Hope for Hemophilia

Hope for Hemophilia Why HOPE? Because bleeding disorders can be painful, lonely, financially difficult, and sometimes scary.

Hope Charities specializes in helping individuals and families through a season of a crisis caused by chronic illness and bleeding disorders. Because living with a bleeding disorder or rare disease can be painful, lonely, financially difficult, and sometimes scary. Hope for Hemophilia specializes in helping individuals and families through a season of crisis caused by a chronic illness.

05/29/2026

As Mental Health Awareness Month comes to a close, we’re highlighting a conversation that reminds us why these discussions matter.

In our newest Hope Unmuted episode, Jonathan James sits down with Debbie De La Riva to explore the emotional realities of living with a bleeding disorder, including trauma, anxiety, caregiver burnout, and the pressure to always appear strong.

Mental health matters too. Listen now https://youtu.be/8YB7T24jlnk?si=ZQwfIo6qRecjDtFZ 🎙️


A Word From Our Sponsor:Learn how Sanofi is reshaping the future of hemophilia treatment: https://bit.ly/42BMOrT
05/29/2026

A Word From Our Sponsor:
Learn how Sanofi is reshaping the future of hemophilia treatment: https://bit.ly/42BMOrT

Changing the Narrative for Women 💜Join us July 28–29 for a two-day virtual event created to support, educate, and empowe...
05/28/2026

Changing the Narrative for Women 💜

Join us July 28–29 for a two-day virtual event created to support, educate, and empower women in the bleeding disorders community.

Hear from experts, connect with others, and gain tools to better understand and advocate for your health. This event is also for fathers, husbands, caregivers, and advocates because stronger support and stronger advocacy start with awareness and understanding across our entire community.

Whether you are living with a bleeding disorder or supporting someone who is, these conversations matter.

Registration is now open.
https://www.hopeforhemophilia.org/womens-health-conference.html

Every conversation matters. Every patient story matters.At Hope Charities, we are committed to advocating for the bleedi...
05/22/2026

Every conversation matters. Every patient story matters.

At Hope Charities, we are committed to advocating for the bleeding disorders community and helping ensure patient voices are heard where important decisions are being made. From access to care to patient choice and affordability, these conversations have real impact on real lives.

This June, we’re heading back to Washington, DC for Hope on the Hill 2026 to continue advocating alongside patients, caregivers, and community members from across the country.

Stay tuned as we prepare for a powerful few days of advocacy on Capitol Hill. 💙

A Word From Our Sponsor:Hemophilia community: share insights 🗣️ and let your voice be heard!Rarity Health is recruiting ...
05/18/2026

A Word From Our Sponsor:

Hemophilia community: share insights 🗣️ and let your voice be heard!

Rarity Health is recruiting participants for a 45-minute paid virtual interview to gather feedback on some messages in development. Your insights will help inform how information is shared with patients and families.

Who we’re looking for:
🙋 Adults (18+) with hemophilia A or B (with or without inhibitors), living in the US
🧑‍🧒 Caregivers of children ages 6–18 with hemophilia A or B (with or without inhibitors), living in the US
What to expect:
📧 A quick email response + brief phone call to confirm eligibility
📲 If selected, a scheduled 1:1 virtual interview (45 minutes)

💰 If selected, compensation provided for your time

Interested?
Email [email protected] to get started. Spots are limited, and we’re hoping to fill them quickly, so don’t wait!


The study opportunity is intended solely for educational purposes on the part of Hope Charities.
This opportunity is strictly voluntary on your part and your participation in the study has no effect on your current or future eligibility for, or participation in, any program or service offered by Hope Charities, Inc.
Please note that the referenced study is fully managed, operated, and funded by a third-party and Hope Charities, Inc. has no control over, and bears no responsibility for, the administration, conduct, or protocols of the study. Hope Charities assumes no responsibility for any of the content and messaging of the study opportunity offered therein.
Publication of this opportunity or study should not be construed or interpreted as an endorsement of any product, service, viewpoint, opinion or medical practice presented or discussed in the study. Any opinion, message or service discussed or presented in the study is determined solely by the third-party sponsor and Hope Charities has no role or authority over the content presented therein.
Please be advised that participation is limited and if you satisfy the eligibility criteria, you will be contacted with additional information, at which time you may consent or decline participation.

A Word From Our Sponsor:Painful injections? Soreness? Bruising?   to your doctor about treatment administration challeng...
05/13/2026

A Word From Our Sponsor:

Painful injections? Soreness? Bruising? to your doctor about treatment administration challenges! Find out more at https://www.speakyourhemtruth.com/bleeds-still-happen.html

© 2026 Novo Nordisk All rights reserved. US26HRBD00025 February 2026

Read information on breakthrough bleeds, different ways to treat hemophilia A with or without inhibitors, and find talking points to help deepen your conversations with your doctor.

Hope Session May 14 at 4:30 PM CST! 🔔A Reading of the Stellar Guardians Graphic Novel: The Epic Adventure of a Young Her...
05/13/2026

Hope Session May 14 at 4:30 PM CST! 🔔

A Reading of the Stellar Guardians Graphic Novel: The Epic Adventure of a Young Hero with Hemophilia A

+ A digital scavenger hunt awaits! 🔍🎉

Register now! https://www.hopeforhemophilia.org/hope-sessions

We’d love to hear from you ⬇️What was your biggest takeaway or favorite moment from this year’s Prophy Conference?That’s...
05/07/2026

We’d love to hear from you ⬇️
What was your biggest takeaway or favorite moment from this year’s Prophy Conference?

That’s a wrap on Prophy Conference 2026 💙

Thank you to everyone who joined us these past two days to learn, connect, ask questions, and encourage one another. Whether you attended one session or every session, we’re so grateful you spent your time with us.

There’s something powerful about hearing from people who understand the journey and learning together as a community.

Thank you again to our speakers, sponsors, advocates, and attendees for making this event so meaningful.

Day 1 at Prophy 2026 is TODAY!! 🎉Here’s what’s coming 👀⏰ 9:00–10:00 AM CST
Consistency Is Everything
Kick things off wit...
05/05/2026

Day 1 at Prophy 2026 is TODAY!! 🎉

Here’s what’s coming 👀

⏰ 9:00–10:00 AM CST
Consistency Is Everything
Kick things off with Jonathan James

⏰ 10:15–11:15 AM CST
Breakout with Sanofi
An HPC presents: Real hemophilia A patient case studies
With Eric Burgeson, MPH and Erin Cockrell, DO

⏰ 11:30 AM–12:30 PM CST
Breakout with Takeda
Recognizing and Responding to Bleeds
With Alexandra Soto

⏰ 12:45–2:00 PM CST
Virtual Exhibit Hall
Explore, connect, and discover resources 🤝

⏰ 2:15–3:15 PM CST
Breakout with CSL Behring
Access to Care
With Kelly Bertolazzi and Jodi Dobson

⏰ 3:30–4:30 PM CST
Breakout with Sanofi
Fuel the Fire 
With Kevin Harris

⏰ 4:45 PM CST
Patient Discussion Panel
With Suzi Cannon

Real conversations you don’t want to miss
It’s not too late to join us 💻

Come hear stories, get real advice, and maybe find the next step in your journey

Register now and be part of it!

Address

Baton Rouge, LA
70879

Opening Hours

Monday 9am - 4pm
Tuesday 9am - 5:15pm
Wednesday 9am - 4pm
Thursday 9am - 4pm
Friday 9am - 4pm

Telephone

+18885298023

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