The Natalie Razore Rockstar Fund

The Natalie Razore Rockstar Fund When Natalie was two weeks old, her parents took her to the pediatrician with what they thought was the common cold. That’s when they learned otherwise.

Natalie Razore’s Story
Michelle and Joe Razore, of Clyde Hill, Wash., a suburb of Seattle, welcomed their healthy baby girl, Natalie, into the world on September 24, 2010. To the Razore’s surprise, they were advised by the pediatrician to take their baby girl to Seattle Children’s Hospital, where little Natalie was admitted upon arrival. Soon after, Natalie began having uncontrollable coughing fit

s, turned blue and stopped breathing. Tests confirmed a pertussis diagnosis by the next morning. The following two weeks, Natalie was placed on high flow oxygen, a feeding tube and received numerous breathing treatments. As her condition deteriorated, even the more complex medical procedures such as blood transfusions and ventilator procedures were not enough to maintain adequate oxygen levels in her body and effectively support her vital organs. Her small frame began to swell from fluid retention, and she became unrecognizable to her parents. In an effort to save her life, the medical team put Natalie on ECMO (extracorporeal membrane oxygenation) – a lung and heart bypass machine – as well as dialysis after her kidneys shut down. But, her time on ECMO was not without complications. She developed a blockage in her left leg that prevented blood flow and nearly led to amputation, and, following ECMO, it was discovered that she had multiple fractures throughout her entire body. She also developed an infection in her blood stream that had to be treated with six weeks of intravenous antibiotics. Her chances of survival were poor, but Natalie’s parents and extended family did not lose hope. Finally, after 72 days in the hospital, including 49 in the Intensive Care Unit, Natalie stabilized and was discharged on Christmas Eve thanks to a vigilant medical team and unwavering support from thousands of friends, family and strangers touched by her story. It wasn’t until after she was taken off of the ECMO her parents learned that she was the first infant with pertussis to survive ECMO at Seattle Children’s Hospital. While “Miracle Natalie” continues regular physical therapy sessions, her parents and family say that looking at the vibrant little girl today – one would never guess the incredible journey that she has experienced and survived. The Razore family realizes how fortunate they are. Though it is still unclear how Natalie caught pertussis, the family is dedicated to spreading the word about this potentially fatal disease and raising awareness that by receiving a Tdap (tetanus, diphtheria and acellular pertussis) booster vaccine, adults can help protect themselves and reduce the risk of spreading the disease to babies.

Battle for Nattles.  Natalie was recently diagnosed with Hodgkins Lymphoma. This Rockstar is ready to battle again. Plea...
09/10/2024

Battle for Nattles. Natalie was recently diagnosed with Hodgkins Lymphoma. This Rockstar is ready to battle again. Please feel free to follow along on her journey. The more prayers the better!❤️🙏

Help ensure no one goes through a health journey alone.

https://seattlechildrens.thankview.com/video/5cd2650db2ae9afc7?fbclid=IwAR1pVRJC-M2E9NnDV2o3VrHkZUoNmZXSMlr7RerTjIxzOR1j...
09/22/2023

https://seattlechildrens.thankview.com/video/5cd2650db2ae9afc7?fbclid=IwAR1pVRJC-M2E9NnDV2o3VrHkZUoNmZXSMlr7RerTjIxzOR1jhu2qO4_cX7s

Twelve years ago, Joe and I created the Natalie Razore Rockstar fund to show our gratitude to Seattle Children’s hospital and to help continue save lives with the ECMO program. Little did we know what an impact the NRRF fund would have and how many lives would be saved for treating other respiratory illnesses, such as Covid.
It’s hard to believe it’s been 13 years since Natalie was fighting for her life. In honor of her birthday, we hope you will consider helping us continue our mission in saving lives. Any amount is greatly appreciated. We are so grateful for all of the love and support we have received from our family and friends over the years.

When Natalie was in the hospital we had never heard of ECMO. This is what saved Natalie's life and why we chose to have ...
05/19/2020

When Natalie was in the hospital we had never heard of ECMO. This is what saved Natalie's life and why we chose to have the NRRF specifically support the ECMO team at Seattle Children's. It is amazing to see that it is now saving many lives of Covid victims.

Until there is a cure or vaccine, hospitals could continue to struggle to treat the most critical COVID-19 patients, but doctors at Harborview Medical Center are turning to a machine for to help revive patients suffering from severe lung damage. The machine, known as extracorporeal membrane oxygenat...

This brings back a lot of memories.  This was only the beginning of our hospital stay....things got unimaginably worse.
08/24/2016

This brings back a lot of memories. This was only the beginning of our hospital stay....things got unimaginably worse.

A mom posted a terrifying whooping cough video of her baby struggling to breathe that's a crucial reminder of the importance of herd immunity.

http://onforb.es/1zRvEocNatalie's picture in Forbes
04/08/2015

http://onforb.es/1zRvEoc
Natalie's picture in Forbes

California's battling the worst epidemic in 70 years. Public health officials are warning of unprecedented outbreaks in other states, and stressing the need for vaccination. Am I describing the measles outbreak? No — whooping cough. Whooping cough, known clinically as pertussis, is a highly contagio…

01/29/2015

A Bay Area mother and father who spend every minute of the day by their infant daughter's bedside as she struggles with whooping cough were sharing their story in the hopes that it saves another fa...

Here is a picture of Natalie with Whooping Cough.  It is still out there...please continue to spread the word.
07/23/2014

Here is a picture of Natalie with Whooping Cough. It is still out there...please continue to spread the word.

Some California counties are showing substantially higher rates of whooping cough than the state average. And health officials say the epidemic this year could be one of the worst in fifty years.

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