Hope for Hemophilia

Hope for Hemophilia Why HOPE? Because bleeding disorders can be painful, lonely, financially difficult, and sometimes scary.

Hope Charities specializes in helping individuals and families through a season of a crisis caused by chronic illness and bleeding disorders. Because living with a bleeding disorder or rare disease can be painful, lonely, financially difficult, and sometimes scary. Hope for Hemophilia specializes in helping individuals and families through a season of crisis caused by a chronic illness.

We believe cost shouldn’t be what keeps someone from experiencing Hope Conference and the community that comes with it. ...
09/03/2026

We believe cost shouldn’t be what keeps someone from experiencing Hope Conference and the community that comes with it. That’s why scholarships are available to help make attending possible for as many members of our community as we can.

While scholarship funding is limited, we still encourage you to apply if financial assistance would make it possible for you to attend.

Your application matters. Every application helps us better understand the need within our community and shows the importance of continued and expanded scholarship support for future attendees.

Whether or not funding is available right away, applying helps us advocate for more resources and more opportunities to bring our community together.

If Hope Conference is somewhere you want to be, please don’t count yourself out before applying.

Apply at www.hopeforhemophilia.org/hope-conference

There’s a place for you here.

Every November, we follow the path back to one another. 🐇🔑✨This year, we’re heading down the rabbit hole for Hope Confer...
08/28/2026

Every November, we follow the path back to one another. 🐇🔑✨

This year, we’re heading down the rabbit hole for Hope Conference 2026. The theme this year is “Finding Your Way.” Three days of unexpected discoveries, meaningful connections, and plenty of wonder await.

No matter which way your journey has taken you, there’s a place for you here. Hope Conference is a chance for the bleeding disorders community to come together, learn from one another, reconnect with familiar faces, and make new connections along the way.

♠️ November 5–7
♥️ Orlando, FL

Don’t be late for a very important date. Register today!

https://www.hopeforhemophilia.org/hope-conference

A Word From Our Sponsor: Adolescents (12 – 17 years) and Adults (≥18 years) Living with von Willebrand Disease (VWD): Sh...
08/26/2026

A Word From Our Sponsor: Adolescents (12 – 17 years) and Adults (≥18 years) Living with von Willebrand Disease (VWD): Share your Experience in a Paid Online Interview

IQVIA, a healthcare research company, is seeking individuals, aged 12 years or older, living with VWD to participate in a 90-minute, web-based video conference interview.

During the interview, individuals will be asked to share their experiences with VWD, including signs, symptoms, and impacts of VWD and to provide feedback on a related questionnaire. Anyone who completes the interview will receive $200 USD in exchange for their time and participation, and an additional $50 USD for providing confirmation of their VWD diagnosis.

The study is strictly for research purposes; there will be absolutely no sales or promotional activities. There is no treatment associated with taking part in this study.

To see if you/your adolescent qualify for the study or to get more information, please visit: https://survey.cmix.com/3DAF0DC3/7E302C4Q/en-US
or email [email protected] and include this subject line in your email: VWD 2026 Interview Study.

The study opportunity is intended solely for educational purposes on the part of Hope Charities.
This opportunity is strictly voluntary on your part and your participation in the study has no effect on your current or future eligibility for, or participation in, any program or service offered by Hope Charities, Inc.
Please note that the referenced study is fully managed, operated, and funded by a third-party and Hope Charities, Inc. has no control over, and bears no responsibility for, the administration, conduct, or protocols of the study. Hope Charities assumes no responsibility for any of the content and messaging of the study opportunity offered therein.
Publication of this opportunity or study should not be construed or interpreted as an endorsement of any product, service, viewpoint, opinion or medical practice presented or discussed in the study. Any opinion, message or service discussed or presented in the study is determined solely by the third-party sponsor and Hope Charities has no role or authority over the content presented therein.
Please be advised that participation is limited and if you satisfy the eligibility criteria, you will be contacted with additional information, at which time you may consent or decline participation.

Registration is open for our Joint Health Conference! 💙Join us September 15 & 16 for two days of expert education, pract...
08/25/2026

Registration is open for our Joint Health Conference! 💙

Join us September 15 & 16 for two days of expert education, practical conversations, and connection with the bleeding disorders community, all from the comfort of home.

🎤 Amazing speakers
🎁 Exciting giveaways
💙 Meaningful community connection

Don’t wait to register! Secure your spot today and join us online this September.

www.hopeforhemophilia.org/joint-health-conference

08/24/2026

They told Martin Addie he probably wouldn't live past his teenage years. Today, after more than six decades of living with severe hemophilia, he's sharing the lessons, struggles, and hope that shaped his journey.

In this powerful conversation, Martin reflects on what it was like growing up before home treatment, prophylaxis, and many of the therapies people rely on today. From painful joint bleeds and long hospital stays to navigating insurance barriers, advocating for patients, and finding purpose through helping others, Martin offers a perspective that spans generations.

Martin's story is both a history lesson and a message of hope for the future.
If you or someone you love is affected by a bleeding disorder, this is a conversation you won't want to miss.

🎧 Hit play, share with a friend, and don’t forget to follow! Every listen helps us get these conversations to more people who need them.

Special thanks to Genentech for sponsoring this episode of the Hope Unmuted Podcast!

Hope Charities is a national nonprofit focused on helping people living with rare and chronic illnesses thrive. Our programs specialize in helping people with genetic bleeding disorders and navigate the challenges of invisible disease by providing emotional, educational, and tangible support. To learn more about our programs, visit our website www.hope-charities.org.

Audio versions of this podcast are available on Spotify, Apple, and anywhere you listen to podcasts. Subscribe to our podcast to listen to more inspiring interviews like this today.

Spotify:
https://open.spotify.com/show/7mHb8FnlHmOz0PBcv6kQ8p?si=hlBA_VPsTmaJTbOmkQyvNg

Apple:
https://podcasts.apple.com/us/podcast/hope-charities/id1613823273

iHeart:
https://www.iheart.com/podcast/269-hope-charities-93979933/

YouTube:
https://www.youtube.com//podcasts

💙 Looking for year round support? Join our free monthly HOPE Sessions for live education, expert insights, and meaningful conversations with the bleeding disorders community. Learn more at https://www.hopeforhemophilia.org/hope-sessions.html.

📖 Continue your journey with HOPE. Explore Issue 36 of The Hope Factor magazine, featuring educational articles, practical resources, advocacy information, and tools designed to support individuals and families affected by bleeding disorders throughout every stage of their journey.








08/18/2026

Financial barriers to care can affect patients across insurance types, and knowing where to turn for support can make a difference. 💙

While at , we had the opportunity to share our poster exploring these barriers and the role financial assistance, education, and resource navigation can play in supporting the bleeding disorders community.

We’re grateful to have contributed to the conversation and learned alongside so many others working to support this community.

08/13/2026

We’re so happy to be here at BDC connecting with the bleeding disorders community! 💙

If you’re attending, stop by Booth #112 to say hello to the Hope Charities team, learn more about our programs and resources, and pick up a few goodies!

We’d love to see you! 💙

We are so excited to connect with the community this week! Stop by booth 112 and say hello!
08/13/2026

We are so excited to connect with the community this week! Stop by booth 112 and say hello!

A Word From Our Sponsor: Adolescents (12 – 17 years) and Adults (≥18 years) Living with von Willebrand Disease (VWD): Sh...
08/06/2026

A Word From Our Sponsor: Adolescents (12 – 17 years) and Adults (≥18 years) Living with von Willebrand Disease (VWD): Share your Experience in a Paid Online Interview

IQVIA, a healthcare research company, is seeking individuals, aged 12 years or older, living with VWD to participate in a 90-minute, web-based videoconference interview.

During the interview, individuals will be asked to share their experiences with VWD, including signs, symptoms, and impacts of VWD and to provide feedback on a related questionnaire. Anyone who completes the interview will receive $200 USD in exchange for their time and participation, and an additional $50 USD for providing confirmation of their VWD diagnosis.

The study is strictly for research purposes; there will be absolutely no sales or promotional activities. There is no treatment associated with taking part in this study.

To see if you/your adolescent qualify for the study or to get more information, please visit: https://survey.cmix.com/3DAF0DC3/7E302C4Q/en-US

or email [email protected] and include this subject line in your email: VWD 2026 Interview Study.

The study opportunity is intended solely for educational purposes on the part of Hope Charities.
This opportunity is strictly voluntary on your part and your participation in the study has no effect on your current or future eligibility for, or participation in, any program or service offered by Hope Charities, Inc.
Please note that the referenced study is fully managed, operated, and funded by a third-party and Hope Charities, Inc. has no control over, and bears no responsibility for, the administration, conduct, or protocols of the study. Hope Charities assumes no responsibility for any of the content and messaging of the study opportunity offered therein.
Publication of this opportunity or study should not be construed or interpreted as an endorsement of any product, service, viewpoint, opinion or medical practice presented or discussed in the study. Any opinion, message or service discussed or presented in the study is determined solely by the third-party sponsor and Hope Charities has no role or authority over the content presented therein.
Please be advised that participation is limited and if you satisfy the eligibility criteria, you will be contacted with additional information, at which time you may consent or decline participation.

Women's Health Conference is officially underway, and it's not too late to join us!If you haven't registered yet, there'...
07/28/2026

Women's Health Conference is officially underway, and it's not too late to join us!

If you haven't registered yet, there's still time to be part of two days of expert-led education, meaningful conversations, and inspiring stories from women, caregivers, providers, and advocates across the bleeding disorders community.

Join us from wherever you are and be part of the movement to continue changing the narrative for women with bleeding disorders.

💜 Register now and join us live:
https://www.hopeforhemophilia.org/womens-health-conference.html

Address

Baton Rouge, LA
70879

Opening Hours

Monday 9am - 4pm
Tuesday 9am - 5:15pm
Wednesday 9am - 4pm
Thursday 9am - 4pm
Friday 9am - 4pm

Telephone

+18885298023

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