05/13/2021
Please support Team Gabriel for ASF21! As we are a virtual walk again this year you can walk at anytime for us and as little or as much as you would like.
As you know, Angelman syndrome has had a daily effect on our lives for some time. While each day has gotten a little easier, we still wish more than anything that Gabriel—despite his amazing attitude and smile—could do everything his friends can.
As many of you already know, our son Gabriel was diagnosed with Angelman’s February 2020. He has seen countless doctors and therapists and continues to endure a staggering number of medical visits. We are fortunate enough that Gabriel is not on a lot of medications at this time but we are pushing for a CURE.
Gabriel has had a global delay since a very young age. After countless visits with doctors and therapists that we still see on a regular basis we saw a Genetic doctor that ordered a MRI and blood draw that gave us his diagnosis of Angelman’s. It has been a long journey to get where we are today with him. He just had his 3rd birthday this past July. Gabriel is a very happy boy that is always full of energy. We celebrate each milestone no matter how big or how small. He is walking mostly now on his own. Speech is still our biggest obstacle to conquer but we are determined to succeed.
Angelman’s syndrome is a neurological genetic disorder that may be misunderstood and is often misdiagnosed. My family is committed to improving the lives of individuals and other families affected by Angelman’s by ensuring that funding for research, clinics, and family services is available.
And we are only one of the thousands of families who feel the same.
Thankfully, more and more treatments are being discovered and improving Gabriel’s quality of life. That means more sleep, less seizures and better balance!
But that momentum will quickly vanish if we quit raising funds for Gabriel and others. Please donate to help us reach our goal of $1,000 for the Angelman Syndrome Foundation Walk! Your contribution will help make more groundbreaking Angelman syndrome research and daily family support services possible.
Keep the positive energy alive and help our cause by clicking here: VT, Bennington:
Join me and other heroes in making a difference for Angelman syndrome!
