Epilepsy Alliance America

Epilepsy Alliance America A national collective of organizations providing programs & services for people with epilepsy

Today, we celebrate the generosity that strengthens our epilepsy community. Every donation fuels our national network an...
09/05/2026

Today, we celebrate the generosity that strengthens our epilepsy community. Every donation fuels our national network and helps deliver local, meaningful solutions for people impacted by epilepsy.

Donate securely here: https://epilepsyallianceamerica.org/donate/

Have fun Labor Day plans that involve being in or around water? Make safety a priority by taking our quick On Demand Wat...
09/04/2026

Have fun Labor Day plans that involve being in or around water? Make safety a priority by taking our quick On Demand Water Safety Training!

In 30 minutes or less, learn how to recognize a seizure in water, how to respond quickly and safely, and what precautions should be taken when enjoying any body of water or water activity.

Take the training today: https://epilepsyallianceamerica.org/seizure-safety/watertraining/

If you or someone you love has a diagnosis of Psychogenic Non Epileptic Seizures (PNES), we are proud to announce a new ...
09/03/2026

If you or someone you love has a diagnosis of Psychogenic Non Epileptic Seizures (PNES), we are proud to announce a new support group, moderated by clinicians and advocates with expertise in PNES, including Dr. Lorna Myers, author of Psychogenic Non Epileptic Seizures: A Guide.

Starting October 22, 2026, this monthly virtual support group will be a safe place for those experiencing PNES and will feature a rotating PNES-related topic and informal discussion.

Save the date and register here: https://us06web.zoom.us/meeting/register/SZVTODyOSxi6SmHBgtDkaQ

Strong policies create opportunities for lasting change—but only if they improve everyday life.The GENS Policy Advocacy ...
09/02/2026

Strong policies create opportunities for lasting change—but only if they improve everyday life.

The GENS Policy Advocacy Report provides evidence-informed recommendations to help policymakers strengthen epilepsy care, protect rights, and improve inclusion.

🔗 www.genspolicyadvocacy.org

CVI Awareness Month shines a light on how closely CVI and epilepsy intersect.Cerebral Visual Impairment is the leading c...
09/01/2026

CVI Awareness Month shines a light on how closely CVI and epilepsy intersect.

Cerebral Visual Impairment is the leading cause of childhood blindness. Research shows that 64–78% of children with CVI also have epilepsy, largely because both conditions stem from early brain injury, genetic conditions, or oxygen deprivation around birth. Seizures can disrupt how the brain processes visual information, making vision inconsistent or harder to use.

This month, we honor every child and family navigating both CVI and epilepsy and push for earlier recognition, better support, and stronger awareness.
CVI Now
Perkins School for the Blind

Did you miss our Back to School webinar, conducted in partnership with member organization Epilepsy Advocacy Network? Yo...
08/31/2026

Did you miss our Back to School webinar, conducted in partnership with member organization Epilepsy Advocacy Network? You can watch the recording on our YouTube channel.

Hear from Dr. Agilda Dema, University of Chicago, and Jessica Kreiser, Lighted Way Children’s Developmental Center, as they discuss how schools and families can work together to create safe, supportive, and inclusive learning environments for students with epilepsy, including seizure preparedness, school accommodations, and practical strategies for success.

https://www.youtube.com/watch?v=joPjGzTzOUY&t=2s

Happy National Beach Day! For people living with epilepsy, beach time is safest with a swim buddy who knows how to respo...
08/30/2026

Happy National Beach Day!

For people living with epilepsy, beach time is safest with a swim buddy who knows how to respond to a seizure, bright gear that’s easy to spot, and plenty of hydration. And if a seizure happens in or near the water, treat it as an emergency and call 911.

More summer and water safety tips here: https://epilepsyallianceamerica.org/seizure-safety/seizure-safety-tips-for-summer/

When it's needed, quick access can make all the difference.Before the school year begins, make sure teachers, school nur...
08/29/2026

When it's needed, quick access can make all the difference.

Before the school year begins, make sure teachers, school nurses, and other key staff know where rescue medication is stored, when it should be administered, and how to respond if it's needed. Preparation helps schools respond with confidence and gives students and families greater peace of mind.

Learn more about seizure safety, rescue medications, and free training resources at https://epilepsyallianceamerica.org/seizure-safety/school2026/.

Epilepsy Alliance America Executive Director, Lisa Gallipoli, and Epilepsy Alliance America Board Chair and CEO of Epile...
08/28/2026

Epilepsy Alliance America Executive Director, Lisa Gallipoli, and Epilepsy Alliance America Board Chair and CEO of Epilepsy New Jersey, Liza Gundell, visited Rep. Analilia Mejia for New Jersey's office to share about the work being done to support the needs of people living with epilepsy in New Jersey and to encourage the Congresswoman to sign on to the National Plan for Epilepsy as well as the Epilepsy Caucus.

A National Plan for Epilepsy would prioritize the development of more effective epilepsy treatments and enable the federal coordination necessary to ensure better outcomes for people with epilepsy.

Have you asked your elected officials to support the plan? https://www.votervoice.net/EAA/campaigns/122944/respond

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2041 Silverside Drive
Baton Rouge, LA
70808

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