Alexis Helfrich Foundation

Alexis Helfrich Foundation Lexi was a St. Jude patient from the age of 2. The St. Jude Clinic was Lexi's extended family for eight years. CANCER! The tumor was the size of a hard ball.

Alexis N. “Lexi” Helfrich
June 6, 2000- September 11, 2010

When Lexi was 2yrs old, the family was out to dinner. Her grandmother picked Lexi up and felt something that was not right, a big lump in her lower abdomen. Lexi was taken to the doctors, her parents heard words that no parent wants to hear. Lexi had stage 4 cancer; a tumor was on her kidney and in the cavity between her chest and lungs,

Wilms tumors to be exact. Three days after discovery of the tumor they removed her right kidney and started chemotherapy the same day. One day away from her 6 month checkup, her parents noticed that she was not feeling well. Lexi just was not herself. She was having trouble breathing and not running right. Lexi seemed to be always out of breath. They took her to the doctors, where they performed a CT and took x-rays. Lexi had relapsed right before Christmas. It didn’t come back in her kidneys, it came back in her lungs. It was hard the first time, when Lexi’s little body had to go through the surgery and chemo. The second time was going to be harder. Any time you relapse it’s a lot harder, there were no shots the first time and the drugs are a lot stronger the second time around. This would mean more hospitalization and more sickness. Lexi’s counts were awful. She did not have many platelets and her little body was bruising all the time. Lexi spent some time in Memphis, Tennessee at St. Jude’s and a lot of time in Peoria, Illinois at the St. June Midwest Affiliate and in Chicago. Lexi even began a stem cell transplant. The transplant was cut short when it was found to not be working. Jude Clinic was Lexi’s extended family for eight years. Lexi was very active in the Peoria St. Jude Run / telethon and a dear friend to Peoria’s Mayor Jim Maloof, a St. Jude board member. Lexi was a “social butterfly” and she loved to make people smile. She loved to sing, dance and have a good time. She savored every day that she felt good. Lexi showed more strength and courage in her 10 years than most people will show in a much longer life span. In the end Lexi had her family and loved ones with her. She told each one good-bye in her own special way. She removed the leads and monitors herself and demanded smiles from everyone. She told us that it was okay and commanded that we were not to cry. She was truly ready and at peace. The Alexis Helfrich Foundation must thank D&D Productions for keeping Lexi’s spirit alive. D&D Productions in Peoria, Illinois was Lexi’s favorite place to be. Lexi loved being at D&D among all her friends who shared the same passion for dance as she did. D&D Productions keeps Lexi’s memory alive 365 days out of the year. They hold many events to raise money for St. Jude in honor of Lexi. They also offer a dance scholarship which is presented to a student at the end of the year at their dance recital. This student must be selected by their teacher. Then the student must write an essay on what dance means to them. All letters are gathered and read by Lexi’s family and the winner is selected.

06/07/2024

A moment doesn’t go by without a thought of you. However on special days like today, your 24th Birthday, well it’s truly devastating to get out of bed. One day you will be back in my arms and I will hold on so tightly!
I love you Lexi! Happy Heavenly Birthday. Daddy misses you so much!

07/11/2022
10/08/2021

I am a father.
I am a bereaved father.
My child died, and this is my reluctant path. It is not a path of my choice, but it is a path I must walk mindfully and with intention. It is a journey through the darkest night of my soul and it will take time to wind through the places that scare me.

Every cell in my body aches and longs to be with my beloved child. On days when grief is loud, I may be impatient, distracted, frustrated, and unfocused. I may get angry more easily, or I may seem hopeless. I will shed many, many, many tears. I won’t smile as often as my old self. Smiling hurts now. Most everything hurts some days, even breathing.

But please, just sit beside me.
Say nothing.
Do not offer a cure.
Or a pill, or a word, or a potion.
Witness my suffering and don't turn away from me.
Please be gentle with me.
And I will try to be gentle with me too.

I will not ever "get over" my child's death so please don’t urge me down that path.

Even on days when grief is quiescent, when it isn't standing loudly in the foreground, even on days when I am even able to smile again, the pain is just beneath the surface.

There are days when I still feel paralyzed. My chest feels the sinking weight of my child's absence and, sometimes, I feel as if I will explode from the grief.

Losing my child affects me in so many ways: as a man, a father, a human being. It affects every aspect of me: spiritually, physically, mentally, and emotionally. There are days when I barely recognize myself in the mirror anymore.

Grief is as personal to me as my fingerprint. Don't tell me how I should or shouldn’t be grieving or that I should or shouldn’t “feel better by now.” Don't tell me what's right or wrong. I'm doing it my way, in my time. If I am to survive this, I must do what is best for me.

My understanding of life will change and a different meaning of life will slowly evolve. What I knew to be true or absolute or real or fair about the world has been challenged so I'm finding my way, moment-to-moment in this new place.

Things that once seemed important to me are barely thoughts any longer. I notice life's suffering more- hungry children, the homeless and the destitute, a father’s harsh voice toward his young child- or an elderly person struggling with the door.

There are so many things about the world which I now struggle to understand: Why do children die?

There are some questions, I've learned, which are simply unanswerable.

So please don’t tell me that “ God has a plan ” for me. This, my friend, is between me and my God. Those platitudes slip far too easily from the mouths of those who tuck their own child into a safe, warm bed at night: Can you begin to imagine your own child, flesh of your flesh, lying lifeless in a casket, when “goodbye” means you’ll never see them on this Earth again?

Grieving fathers- and mothers- and grandparents- and siblings won’t wake up one day with everything ’okay’ and life back to normal. I have a new normal now.

As time passes, I may gain gifts, and treasures, and insights but anything gained was too high a cost when compared to what was lost.

Perhaps, one day, when I am very, very old, I will say that time has truly helped to heal my broken heart.

But always remember that not a second of any minute of any hour of any day passes when I am not aware of the presence of my child's absence, no matter how many years lurk over my shoulder, don’t forget that I have another one, another child, whose absence, like the sky, is spread over everything as C.S. Lewis said.

My child may have died; but my love - and my fatherhood - never will.

Written by Dr. Joanne Cacciatore ❤️

Happy 21st Birthday Lexi!
06/06/2021

Happy 21st Birthday Lexi!

This is so awesome!! Congratulations 💕💕
04/02/2021

This is so awesome!! Congratulations 💕💕

We couldn't be more proud to announce that Safe at Home WON the Best Documentary Short award at this year's Colorado Short Circuit Film Festival!!

Please help support Ezra who was recently diagnosed with Cancer! What a beautiful way to share and spread the love.💕💕
03/04/2021

Please help support Ezra who was recently diagnosed with Cancer! What a beautiful way to share and spread the love.💕💕

Happy New Year to All!! We promote all kinds of fundraising on our page. This time we are promoting My Mother-in-laws th...
01/01/2021

Happy New Year to All!!
We promote all kinds of fundraising on our page. This time we are promoting My Mother-in-laws that my wife created in her behalf. If you could please share to help spread the word or even donate it would mean the world to us. Thank you

This fundraiser is for my Mom. My Mom is always there to help whenever anyone needs it. She is … Tonya Helfrich needs your support for Diego's Med eye implant

Merry Christmas from The Helfrich Family to yours. We hope everyone had a beautiful day. 💕🎄🎁
12/25/2020

Merry Christmas from The Helfrich Family to yours. We hope everyone had a beautiful day. 💕🎄🎁

Have a Happy and Safe Thanksgiving
11/26/2020

Have a Happy and Safe Thanksgiving

10/29/2020

AMAZING!! Great job everyone 💕💕💕

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Bartonville, IL

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