Therapies for Inherited Neuropathies - TIN

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Therapies for Inherited Neuropathies - TIN

Identifying and advancing research & therapies that bring solutions to CMT patients.

08/29/2026

Every swing brings us closer to answers for Charcot Marie Tooth disease. Join us at our major TIN Cup golf fundraiser and help fuel the research that can change lives for the 136,000 people in the U.S. and 3.2 million worldwide living with CMT.
Your support drives scientific progress, accelerates new therapies, and brings hope to families everywhere. Make your impact today — the future of CMT research depends on all of us.

08/08/2026

Congratulations to one of TIN’s newest research partners, Dr. Beverly L. Davidson, on receiving the American Society of Gene and Cell Therapy (ASGCT) Outstanding Achievement Award, the society’s highest honor.
Dr. Davidson serves as Director of the Raymond G. Perelman Center for Cellular and Molecular Therapeutics, Chief Scientific Strategy Officer at Children’s Hospital of Philadelphia (CHOP), and Professor of Pathology and Laboratory Medicine at Penn Medicine.
She joins Dr. Brendan Zotter and Dr. Steven Scherer, in leading a TIN funded project titled “Improved Viral Targeting of Schwann Cells for Gene Therapy in Hereditary Neuropathies.” Their work aims to engineer AAV variants that more precisely target Schwann cells, improving both the safety and effectiveness of future gene therapies for CMT.
Explore this project and TIN’s other cutting edge research initiatives: https://tin-us.org/groundbreaking-new-tin-research-projects/

07/27/2026

Every step forward in Charcot Marie Tooth research starts with someone who chooses to care. Our major fundraiser the TIN CUP is officially 9 weeks away, and your support directly fuels the scientific breakthroughs that can change lives — improving mobility, strength, independence, and hope for people living with CMT.
If you’ve been waiting for the right moment to make a difference, this is it! Help accelerate the research families are counting on. Visit https://tin-us.org/cup

07/03/2026

Happy 4th of July from all of us at TIN! This weekend we celebrate our country! We are also celebrating the independence, resilience, and the amazing strength of our CMT community. Whether you are finding creative ways to get outside or spending a relaxing day with family, we wish you a safe and joyful holiday!

07/01/2026

Charcot-Marie-Tooth Disease (CMT) is a degenerative disease of the peripheral neuromuscular system for which there is no treatment. At we work to help improve the lives of people with CMT by only supporting research that translates into beneficial treatments and ultimately a cure for CMT!

Our 8th Annual CMT Golf Tournament Fundraiser is quickly approaching! We invite you to join us in our mission of funding projects with true promise of ACCELERATING ANSWERS FOR CMT PATIENTS!

To donate to or participate in our annual fundraising event visit https://tin-us.org/cup/

06/20/2026

BREAKING CMT NEWS
We’re excited to announce three groundbreaking new research projects focused on accelerating answers for people living with Charcot Marie Tooth disease. These innovative studies push beyond traditional approaches, targeting the biology of CMT in bold new ways — with the goal of improving mobility, strength, and quality of life for every patient. Find this exciting CMT research announcement @ Accelerating Answers for CMT Patients - Therapies for Inherited Neuropathies
Together with our scientific partners and supporters, we’re driving real progress toward treatments that matter.
Hope is not passive. Hope is research in motion.

05/22/2026

We are so proud to share that Dr. Robert Prior, TIN Board member and one who has many years of lived experience with Charcot Marie Toth disease (CMT) was recently celebrated as a laureate of the 2025 AstraZeneca Foundation awards for his work in advancing our understanding of (CMT), affecting more than 3.2 million people worldwide.

Consider a gift @ https://tin-us.org/donate to help Dr. Prior continue his work with TIN in helping us find solutions for CMT patients around the globe.

04/20/2026

National DNA Day is this Saturday April, 25. This week we honor the advancements in genomics that have revolutionized Charcot-Marie-Tooth Disease research, detection, and treatment.

In honor of DNA Day, we’re spotlighting our TIN Research team's work in genetic research to advance us towards therapies and an eventual cure for CMT. Knowledge is power! Check out our amazing research projects at https://tin-us.org and consider a gift to help us continue our fight
https://tin-us.org/donate

03/17/2026

We here at Therapies for Inherited Neuropathies (TIN) are celebrating St. Patrick’s Day by celebrating all our supporters who graciously help us in our fight against Charcot-Marie-Tooth Disease.
This debilitating, medically incurable neuromuscular disease knows no age limits, and affects approximately 136,000 individuals in the United States & 3.2 million worldwide. A BIG THANK YOU FROM TIN!

02/09/2026

Topline Results from NMD’s Phase 2a Study of Ignaseclant with CMT patients!

TIN is inspired by the NMD Pharma results showing that patients receiving Ignaseclant (an investigational therapeutic compound) demonstrated consistent improvements in muscle strength, functional performance, and patient-reported outcomes.

Learn more @ https://tin-us.org/about/news/

Address

PO Box 5630
Baltimore, MD
21210

Website

https://tin-us.org/

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