TTTS Official Awareness Store - The TTTS Foundation

01/09/2025

Last Chance! Buy today!

06/18/2023

💙 Happy Father’s Day 💙

Today, we honor you and are thinking of you today and always.

A Father of Daisy Babies is the strongest dad out there — he has been through the unimaginable experience of TTTS, including TAPS, SIUGR or TRAP, which sometimes includes tragic loss of life — yet he is still persevering, dedicated to his family. He is kind, loves his children forever, and is a strong, fierce, dependable, courageous, determined protector.

💙We hope you have a very special day, with love from The TTTS Foundation.💙

12/24/2022

Fact #24 -You MUST have weekly ultrasounds with an MFM even when everything is perfect with your monochorionic twins.
TTTS Foundation’s International TTTS Awareness Month

by Rachel from Hawaii, USA
For Melia and Mailani
(Please Share off our Page The Twin to Twin Transfusion Syndrome Foundation TTTS, TAPS, SIUGR, TRAP)

Rachel shares her experience with Stage 4 TTTS and the devastating loss of her twin daughter Mailani. Rachel never wants another mother to suffer as she has. She found The TTTS Foundation after she had laser surgery. She did not know that she should insist to have ultrasounds frequently and did not know that the rapid increase in size was of concern. She went from week 12-18 without ultrasounds.

After she was diagnosed, the doctor waited 5 days to get her to a specialist and then the specialist told her she had 2 weeks before things got ‘bad’.
Rachel says, “If I knew how serious TTTS is, I would have been on the next flight to LA. Losing one of my babies has been devastating and is a sadness I’ll carry with me forever. I don’t know if things could have been different, but I wish I could have had all the knowledge then that I have now.”

“TTTS is diagnosed by ultrasound. If you have an ultrasound every 2 weeks, you are increasing your risk of being diagnosed at a later stage with more dire outcomes, as well as possibly missing an opportunity for laser surgery. Weekly ultrasounds are crucial to diagnosing TTTS at the earliest possible chance. Do not go longer than 7 days for an ultrasound even if your pregnancy is perfect and the ultrasounds should start at 14 weeks.

If you are diagnosed, do not go longer than 3 days. Depending on the situation, you may need to go every day, be admitted or directly for laser surgery on the placenta.”

Every year thousands of babies are threatened by TTTS, including TAPS, SIUGR and TRAP. Visit us online at www.tttsfoundation.org to learn more about how you can support the mission of The TTTS Foundation and make a donation.

12/07/2022

Share your stories below and on your personal pages using . It is crucial in helping the next parents to know what happened to you. When were you diagnosed? What was your treatment? What do you wish you knew then that you know now? What advice would you give a newly diagnosed mother? We want to hear your babies' names 💙💙

12/07/2022

12/03/2022

Dr. Julian E. De Lia

Son, Father, Husband, Brother, Uncle, Historic Legacy of Pioneer of Laser Surgery on the Placenta, Scientist, OB/GYN, Beloved by Families all around the World, My Hero, My Best Friend.

https://obits.nj.com/.../name/julian-de-lia-obituary...

10/03/2022

We want to recognize that today is the 34th Anniversary of the first laser surgery on the placenta for TTTS, pioneered by Dr. Julian E. De Lia on October 3rd, 1988.

No matter who you had laser surgery with, you never would have had it if Dr. De Lia had not cared enough about saving our babies and inventing the procedure.

Nobody cared about fighting TTTS until Dr. De Lia came along. He saw the devastation TTTS brought families and felt that he could make a difference in this cause. He studied the placenta, lasered the placenta of monkeys who always gave birth to identical monkeys, and then the first surgery was 34 years ago today.

His surgery is now performed all over the world and is used to also fight twin anemia polycythemia sequence (TAPS) and selective intrauterine growth restriction (SIUGR) – both forms of TTTS.

He is not only the pioneer, he is a hero and we are so proud to have him working hard with us on The TTTS Foundation’s Board of Directors. Sending our love and gratitude to Dr. De Lia and sending our love and support to everyone affected by this terrible disease.

Follow our page The Twin to Twin Transfusion Syndrome Foundation TTTS, TAPS, SIUGR, TRAP and learn more at tttsfoundation.org. Join our fight to save the lives of babies all around the world and honor all the babies who have suffered.

07/12/2022

https://www.customink.com/fundraising/fathersofdaisybabies2022

Orders can be made internationally and will benefit the Compassionate Deliveries Program of The TTTS Foundation and our bereavement packets to families who have experienced a loss of one or all of their babies. ** For Daisy Dad Shirts please go to https://www.customink.com/fundraising/daisydads2022....