Cure Mucolipidosis

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United States
Belleville, IL
Cure Mucolipidosis

Cure Mucolipidosis has a single focus - to find a cure for this rare and debilitating disease!

06/07/2026

If you're wondering how you can help us find a cure for our kids - Please consider donating to Cure ML as we continue our efforts towards gene therapy research 🧬

Donations can be made through our social media platforms where available (depending on country) and via our website: www.curemucolipidosis.org

Every cent counts, just as every second counts for these children ✨️

Thank you for your generosity and support 🫶🏽

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05/24/2026

The world is less bright without you now Sarah..but your light will continue to shine on through our hearts ✨️ We love and miss you so much 🤍🕊

05/23/2026

Another sweet angel gone too soon 🕊😔 Our thoughts and hearts go out to her family 🤍

05/21/2026

Every second matters for children living with Mucolipidosis. ⏰💛

Families have already done the impossible — funding TWO years of gene therapy development and helping move this research closer to reality.

Now we face the next critical step.

We need to raise $500,000 to commence Year 3 and help move gene therapy from the lab toward clinical trials.

Children with ML don’t have the luxury of time.
Their bodies are changing every day.
Their future depends on what we do now.
Will you leap with us and help stop the clock? 💛

Donate, fundraise, share our mission — every action brings hope closer.

05/11/2026

🧬 $90,000 RAISED.
💚 $500,000 GOAL.
📈 Year 3 of Gene Therapy is within reach.
Every dollar moves this thermometer higher — and brings families affected by Mucolipidosis closer to hope, treatment, and a future that looks different.

05/02/2026

Right now, Year 2 gene therapy research is well underway.
Every day matters. Every result matters.

But families are already looking ahead…
because Year 3 is where hope grows stronger.

We can’t get there without you.

✨ Help us take the next leap. Donate today!

04/28/2026

If you’ve ever wondered how to make a real difference… this is it.

Start your own fundraiser.
Bring people together.
Be part of something that is moving us closer to real treatment.

Families have already taken the first leap — now we need others to step forward.

👉 Go to www.curemucolipidosis.org
and click Fundraise to get started.

✨ Will you take a leap for ML?

04/24/2026

Children with Mucolipidosis don’t have time on their side.
Every day matters. Every step forward matters.

That’s why we’re asking you to Take a Leap for ML.

A leap of hope.
A leap of action.
A leap toward gene therapy.

We’re on a mission to raise $500,000 to move life-changing treatment closer to clinical trials.

✨ 5,000 people.
✨ $100 each.
✨ One powerful movement.

Because one small leap could mean a lifetime for a child with ML.

Will you take the leap with us?

04/21/2026

From one person's run a global movement can grow - will you join Valentinas?. Are you ready to take the leap and start your fundraiser today?

04/14/2026

We’re excited to officially launch our new research website in partnership with UMass Chan Medical School. This platform has been built for our families, supporters, and wider community—to bring you closer than ever to our progress of gene therapy for Mucolipidosis.

To access the full website, users are required to create a secure login and personal profile. This ensures that all information shared on the platform remains protected and accessible only to our registered community. https://curemlresearch.org/

Once you are registered from there, you can:
• Speak directly with our researchers
• Ask questions that matter to your family
• Follow live updates as our gene therapy advances
• Join conversations within in our Forum

Website link: https://curemlresearch.org/

Address

402 Park Avenue
Belleville, IL
62220

Website

http://www.curemucolipidosis.org/

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