Hope for Hemophilia

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Hope for Hemophilia Why HOPE? Because bleeding disorders can be painful, lonely, financially difficult, and sometimes scary.

Hope Charities specializes in helping individuals and families through a season of a crisis caused by chronic illness and bleeding disorders. Because living with a bleeding disorder or rare disease can be painful, lonely, financially difficult, and sometimes scary. Hope for Hemophilia specializes in helping individuals and families through a season of crisis caused by a chronic illness.

You can still be part of HOPE Conference 2026!Join us online November 5-7 for awesome educational sessions, exciting giv...
10/12/2026

You can still be part of HOPE Conference 2026!

Join us online November 5-7 for awesome educational sessions, exciting giveaways, and opportunities to connect with the bleeding disorder community. There’s so much to look forward to, and you can experience it all from wherever you are!

Don’t miss out! Register today to join us virtually.

https://www.hopeforhemophilia.org/hope-conference.html

Hope Session today, 10/8 at 11 AM CST! 🔔“Meet UP with ALTUVIIIO Peers”Looking to connect with others in the hemophilia A...
10/08/2026

Hope Session today, 10/8 at 11 AM CST! 🔔

“Meet UP with ALTUVIIIO Peers”

Looking to connect with others in the hemophilia A community? Join a program led by a Sanofi Community Relations and Education (CoRe) Manager to learn about ALTUVIIIO—a Factor VIII replacement therapy. Following the presentation, you will have the opportunity to participate in a conversation with ALTUVIIIO Peers who share experiences and stories similar to yours

+ A digital scavenger hunt awaits! 🔍🎉

Register now! https://zfrmz.com/2SFwStbz3CqfQpFG4VDQ

10/05/2026

A look back at Hope Conference 2025 💙

Last year brought our community together for a weekend of connection, education and memories we’re still thinking about. Now, we’re gearing up for HOPE Conference 2026, and we are so excited to welcome everyone back for another year!

There’s still time to join us from wherever you are. Register to attend HOPE Conference online and be part of this year’s experience!

🔗 www.hopeforhemophilia.org/hope-conference

10/01/2026

A Word From Our Sponsor: And the crowd goes wild! (For HEMLIBRA.) Please see https://bit.ly/HEMLIBRAPI for Important Safety Information, including Serious Side Effects, as well as the HEMLIBRA full Prescribing Information and Medication Guide. Intended for US audiences only.

What is HEMLIBRA?
HEMLIBRA is a prescription medicine used for routine prophylaxis to prevent or reduce the frequency of bleeding episodes in adults and children, ages newborn and older, with hemophilia A with or without factor VIll inhibitors.

What is the most important information I should know about HEMLIBRA?
HEMLIBRA increases the potential for your blood to clot. People who use activated prothrombin complex concentrate (aPCC; Feiba®) to treat breakthrough bleeds while taking HEMLIBRA may be at risk of serious side effects related to blood clots.

These serious side effects include:
* Thrombotic microangiopathy (TMA), a condition involving blood clots and injury to small blood vessels that may cause harm to your kidneys, brain, and other organs
* Blood clots (thrombotic events), which may form in blood vessels in your arm, leg, lung, or head

Carefully follow your healthcare provider's instructions regarding when to use an on-demand bypassing agent or factor VIII, and the dose and schedule to use for breakthrough bleed treatment. If aPCC (Feiba" is needed, talk to your healthcare provider in case you feel you need more than 100 U/kg of aPCC (Feiba) total.

Your body may make antibodies against HEMLIBRA, which may stop HEMLIBRA from working properly. Contact your healthcare provider immediately if you notice that HEMLIBRA has stopped working for you (eg, increase in bleeds).

The most common side effects of HEMLIBRA include: injection site reactions (redness, tenderness, warmth, or itching at the site of injection), headache, and joint pain. These are not all of the possible side effects of HEMLIBRA. You can speak with your healthcare provider for more information.

Hope Session September 24 at 11 AM CST! 🔔“Speak Your Truth - Managing your hemophilia A may come with some trade-offs”Th...
09/23/2026

Hope Session September 24 at 11 AM CST! 🔔

“Speak Your Truth - Managing your hemophilia A may come with some trade-offs”

This presentation will discuss some of the challenges that you may face with your hemophilia A such as breakthrough bleeds and administration and dosing concerns. It will also discuss talking points to make the most out of the visits with your health care professional.

+ A digital scavenger hunt awaits! 🔍🎉

Register now! https://zfrmz.com/jNel4SxRxz9BOpoKGrnb

A Word From Our Sponsor: Paid Online Interview! Adolescents (12 – 17 years) and Adults (≥18 years) Living with von Wille...
09/22/2026

A Word From Our Sponsor: Paid Online Interview! Adolescents (12 – 17 years) and Adults (≥18 years) Living with von Willebrand Disease (VWD): Share your Experience

IQVIA, a healthcare research company, is seeking individuals, aged 12 years or older, living with VWD to participate in a 90-minute, web-based video conference interview.

During the interview, individuals will be asked to share their experiences with VWD, including signs, symptoms, and impacts of VWD and to provide feedback on a related questionnaire. Anyone who completes the interview will receive $200 USD in exchange for their time and participation, and an additional $50 USD for providing confirmation of their VWD diagnosis.

The study is strictly for research purposes; there will be absolutely no sales or promotional activities. There is no treatment associated with taking part in this study.

To see if you/your adolescent qualify for the study or to get more information, please visit: https://survey.cmix.com/3DAF0DC3/7E302C4Q/en-US
or email [email protected] and include this subject line in your email: VWD 2026 Interview Study.

The study opportunity is intended solely for educational purposes on the part of Hope Charities.
This opportunity is strictly voluntary on your part and your participation in the study has no effect on your current or future eligibility for, or participation in, any program or service offered by Hope Charities, Inc.
Please note that the referenced study is fully managed, operated, and funded by a third-party and Hope Charities, Inc. has no control over, and bears no responsibility for, the administration, conduct, or protocols of the study. Hope Charities assumes no responsibility for any of the content and messaging of the study opportunity offered therein.
Publication of this opportunity or study should not be construed or interpreted as an endorsement of any product, service, viewpoint, opinion or medical practice presented or discussed in the study. Any opinion, message or service discussed or presented in the study is determined solely by the third-party sponsor and Hope Charities has no role or authority over the content presented therein.

A Word From Our Sponsor: A goal of hemophilia treatment is to help the body generate enough thrombin to form strong, sta...
09/16/2026

A Word From Our Sponsor: A goal of hemophilia treatment is to help the body generate enough thrombin to form strong, stable clots that help prevent bleeds. How does treatment affect thrombin generation? Talk to a doctor and !
Learn more at SpeakYourHemTruth.com.
© 2026 Novo Nordisk All rights reserved.
US26HRBD00083 June 2026

Learn more about managing your hemophilia A with or without inhibitors and discover new ways to speak to your doctor about your treatment "trade-offs" or challenges.

Joint Health Conference begins TODAY! 🎉There’s still time to register and join us for education, connection, community, ...
09/15/2026

Joint Health Conference begins TODAY! 🎉

There’s still time to register and join us for education, connection, community, and plenty of giveaways along the way!

Don’t miss your chance to be part of it. Register now and join us today!
🔗 Register here: www.hopeforhemophilia.org/joint-health-conference

09/14/2026

🚨 Joint Health Conference starts TOMORROW!

There’s still time to register and join us September 15–16 for two days of education, connection, and conversations focused on joint health in the bleeding disorders community.

Don’t miss out. Register today!
🔗 Register here: www.hopeforhemophilia.org/joint-health-conference

Address

Baton Rouge, LA
70879

Opening Hours

Monday 9am - 4pm
Tuesday 9am - 5:15pm
Wednesday 9am - 4pm
Thursday 9am - 4pm
Friday 9am - 4pm

Telephone

+18885298023

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