04/28/2026
Last month I was diagnosed with stage 1 lymphoma in my brain. Despite having a job with health benefits and accumulated sick leave, the healthcare system continually places hurdles in front of the care I need.
When I first had some nerve symptoms months ago, I was able to get a referral to a neurologist but couldn’t schedule an appointment for months. That appointment is still two months away. When my symptoms were getting worse, a short-notice visit to my primary doctor was impossible, so I went to a local urgent care center. They diagnosed me with a sinus infection. They didn’t have the capacity to run the scans needed to find the cancer, and they charge more than a visit to my primary. Less services, higher cost.
I need physical therapy, and while my doctors directed it, the insurance company took so long for prior authorization that I was discharged from the hospital before receiving it and referred to a separate agency. It’s been a month and I still haven’t received physical therapy.
Despite having insurance, I receive regular bills. Individually they may not be large amounts, but they add up. Almost daily I receive Explanation of Benefits packets from the insurance company, with “THIS IS NOT A BILL” prominently displayed. Most of the information is inscrutable, but it’s clear that SOMEONE is getting a bill and SOMEONE is getting paid.
I know the insurance company isn’t in business to lose money, and that thousands and thousands of claims are denied every year. In order for UnitedHealth to pay for my care and still make a profit, they must be denying other people needed care.
Supposedly, this system is ‘working’ for me. But the injustice and inhumanity is clear. The insurance companies provide nothing but hurdles and rations to care. We need now.
- Lesley, New York