Cervivor

06/01/2026

June is National Cancer Survivorship Month, and we want to talk about four words that change everything: "no evidence of disease."

We asked our community what it was really like to hear those words. Here is what Kellie Defelice, a Stage 4A cervical cancer survivor, told us:

"I used to think NED meant the end of someone's cancer journey. Now I realize it's just the beginning of a different kind of fight. It's a relief, but also a possible ticking time bomb. I no longer want to waste time, and I just want to be happy."

Kellie is not alone. Thirteen years out, Samantha Richman says she still gets anxious every time she waits for those words. Dusty Ferrarese, NED for a decade, says the gift of that milestone changed how she moves through the world: "This extra time I'm given isn't to be taken for granted."

NED is not a cure. It is a milestone, and the beginning of a new and often complicated chapter. Our new blog post breaks down exactly what it means, how it differs from remission, and how to keep going when the fear doesn't go away just because the scans came back clear.

Read it now at cervivor.org https://cervivor.org/no-evidence-of-disease-ned-cervical-cancer-survivors/

If this answers a question you've been carrying, share it with someone who needs it. You never know who in your circle is sitting with this.

Hearing "No Evidence of Disease" is a milestone—but not the end of the story. Cervical cancer survivors from the Cervivor community share the realities of life beyond treatment.

05/26/2026

Hero at Home for 🇺🇸

This Military Appreciation Month, we honor the courage, sacrifice, and resilience of those who serve — while also standing strong for cervical cancer awareness, prevention, and survivorship with Cervivor

These images highlight the support systems within our community — the loved ones, caregivers, family members, and advocates who also serve our country while showing up for survivors every step of the way. Their strength, compassion, and dedication deserve to be celebrated too. 🩵🤍

Today we wear teal and white for the fighters, survivors, caregivers, military families, and every voice helping break the silence around HPV and cervical cancer.

✨ Schedule your screening
✨ Know your HPV status
✨ Advocate for your health
✨ Honor those who serve

👇 Drop a photo of your military person in the comments and say “thank you” to someone who has served or continues to serve our country.

05/25/2026

Today, we pause to honor and remember the brave individuals who made the ultimate sacrifice in service to our country.

Their courage, strength, and selflessness will never be forgotten.

As we spend time with loved ones this Memorial Day, may we also reflect on the freedoms we hold close because of those who gave everything. From all of us at Cervivor , we extend our deepest gratitude to our fallen heroes and the families who continue to carry their legacy forward. 🇺🇸🩵🤍

05/22/2026

During AANHPI Heritage Month, we honor the resilience and lived experiences of Asian and Pacific Islander cervical cancer patients, survivors, and thrivers.

Our upcoming Cervivor Asian & Pacific Islander Meetup is a place to be seen, supported, and celebrated.

📅 May 26, 2026
🕖 7 PM ET / 4 PM PT
📍 https://cervivor.org/events/cervivor-asian-pacific-islander-meetup-2/

You belong here.

05/20/2026

Today is National Clinical Trials Day, and we need to talk about something our community doesn’t always hear enough about.

Clinical trials are how we get better treatments. They are how researchers figure out what actually works for all patients. And right now, there is a serious problem: too many trials still don’t include enough of us.

Black women are disproportionately affected by cervical cancer. They are diagnosed at higher rates. They die at higher rates. And yet, Black patients remain significantly underrepresented in the clinical trials that shape the treatments and guidelines used in everyday care.This example highlights a larger truth: inequities in research and access continue to drive preventable gaps in outcomes.

That has to change. And we are part of how it changes.

When we participate in clinical trials, we are not just helping ourselves. We are making sure that the next woman who sits in that chair who looks like us, who has our genetics, our biology, our history has access to a treatment that was tested with *her* in mind.

We know there is deep, generational mistrust of the medical system in our community. It is not unfounded. It is rooted in real history and real harm. Cervivor sees that. We hold that. And we believe that the answer is not silence — it is informed, supported, community-led engagement.

If you or someone you love has been affected by cervical cancer, we want you to know:
✅ Clinical trials are more accessible than most people think
✅ You have the right to ask questions and get answers before saying yes
✅ Participation is always voluntary — you are always in control
✅ Your story and your biology matter to the future of this disease

Drop a 🙋🏾‍♀️ if you have ever participated in a clinical trial, or share this post with someone in our community who needs to see it today.

🔗 Learn more at www.cervivor.org

05/19/2026

It’s ! 🩵🤍

This Asian American, Native Hawaiian, and Pacific Islander (AANHPI) Heritage Month, we’re turning up the volume on cervical cancer awareness and celebrating the incredible strength within our beautifully diverse communities.

Meet Natasha. Diagnosed with Stage III cervical cancer at just 30 years old, she went from being a busy homeschooling mother of three to fighting for her life through intense radiation and chemotherapy.

Today, she chooses to see her body not with insecurity, but with immense pride for its resilience.

Within AANHPI communities, cultural stigma, modesty norms, and medical gaslighting can lead to symptoms being dismissed or ignored.

Natasha is breaking that silence. Her message to women everywhere: “Listen to your bodies, and become the biggest advocate for your health.”

Read Natasha’s full, inspiring journey of survival, reclaiming her body confidence, and finding hope beyond cancer:
🔗 https://cervivor.org/stories/natasha2020/

Let’s end the shame, spread the education, and save lives. 🗣️✨

05/16/2026

Thanks for being a top engager and making it on to my weekly engagement list! 🎉

Carol Lacey, Davina Woolward, Kimberly Simmons Emory, Joy Geller Dyer, Glenda Cousar

05/14/2026

Your story has the power to change how care is delivered for those coming after us. The Insighters are looking for individuals living with cervical or endometrial/uterine cancer to participate in a confidential 1-on-1 research interview.

​By sharing your treatment journey, you help the medical community understand the real-world impact of these diagnoses.

​The Details:
​Format: 1-hour remote, confidential interview.
​Compensation: $150 for your time.

​Eligibility: If your cancer is recurrent, progressive, or was Stage 3-4 at diagnosis, and you have received systemic treatment.

​Apply here: https://theinsighters.com/opportunities/296?invitation_code=GQLHKWZNXV

05/13/2026

AAPI Heritage Month is a reminder that cervical cancer prevention must reflect the diversity, culture, and lived experiences of our communities.

In this video, Dr. Minjin Kim, a researcher and nurse scientist at the University of Cincinnati College of Nursing, speaks powerfully about the health disparities impacting Asian American women — including the cultural stigma, language barriers, and access gaps that can delay cervical cancer screening and HPV vaccination.

🎥 Watch the full clip:
https://youtu.be/T8yvz1oDDrI?si=Sg2fDW5_ObjxEpmD

Why this matters for AAPI communities:

Asian American women experience some of the lowest cervical cancer screening rates in the U.S., often due to cultural norms around modesty, stigma, or lack of culturally competent care.

Southeast Asian women face disproportionately higher cervical cancer mortality rates — a reflection of systemic inequities, not individual choices.

HPV vaccination and routine Pap/HPV testing can prevent nearly all cervical cancer cases, yet many APPI families lack access to trusted, culturally resonant information.

Community‑centered education, like Dr. Kim’s work, helps break silence and empower families to protect their health.

At Cervivor, we honor AAPI survivors, caregivers, clinicians, and researchers who are leading the way toward equity and elimination. Their voices guide our mission every day.

Share this video. Start the conversation. Protect our communities.