PSP & CBD Foundation

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United States
Bedford, VA
PSP & CBD Foundation

We are a 501(c)(3) non-profit that provides funding for research and support for those with PSP&C*D.

09/04/2026

💜 Individualized care matters! Living with PSP and C*D is not a journey you should face alone. A multidisciplinary care team can help with personalized therapies, assistive equipment, symptom-management strategies, and guidance on options. 🤝✨

*D 💜

💙 Supplies May Be Available 💙📧 Contact us at: info@pspcbdfoundation.org🦷 Oral & Dental CareItems we may provide include,...

09/03/2026

💙 Supplies May Be Available 💙

📧 Contact us at: [email protected]

🦷 Oral & Dental Care
Items we may provide include, but are not limited to:

Toothbrushes and toothpaste
Dental tips and resources
Mouthwash
No-rinse mouth cleaner
Staying clean and dry is important. We are here to help! 💙

🛏️ Personal Care & Bathroom Safety
Items we may provide include, but are not limited to:

Bed pads
Depends/incontinence supplies
Z-Guard paste
Cushion-raised toilet seats
Staying safe matters. We can help! 💙

🏠 Assistive Equipment & Communication
Items we may provide include, but are not limited to:

Bedside railings
Sound-room monitors
Low-tech alternative communication cards
Nosey Cups
SimplyThick gel thickener
Every person's needs are different, and availability may vary. If you need help obtaining supplies or equipment, please don't hesitate to contact us. We will do our best to support you and your loved ones.

💙 You are not alone. We are here to help.

📧 [email protected]

*DFoundation

09/01/2026

💙 Honor the Memory of Your Loved One 💙

At the PSP & C*D Foundation, we know how deeply meaningful it is to remember and honor those we have loved and lost.

If you would like us to honor your loved one on our social media pages — the PSP & C*D Foundation page and PSP & C*D Foundation Instagram Page — we would be honored to share their story and memory with our community.

Please email us:
📝 A brief summary about your loved one
📸 1–2 photos you would like us to share

📧 [email protected]

Thank you for allowing us to celebrate the life, love, and memories of those who will always remain in our hearts. 💙

*D *DAwareness *DFoundation

08/27/2026

💙 Other PSP Support & Charity Organizations

If you or someone you love is affected by Progressive Supranuclear Palsy (PSP), connecting with organizations dedicated to PSP can provide valuable information, resources, education, and support.

🌎 CurePSP
CurePSP is dedicated to increasing awareness, advancing research, and improving the lives of people affected by PSP and related neurodegenerative conditions.
🔗 https://www.psp.org/

🇬🇧 PSP Association (PSPA)
The PSP Association supports people affected by PSP and related conditions, while raising awareness and promoting research and understanding of these diseases.
🔗 https://www.pspassociation.org.uk/

Whether you're looking for support, educational resources, advocacy, or ways to get involved, these organizations can be helpful starting points for the PSP community.

💙 You are not alone.

08/26/2026

🧾 Social Security Information & Resources

For individuals and families navigating disability benefits, understanding available Social Security resources can be an important step.

🔗 Social Security Administration:
https://www.ssa.gov/

🔗 Compassionate Allowances — List of Diagnoses:
https://www.ssa.gov/compassionateallowances/

Please visit the Social Security Administration website for current eligibility requirements, application information, and official guidance.

08/24/2026

📚 Reading Resources for Everyone!

Through a nationwide network of cooperating libraries, NLS provides books and magazines in braille and audio formats delivered by postage-free mail or available for instant download. 🎧📖

Explore accessible reading resources and learn more: National Library Service (NLS): https://www.loc.gov/nls/

08/21/2026

💙 Communication Tips for Supporting Someone Living With PSP or C*D

Communication can become more challenging for people living with PSP or C*D. A few simple strategies can help make conversations easier, more comfortable, and more successful:

🗣️ Ask yes/no questions instead of open-ended questions.
🐢 Speak slowly and use short, clear phrases.
⏳ Give plenty of wait time for a response—don’t rush to fill the silence.
👀 Pay attention to eye tracking, body language, and gestures for additional clues.

People with PSP/C*D may experience dysarthria, aphasia, and/or apraxia of speech. Access to augmentative and alternative communication (AAC) can help support communication and improve quality of life.

Consider consulting a speech-language pathologist (SLP) who specializes in neurodegenerative diseases to explore AAC options. An SLP can help determine which communication methods and tools are best suited to an individual’s needs.

Some AAC companies and resources include:
• Tobii Dynavox
• Lingraphica
• CoughDrop
• Talk To Me Technologies / We Go

for links go to: https://pspcbdfoundation.org/psp/

✨ Communication is more than speech. Everyone deserves a way to express their needs, thoughts, and feelings.

Share this with a caregiver, communication partner, or family member who may find it helpful.

08/19/2026

📢 Have you or a loved one been diagnosed with Progressive Supranuclear Palsy (PSP)?

Pillar Patient Advocates is seeking 5 patients to participate in a 60-minute phone/web interview about their experiences with medical treatment choices and how they approach medication options.

💰 Participants will be paid $125 for their time and feedback.

📍 US residents only

Interested? Email [email protected] and include your phone number and preferred time zone. A Patient Liaison will reach out with a few screening questions.

Please share with someone in the PSP community who may be interested! 💙

08/14/2026

💙 ABOUT US | PSP & C*D FOUNDATION 💙

🎯 Our Mission:
To fund research and social programs that help improve the lives of those battling PSP and C*D, while supporting a community that deserves greater awareness, understanding, and hope.

Every contribution helps us continue working toward a better future for those affected by these rare neurological diseases. 🔬🧠💙

🙏 Your support matters. Contributions to our mission are tax-deductible as permitted by law.

📌 EIN: 83-0826982

Whether you donate, share our mission, or simply help spread awareness, you are helping make a difference. 💙

Together, we can support research, strengthen resources, and bring hope to the PSP & C*D community. 🤝✨

*D *DAwareness *DFoundation

08/12/2026

If you or someone you love is affected by Progressive Supranuclear Palsy (PSP) or Corticobasal Degeneration (C*D), don’t forget that the PSP & C*D Foundation website has a wealth of helpful resources, information, support, and educational materials. 📚💙

Whether you’re looking to learn more, find support, better understand PSP or C*D, or share information with family and friends, there are resources available to help you along the journey. 🤝

🔗 Explore the resources here:
https://pspcbdfoundation.org/honor/

💙 Knowledge can bring understanding.
🤝 Resources can bring support.
🌟 You don’t have to navigate this journey alone.

Please share this reminder with someone who may find these resources helpful! 💙

*D *DAwareness *DFoundation

Address

Falling Creek Road
Bedford, VA
24523

Telephone

(540) 425-0467

Website

http://www.pspcbdfoundation.org/

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