Epilepsy Alliance America

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Epilepsy Alliance America A national collective of organizations providing programs & services for people with epilepsy

A doc told him to follow his dreams. Adam went pro in hockey. With epilepsy. Adam breaks down how he played safely, adap...
10/13/2026

A doc told him to follow his dreams. Adam went pro in hockey. With epilepsy.

Adam breaks down how he played safely, adapted when his meds slowed him down, and started a clothing company “by accident” that ended up outfitting Olympians and his former team.

He also shares why he hid his epilepsy for years, what changed after his last seizure seven years ago, and the two self-care habits he swears by.

Oh, and the merch line at his epilepsy awareness event? Around the block.

Tune in wherever you listen to podcasts! Links on What the Ef?! Podcast bio.

Shout to sponsors Neurelis, SK life science, & PATI | Seizure Safety Device and community partners Epilepsy Foundation of America, Danny Did Foundation , & Epilepsy Alliance America for believing in this podcast!

The STARS study is looking for people 12 years and older with focal or generalized epilepsy (or a combination of the two...
10/13/2026

The STARS study is looking for people 12 years and older with focal or generalized epilepsy (or a combination of the two) who recently experienced seizures lasting more than 3 minutes. To learn more about the study and to find out the eligibility criteria, please visit www.starsepilepsystudy.com

Congratulations to member organization Young Adults with Epilepsy on their recent Walk 4 Epilepsy along the Pacific Ocea...
10/12/2026

Congratulations to member organization Young Adults with Epilepsy on their recent Walk 4 Epilepsy along the Pacific Ocean in Monterey, CA. Walkers participated both in person and virtually, with supporters joining from France and the Philippines. What a great showing of community, awareness, and solidarity!

Other neurological conditions have benefited from coordinated national strategies. Epilepsy should, too. The National Pl...
10/11/2026

Other neurological conditions have benefited from coordinated national strategies. Epilepsy should, too. The National Plan for Epilepsy provides a roadmap to improve care, expand research, address disparities, and support individuals and families across the lifespan.

It's time for epilepsy to receive the attention it deserves.

Use your voice to advocate for a National Plan for Epilepsy here: https://www.votervoice.net/EAA/campaigns/122944/respond

Mental health is part of rare epilepsy care đź«‚ Epilepsy, including rare epilepsies, comes with a greater risk for mental ...
10/11/2026

Mental health is part of rare epilepsy care đź«‚

Epilepsy, including rare epilepsies, comes with a greater risk for mental illness. In a 2021 study from our community partners Rare Epilepsy Network: REN of 795 people across more than 30 rare epilepsy diagnosis groups, 71% had mental illness comorbidities.

We join with REN in encouraging patients, caregivers, and clinicians to:
-Understand the risk
-Assess it early
-Learn about prevention and care
-Reach out for help when needed

Learn more at rareepilepsynetwork.org.

October is SUDEP Awareness Month.Sudden Unexpected Death in Epilepsy (SUDEP) occurs when a person with epilepsy dies une...
10/09/2026

October is SUDEP Awareness Month.

Sudden Unexpected Death in Epilepsy (SUDEP) occurs when a person with epilepsy dies unexpectedly despite being otherwise healthy, and it remains the most common epilepsy‑related cause of death.

We hope you'll join us on Wednesday, October 28 at 12 pm ET for the difficult but essential topic of Understanding SUDEP. This webinar with Dr. Satya Gedela of Nemours Children’s Hospital and Epilepsy Alliance America board member Caitlin Bernard‑Vincent, LCSW will empower participants to have clearer information, practical strategies, and confidence to discuss SUDEP risk and seizure management with their care team.

Register here: https://tinyurl.com/mr28k62w

Join for a FREE webinar on October 13 about Medicare’s Open Enrollment Period. This annual opportunity allows individua...
10/07/2026

Join for a FREE webinar on October 13 about Medicare’s Open Enrollment Period. This annual opportunity allows individuals to review and make changes to their coverage for the year ahead.

Whether considering switching plans, exploring drug coverage options, or confirming that current plans still meet your needs, this session will guide you through the process. You’ll also learn practical tips for using Medicare’s Plan Finder tool, strategies for comparing plans, and get an overview of changes to Medicare for 2027. + FREE CE for
professionals.

Register: TriageHealth.org/Webinars

On the latest episode of the What the EF podcast - we’ve all been asked The Question: What should I put in your mouth if...
10/06/2026

On the latest episode of the What the EF podcast - we’ve all been asked The Question: What should I put in your mouth if you have a seizure? (Yeah, it’s not a spoon.)

Dr. Ashlyn Sanders, a pediatric neurology resident, has been asked this question too. After emergency brain surgery for a Chiari malformation left her with seizures, Ashlyn became a pediatric neurology resident—and created PATI, a prescription, FDA-cleared device designed to protect the mouth and tongue from seizure injuries.

We talk about going from patient to doctor, what living with seizures taught her about caring for patients, and the jar of things people have actually tried to put in someone’s mouth. (Spoiler: there’s a Halloween finger.)

Full episode wherever you listen to podcasts! Epilepsy Alliance America is a proud sponsor of What the Ef.

Sending our congratulations on a milestone moment for member organization Empowering People's Independence! With leaders...
10/06/2026

Sending our congratulations on a milestone moment for member organization Empowering People's Independence!

With leadership from Dr. Inna Hughes, a valued member of Epilepsy Alliance America’s National Professional Advisory Committee, the inaugural Upstate New York Child Neurology Conference united providers from four major regional centers to strengthen connections, share expertise, and advance high‑quality care for kids and families impacted by epilepsy and related neurological conditions.

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2041 Silverside Drive
Baton Rouge, LA
70808

Telephone

(347) 987-1610

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