Epilepsy Alliance America

Epilepsy Alliance America A national collective of organizations providing programs & services for people with epilepsy

If you are between the ages of 12-75 and have been diagnosed with focal onset seizures, you may be eligible to participa...
05/30/2026

If you are between the ages of 12-75 and have been diagnosed with focal onset seizures, you may be eligible to participate in a clinical trial which is now enrolling.

Learn more and find a clinical site near you - https://www.epifostrial.com/

Epilepsy Alliance Florida Epilepsy Alliance Louisiana Epilepsy Alliance North Carolina Epilepsy Alliance Ohio Empowering People's Independence Epilepsy Association of Western and Central PA Sociedad Puertorriqueña de Epilepsia JoshProvides Epilepsy Assistance Foundation Epilepsy Services Foundation, Inc. South Carolina Advocates For Epilepsy

Epilepsy touches more lives than many realize. 1 in 26 people will receive a diagnosis in their lifetime. You’re not alo...
05/30/2026

Epilepsy touches more lives than many realize. 1 in 26 people will receive a diagnosis in their lifetime. You’re not alone, and no one should navigate epilepsy without support.

Find trusted information, resources, and training anytime on our website - https://epilepsyallianceamerica.org/

“Medical care is critical, of course. But reducing stigma happens person by person, conversation by conversation. Stigma...
05/29/2026

“Medical care is critical, of course. But reducing stigma happens person by person, conversation by conversation. Stigma only survives in silence.”

These thoughtful words from Wendy Steel, founder of member organization Young Adults with Epilepsy, capture the heart of why open dialogue and education matter so deeply in our community. Congratulations to Wendy and her team on their well‑deserved recognition from the Rotary Club of Carmel Valley, Carmel Unified School District, and the PICS (Partners in Community Service) program.

Read Wendy’s full reflection here: https://www.youngadultswithepilepsy.org/post/when-epilepsy-stigma-meets-understanding-how-one-generation-changed-the-conversation

And if you missed our recent webinar on epilepsy stigma and psychosocial health, you can view it here: https://youtu.be/5g4ARtBLbYc

International and national guidelines for Sudden Unexpected Death in Epilepsy (SUDEP) counseling and seizure detection a...
05/29/2026

International and national guidelines for Sudden Unexpected Death in Epilepsy (SUDEP) counseling and seizure detection are increasingly available. However, their uptake and implementation in routine clinical care remain variable across regions and health systems.

This webinar from our friends at PAME: Partners Against Mortality in Epilepsy and ILAE - International League Against Epilepsy Young Epilepsy Section will address these central questions: what SUDEP-related guidelines currently exist and are on the horizon, what evidence tells us about how they are being used in practice, and how we can better translate these recommendations into meaningful clinical action.

Register here: https://us02web.zoom.us/webinar/register/WN_jT5peyymQ46P7K22Chbj1w #/registration

The PAME: Partners Against Mortality in Epilepsy Conference brings together epilepsy researchers, health care providers,...
05/28/2026

The PAME: Partners Against Mortality in Epilepsy Conference brings together epilepsy researchers, health care providers, nonprofit leaders, and people impacted by epilepsy, including bereaved families, to share knowledge and work together to prevent epilepsy mortality.

The PAME Conference will take place in Denver, CO, on December 3, 2026, with a dedicated family session on December 2.

Stay tuned for more details! We look forward to coming together for this important event.

https://pameonline.org/event/2026-pame-conference/

Join us for our quarterly Seizure Recognition and Response Training with a special presentation about Mental Health in E...
05/27/2026

Join us for our quarterly Seizure Recognition and Response Training with a special presentation about Mental Health in Epilepsy. National Professional Advisory Committee members, Jonathan Williams, MD, and Sarah Gehlert, PhD, both of Washington University in St. Louis, will provide helpful strategies.

Join us on Friday, June 5 at 4 PM ET / 3 PM CT / 2 PM MT / 1 PM PT.
Register: https://us06web.zoom.us/meeting/register/8GJqrHUgS2-TZIWSNjysTg

Mental health is an important part of the epilepsy journey, not only for the person living with epilepsy, but for parent...
05/27/2026

Mental health is an important part of the epilepsy journey, not only for the person living with epilepsy, but for parents, caregivers, siblings, and the entire family.

This helpful resource from our friends at Pediatric Epilepsy Surgery Alliance offers guidance, support, and mental health resources for families navigating pediatric epilepsy surgery. From caregiver stress and trauma to family adjustment and finding support, it’s a reminder that you don’t have to carry it all alone.

During Mental Health Awareness Month and all year long, we encourage our community to prioritize emotional well-being alongside physical health and seizure management.

Explore the resource here: http://epilepsysurgeryalliance.org/about/programs-resources/guides/mental-health-support-for-you-and-your-family/

What if there was something you could wear that gave you a heads up before a seizure? Truman Pierson and Chris Fitz are ...
05/26/2026

What if there was something you could wear that gave you a heads up before a seizure? Truman Pierson and Chris Fitz are working on making that a reality. In the latest episode of the What the Ef podcast, they share their evolving device that uses EEG technology – without the wires OR the glue – to create a wearable device that predicts your seizures based on brain wave patterns.

That means we could wear something the size of a paperclip, go about our lives, and get to safety before a seizure hits. They share how much warning time the device may be able to give before a seizure, when they hope people with epilepsy could actually get their hands on it, and what inspired them to create it.

And there’s something you can help with – naming this device! Truman and Chris are looking to folks in the community for inspiration. Submit your ideas here: https://tinyurl.com/thetaneurotech

Epilepsy Alliance America is a proud sponsor of What the Ef.

Join us for tonight's webinar to learn how epilepsy‑related stigma affects confidence, connection, and well‑being. Dr. E...
05/26/2026

Join us for tonight's webinar to learn how epilepsy‑related stigma affects confidence, connection, and well‑being. Dr. Elaine Kiriakopoulos of Geisel School of Medicine at Dartmouth at Dartmouth Health will share strategies to strengthen mental health this evening at 6:30 pm ET.

Register here: https://us06web.zoom.us/meeting/register/hMNQK-fKTA6oDkiWALIF-A

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2041 Silverside Drive
Baton Rouge, LA
70808

Telephone

(347) 987-1610

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