CF Roundtable

CF Roundtable It also offers a forum for CF adults to communicate with each other. Or check out the latest news involving the disease.

Subscribe to our CF Roundtable at https://www.cfroundtable.com/magazine

http://www.cfroundtable.com/

Join our "CF Connect" Facebook group: https://www.facebook.com/groups/cfconnect/

Read our blogs: http://www.cfroundtable.com/blog-2/ The purpose of USACFA is to provide a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the latest treatme

nts and research to fight it. You can read excerpts from previous issues of the newsletter, covering such diverse topics as dating, organ transplants, and working and living with CF. Our many columnists provide insights on a wide variety of subjects related to CF. Our readers deserve the best possible publication, and we’re working hard to provide that. A Focus topic for each issue is selected to appeal to a broad base of people with CF, and we’re always interested in new ideas or topics. Send your suggestions, or write an article on the subject of your choice, to [email protected]. If it interests you, we want to hear about it.

We have exciting news... stay tuned...
05/25/2026

We have exciting news... stay tuned...

▪️Roseann Greco has been on quite a rollercoaster with her CF and made quite the comeback! Don't miss Andrea Eisnman's i...
04/15/2026

▪️Roseann Greco has been on quite a rollercoaster with her CF and made quite the comeback! Don't miss Andrea Eisnman's interview with her to get the scoop on Roseann's journey with cystic fibrosis that many can probably relate to. She went from waiting for a lung transplant to reclaiming her life with the breakthrough drug Trikafta.

▪️ After years of severe illness, failed transplant calls, and multiple health crises—including cancer and a brain injury, she has come out on the other side healthy and full of joy and gratitude! She now enjoys traveling, exercising, and living more freely. Her story is a powerful reminder of resilience, self-advocacy, and the life-changing impact of modern medicine!

▪️Starting on page 34, you can read Part 1 of Andrea's interview with Roseann. Be on the lookout for Part 2, which will be printed in our Summer/Autumn 2026 issue!

▪️ Visit cfroundtable.com to subscribe to our free magazine and get access to this issue and more!

03/25/2026

The Patrick Nash Fellows Training Program is NOW Accepting Applications from Fellows Interested in Advancing Multidisciplinary Adult CF Care!

Named in memory of Patrick Nash, this program seeks to advance and improve knowledge and optimal multidisciplinary care of adults with CF.

A faculty of top CF researchers and clinicians will advance fellows’ knowledge and provide mentorship. The program focuses on the multi-organ impacts of CF and will inform and connect the next generation of CF care providers and thought leaders.

Accepted applicants’ costs will be covered to attend a weekend symposium in Dallas November 12-14th. Deadline for the first round of applications is June 8, 2026.

👉🏽 More Info/Apply: https://www.cfri.org/research/funding-opportunities/

03/25/2026

💥 Big news from Emily’s Entourage!

To accelerate the next era of breakthroughs for , we’re thrilled to announce the appointment of our first-ever Chief Medical Officer, David A. Waltz, MD.

A leading physician-scientist and former Head of CF Clinical Development at Vertex Pharmaceuticals Inc., Dr. Waltz brings three decades of experience spanning academic medicine, translational science, and clinical research in the biotech and pharmaceutical industries—including the advancement of transformative CFTR modulators that revolutionized treatment for roughly 90% of people with .

At EE, Dr. Waltz will work closely with EE’s CSO, Chandra Ghose, PhD, to help bridge the gap between discovery and real-world therapies by shaping our clinical development strategies—ensuring that promising discoveries move efficiently from the laboratory toward clinical trials and ultimately to the final 10% of people with CF.

Welcome to the Entourage, Dr. Waltz. 💜

🔗 Learn more: https://www.emilysentourage.org/emilys-entourage-appoints-david-a-waltz-md-as-first-chief-medical-officer/

‼ Did you know that anyone with CF is at a significantly higher risk for colon cancer?The only known preventative screen...
03/25/2026

‼ Did you know that anyone with CF is at a significantly higher risk for colon cancer?

The only known preventative screening is a colonoscopy, and preparation looks a little different with CF. Always talk to your care team if something doesn't feel right.

🔗Read the full article at https://www.cff.org/managing-cf/colon-cancer. Link in bio.

❓If you're over 40 OR have had a transplant, have you gotten a colonoscopy? What was helpful during prep for your colonoscopy? Let us know in the comments below!

One of the great things about CF Roundtable is that it's specifically written by adults with CF for people with CF. That...
03/18/2026

One of the great things about CF Roundtable is that it's specifically written by adults with CF for people with CF. That means we rely on YOU, as someone with CF, to share your perspective on our focus topics. Our next magazine will be published Fall 2026, and we want to hear about your experience.

➡Our focus topics are "CF and Sleep" and "CF and Medicaid" and all articles are due April 15. Think about how these topics affect your everyday life because that's what we want to hear - your unique experience and insights on one (or both) of these topics.

➡In addition, humorous stories, articles on basic life experiences, short stories, artwork, cartoons, and poetry are welcome. We require that all submissions be original and unpublished. We cannot wait to read your submissions! Articles should be submitted to [email protected] by April 15, 2026. In the meantime, please let us know if you have any questions and how we can help.

Thank you for making this magazine unique and personal to the CF community!

In case you missed BreatheCon 2026, don't worry - recordings are now available!🔹BreatheCon 2026 highlights:- Life with C...
03/04/2026

In case you missed BreatheCon 2026, don't worry - recordings are now available!

🔹BreatheCon 2026 highlights:

- Life with CFRD: Ask Me Anything Panel
- Discussions on Non-Pulmonary Challenges
- Communicating and Coordinating your CF Care Panel
- Parenting with CF
- Navigating a New CF Diagnosis
- Advocacy 101 Panel

🔹Recordings are now available at https://app.events.ringcentral.com/events/breathecon-2026/replay or the link in our bio.

▪️You seriously cannot resist this Butternut Squash and Spicy Italian Sausage Bolognese recipe! In this edition of Culin...
02/27/2026

▪️You seriously cannot resist this Butternut Squash and Spicy Italian Sausage Bolognese recipe! In this edition of Culinary Corner, Maggie Williamson shares her recipe with us.

▪️ This hearty meal is perfect for any day, but especially during the cold winter months - check it out on page 31 of the latest edition of our magazine!

▪️ Visit cfroundtable.com to subscribe to our free magazine to get this recipe along with many other articles on life with cystic fibrosis. We're the only magazine written by people with CF for people with CF and it's free!

▪️Being screened for cystic fibrosis as a newborn is the norm these days; however, this wasn't always the case and that ...
02/20/2026

▪️Being screened for cystic fibrosis as a newborn is the norm these days; however, this wasn't always the case and that led to many people with CF not being diagnosed until later in life.

▪️ Norma Jean Lindsey was not diagnosed until 53 years old and she is now thriving at the young age of 8! She shares her story and her hopes in our latest publication starting on page 24.

▪️ Visit cfroundtable.com to subscribe to our free magazine!

▪️ What age were you diagnosed? What is the biggest breakthrough you've seen in the medical world when it comes to CF? [Does this sound weird? Should I reword?]

➡ Mark your calendars for February 20 and 21! The Cystic Fibrosis Foundation is hosting its 10th annual FREE online even...
02/18/2026

➡ Mark your calendars for February 20 and 21! The Cystic Fibrosis Foundation is hosting its 10th annual FREE online event for adults with CF to gather virtually, find support, and build connections!

➡ Registering is quick and easy - link is in our bio. Be sure to sign up soon so you can receive a special gift related to the event!

🔗 Register today at: https://events.ringcentral.com/events/breathecon-2026/registration

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