Smiles for Miles Foundation

Smiles for Miles Foundation Smiles for Miles Foundation 501c3 dedicated time raising awareness of RARE Pediatric Genetic Diseases. Helping families affected by such.

Networking to bring families together to support and guide each other... RAISING AWARENESS OF RARE PEDIATRIC GENETIC DISEASES. HELPING FAMILIES BATTLING SUCH DISEASES
WORKING WITH VARIOUS ORGANIZATIONS TO SERVICE FAMILIES AND EDUCATE THE COMMUNITY...
Also raising awareness of Cortical Visual Impairment also known as Cortical Blindness which is a Neurological condition, that affects the patients ability to process sight.

Sharing a really cool experience!!!So I received a message via facebook messenger:A business that I had dropped off a Do...
01/20/2024

Sharing a really cool experience!!!

So I received a message via facebook messenger:

A business that I had dropped off a Donation Canister for Smiles for Miles some years ago reached out to let me know THEY STILL HAD ONE OF OUR DONATION CONTAINERS 😳😳😳

I feel so bad, however it was a container I had missed on collecting at the end of a donation drive…

Now this was PROBABLY 5 years ago!!!

A TREMENDOUS APPRECIATION
TO THOMPSON PHARMACY
HOLLIDAYSBURG, PA

FOR CONTACTING ME

THERE WAS $62. In donations inside the canister…

It is now deposited in
Smiles for Miles Foundation
Account
For our next important project!!!

ALL FOR LOVE ❤️ 💙🧬

I AM SO EXCITED TO REPORT Smiles for Miles Foundation Ordered a NEW Inclusive SWING for Myers Elementary TODAYI WOULD LI...
01/12/2024

I AM SO EXCITED TO REPORT
Smiles for Miles Foundation
Ordered a NEW
Inclusive SWING
for Myers Elementary
TODAY

I WOULD LIKE TO EXPRESS A
TREMENDOUS THANK YOU
to teacher David Plummer
For entrusting us with this mission

I WOULD ALSO LIKE TO GIVE OUR SINCERE HEARTFELT
APPRECIATION TO:
Housers Sub Shop, Bellwood
Martin’s General Store, Bellwood
American Legion 424,
Women’s Auxiliary , Bellwood
ALSO TO THE MANY
INDIVIDUALS
That made donations
*Always remember every
Quarter, Dime, Nickel & Penny
Count

*ALL FOR LOVE
If there is anyway Smiles for Miles Foundation can ever help you or you organization
email: [email protected]

HONORINGNONKETOTIC HYPERGLYCINEMIA NKHDAY. (May 2nd)Every Day isNKH DAY to all the Families and loved ones Affected by t...
05/01/2023

HONORING
NONKETOTIC HYPERGLYCINEMIA
NKH
DAY. (May 2nd)

Every Day is
NKH DAY to all the
Families and loved ones
Affected by this
currently incurable
And devastating
Neurological disease

Please life up in
PRAYERS
🙏🙏🙏🙏🙏

PLEASE PLAN ON ATTENDING!This is an AMAZING event for the whole family!Please SHARE
04/21/2023

PLEASE PLAN ON ATTENDING!
This is an AMAZING event for the whole family!
Please SHARE

This was such an amazing event…We had approximately 150 health care professionals from the region attend. Sharing the em...
03/19/2023

This was such an amazing event…
We had approximately 150 health care professionals from the region attend.
Sharing the eminence privilege it is to work with special needs families…

It was such an honor as the Founder of Smiles for Miles Foundation to host…
I am in awe of the very dedicated professionals that we have in our area…

I will forever be grateful!!!

Stopped to visit Resevior Park today and the Smiles for Miles Foundation Wheelchair Swing…It is so moving to reflect bac...
03/04/2023

Stopped to visit Resevior Park today and the Smiles for Miles Foundation Wheelchair Swing…
It is so moving to reflect back on all that the Lord has done for all the very amazing children 🐝

Prayers for More to Come

Blessings to all that helped MAKE THIS HAPPEN 😃

02/18/2023
01/05/2023

HAPPY NEW YEAR 2023 !!!

It is so hard to believe how FAST time passes!

Sending out Love & Prayers to all our dear families affected by
Rare Pediatric Genetic Diseases

Sending sincere appreciation to all our family and friends that share in our journey to HELP OTHERS!

2023 we will continue our mission of raising awareness and doing all we can to help others!!!

LOVE & PEACE
ALWAYS BELIEVE IN
MIracLES 🙏💙❤️

Sorry it has been so long.I have been pulling back from a lot of activities.This does not mean for a second That RAISING...
11/17/2022

Sorry it has been so long.
I have been pulling back
from a lot of activities.

This does not mean for a second
That
RAISING AWARENESS OF NKH is any less of a priority!!!

I spend time in prayer everyday for all the children and their families affected by NKH and other such Rare Pediatric Genetic diseases…

Sending hugs and prayers 🙏

I was reading a very informative case study of a young child affected by NKH.

Sharing for information purposes only:

Nonketotic hyperglycinemia (NKH) is an autosomal recessive disorder caused by a defect in glycine cleavage enzyme. It leads to the accumulation of glycine in the body tissues, blood, and cerebrospinal fluid (CSF). Most NKH cases are diagnosed ...

Address

506 N 4th Street
Bellwood, PA
16617

Alerts

Be the first to know and let us send you an email when Smiles for Miles Foundation posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Smiles for Miles Foundation:

Share

Our Story

Raising Awareness of RARE Pediatric Genetic Diseases such as Nonketotic Hyperglycinemia NKH. Our grandson Miles was born on October 31, 2012, with in a few days Miles was fighting for his life. There are currently approximately 500 living cases of NKH world wide.

Around 350 million people on earth are living with rare disorders - this is a disorder or condition with fewer than 200,000 people diagnosed. About 80 percent of these RARE Disorders are GENETIC in origin, and 95% of them do NOT have even one treatment approved by the FDA. National Human Genome Research Institute

It is the CORE Mission of Smiles for Miles Foundation to help others affected by RARE Pediatric Genetic Diseases. We desire to provide a network for families to communicate with others, regarding health care issues, locations of medical providers. Provide a compassionate heart to all those that want someone to talk with.

“At these times the GREATEST Gift you can give another is your time!”