasses his stomach), so there should be no reason he is refluxing, but he is! Once we get the final results of that back his G.I. team and myself will get a plan together to figure out next steps.

The pediatric Doctor Who was overseeing Cam‘s case at Mayo ordered a blood test to see how Cameron metabolizes his medicines. We got those results back which show he does metabolize them very differently. Either he’s metabolizing them too slow or too fast meaning if it is too slow, it could cause buildup and have some toxicity going on in his body and if it’s too fast, the meds aren’t doing anything for him. I have a zoom with The pharmacist from Mayo on May 4 to go over all of his medicines and put forth a plan that Will better suit him. Looking forward to that.

His EEG at Mayo looked good. It was only an hour long, but it did show no seizures, which was great! He did have a 24 hour blood pressure test done which also was great. No problems with that. He had an ultrasound of his kidneys and bladder, which were all normal too!

Allergy saw him and diagnosed him with chronic urticaria. That diagnosis is under the mast cell activation syndrome umbrella but it happens way more frequently than a normal MCAS episode. Chronic urticaria can happen daily many times a day.

When we got to Mayo, he was on 10 ML‘s of antihistamines. They since have upped them a lot! We can go up to 40 ML‘s a day with him because of this diagnosis. I’m slowly titrating up to make sure he doesn’t react. They also added in Flonase for nasal congestion which he gets every day. Hopefully overtime, this will help his symptoms.

I’m really hoping to get to the bottom of the reflux issue to get him more comfortable. It’s obviously been a bother to him and I’m glad we are addressing it! Keep you all posted on that when I know more.

It’s been great to be back home with the family! As you all know, his favorite is hanging out with his brothers! He’s also gaining more friends at school, which is so awesome to hear about when he gets home. He definitely is a ladies man!

04/20/2026

Today was go time!

Today was awesome! The first doctor we saw was the pediatrician. He was a wealth of knowledge. . He studied Cam‘s case and had lots of information to give us. The most interesting thing about it is he mentioned that Cam could have some sort of genes (DNA) which may not let him absorbi his medicines or food that he takes the right way. He mentioned a blood test called pharmocogenomic testing.He ordered that test right away and we got that done. We should have the results for those tests in about 7 to 10 business days. He already booked an appointment with us via Zoom with a pharmacist to go over the results and to figure out medicines and foods that would better fit Cam’s needs if he does in fact have this.

We then saw G.I./nutrition. This is one of Cam‘s biggest issues is feeding with pain which leads to congestion. She thinks we are on the right path with his growth curve. Since starting the mast cell stabilizer he has been tolerating feeds better and has put on some good weight. She mentioned a couple tricks that we could try using food coloring to see if when in fact, I am suctioning him if I’m if he’s refluxing gastric secretions rather than oral secretions. I will try that when we get home. Otherwise she thinks it’s more of a mast cell or absorption problem.

We then saw dermatology who took a good look at him. She was concerned with the color of his legs. She thought it could be a circulatory issue or affiliated with mast cell. We are scheduled for a 24 hour blood pressure test tomorrow as well as an EEG. She also mentioned talking to allergy when we see them on Wednesday about starting singular which can also help with mast cell activation syndrome if he in fact has that. Tomorrow we are getting a lot of tests done. Looking forward to seeing allergy and nephrology on Wednesday. I will keep you posted when we have more answers.

Thank you again for all of the love and support! 🦸‍♂️💪🏻

04/19/2026

We made it to Mayo! Let’s pray for some answers and some relief for this beautiful boy!!

04/06/2026

Hope you all had a beautiful Easter!! ✝️🐰🐣🐰✝️

04/01/2026

A day that I have been looking forward to has finally arrived. Cam is admitted for his PH impedance study. It is a 23 hour study. This will show his pH levels of reflux that is that I’m assuming is happening. They insert a tube down his nose through his esophagus with a little camera on the end. I have to press different buttons and write down symptoms as I see them. Can’t wait to get the results of this study and get Cam feeling even better. His feeding is still a big problem for him. One step closer…. ❤️🙏🏻

03/20/2026

I just wanna give a huge thank you to everyone that has supported us the last four years. It has truly meant the world to us!Cameron has finally stabilized after the last 3 1/2 years of fighting with every doctor about what was wrong with him. (I knew it just wasn’t his brain injury). Mainstream medicine couldn’t figure it out. They referred us to mayo almost a year ago. In the mean time I ended up establishing care with a functional Doctor out of Oregon (via zooms) Who helped figure out what Cam has been dealing with all these years. He said Cam had mast cell activation syndrome ( which is very hard to diagnose). He put him on a mast Cell stabilizer medication that has helped him tremendously. Unfortunately that medication and a lot of the medications that Cam is on are not covered by insurance so all of your contributions throughout the years have helped tremendously. We have finally been approved for the Mayo Clinic next month in Rochester Minnesota. That will be a week long medical trip that is all out patient. He will see 5 different specialist while we are there. Hopefully they can help even more with Cams situation. I have high hopes! This is all possible because of you all! So I just wanted to thank you from the bottom of my heart!

Here’s some pics of cam throughout the years that nobody could figure out. I’m glad we are finally in a better place!

03/05/2026

Congratulations to all the winners & everyone who participated!!!
The winners will start being paid today & continue throughout the week.
Thank you everyone for your support 💙❤️

POOL IS FULL!!! Thank you to all who participated!!! Numbers will be posted when all squares are paid!!!
Venmo: Erin-McGuire-50
Zelle: 7738600108
ALL PAYMENTS DUE BY TUESDAY, MARCH 17.

Super Cam March Madness Pool
$100 per square
Payouts for all 63 games!! Play in games not included. As always, thank you for your support.
Venmo: Erin-McGuire-50
Zelle: 7738600108

03/02/2026

Cameron is scheduled tonight for his overnight sleep study. We will keep you posted on results after we get them. The last few weeks have been great! He had a pulmonology appointment that went well. No updates there and we followed up with neurology. That was also great! We had to up his medication due to his weight gain, which is also a positive thing! We see G.I. tomorrow after his sleep study. Hopefully she can help us support him more with some of the reflux he’s been having otherwise G.I. has been mostly controlled. He has been busy hanging and having fun with his brothers and thank goodness we had no sicknesses over this long winter. Thanks again for all your love and support. We also snuck in a day trip to a waterpark which was so much fun and much needed!

Address

Bensenville, IL
60106

Telephone

+17734061852

Website

http://www.supercamstrong.org/

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