09/26/2026
NORD featured our very own Sarah S. for Rare Cancer Day! Below is what they wrote and her story:
Today is , a day devoted to shinning a light on the over 1 in 4 patients diagnosed with a rare cancer and the issues they face each day.
NORD recognizes rare cancers are among the more than 10,000 known rare diseases, of which fewer than 5% have treatments.
Read Sarah's story about her experience living with neuroendocrine cancer of the appendix, volunteering with the Abdominal Cancers Alliance, and how she chooses hope without certainty each day: https://rarediseases.org/choosing-hope-without-certainty-sarahs-rare-cancer-story/