Angelman Strong Upstate, SC

04/15/2026

✨ Don’t miss these fundraising incentives!! ✨

03/26/2026

Your Angelman Strong participation,fundraising efforts and support make an impact!💙

03/13/2026

Your Angelman Strong fundraising efforts are making a real and meaningful impact. Because of this incredible community, important advancements in Angelman syndrome research are happening right now—bringing us closer to better treatments and, one day, a cure.

Every dollar raised, every mile walked, and every story shared helps fuel the scientists, clinicians, and families who are working tirelessly to change the future for individuals living with Angelman syndrome.

From groundbreaking research studies to expanding clinical trials and increasing awareness around the world, your dedication is helping turn hope into progress.

Thank you for standing strong with us and continuing to move this mission forward. Together, we are making a difference. 💙

ASF-Funded Research Published!
New findings show that increasing overall UBE3A levels may improve many Angelman-related learning and behavioral challenges. This discovery is an encouraging insight for future gene therapies.

The study also found that seizures appear to be linked to one specific version of the UBE3A protein, helping explain why epilepsy in Angelman syndrome can be especially difficult to treat.

“The UBE3A gene makes a protein that comes in two different versions – one short form of UBE3A and one longer form. In our study, we explored how each version of UBE3A contributes to certain Angelman syndrome symptoms using a mouse model. We found that most symptoms could be improved with either version of the UBE3A protein. However, seizures associated with Angelman syndrome depended on only one specific version (the shorter form of UBE3A). This information is expected to guide future therapeutic development strategies.”
— Joe Krzeski, first author
UNC Chapel Hill, North Carolina

“Our study highlights the importance of restoring the appropriate versions of the UBE3A protein to address the full spectrum of Angelman syndrome symptoms. This has important implications for gene-therapy approaches aimed at reinstating one or both versions of the UBE3A protein.”
— Ype Elgersma, principal investigator
Erasmus University MC, Rotterdam

This ASF-funded work helps move the field toward smarter, more targeted therapies for the Angelman community.

Discoveries like this happen because of fundraising and participating in events like Angelman Strong. Every donation fuels ASF Funded Research. Thank you for making this happen!

See the published work here: https://www.nature.com/articles/s41380-026-03468-9

02/23/2026

We’re preparing to PARTY for Angelman Strong in North Carolina and this year we’re inviting families in Virginia and South Carolina to join us! We’ll be at Steel String Brewery at Pluck Farm on May 16 for the LARGEST Angelman Strong event in the southeast! And register your team today: https://support.angelman.org/event/2026-angelman-strong-nc-chapel-hill/e763301

https://www.facebook.com/share/v/1bdaJ6uPsS/

Send a message to learn more

02/10/2026

Don’t forget to register by Feb 15th to get a $5 discount. Use Discount Code - ASF

01/21/2026

Mark your calendars! Angelman Strong registration opens Feb 3rd! 💙💪🏻

Plan to join us in May for Angelman Strong! 🎉 Registration opens February 3. We can’t wait to come together as a community that shows up with strength, heart, and purpose.

Promo Code for $5 Discount: ASF

See details and list of 2026 locations: www.angelman.org/strong

Every step, every team, every story helps move the Angelman community forward.
Mark your calendar and get ready to go Angelman Strong 💪✨

01/08/2026

Registration is now OPEN for the ASF Family Conference! We hope you can join us in Colorado in July!!

Registration is officially OPEN for the 2026 ASF Family Conference! 🎉

From connection and learning to laughter and unforgettable moments together, the ASF Conference truly has something for everyone!

Register and join us for 3 unforgettable days in Colorado.

📌 Ga***rd Rockies Resort | Aurora, CO
📌 July 30 - August 1, 2026

Sessions will include topics like seizures, communication, behaviors, expert panels, research, and more! Full agenda to be announced at a later date.

Learn more and register today: https://asfconference.org/family-conference/

12/15/2025

Happy Holidays to you and your family from all of us at the ASF!

11/11/2025

Don’t miss this IPad giveaway for your loved one with AS, just in time for the holidays!

We're "teching the halls" through our second annual ASF Holiday iPad Giveaway! Thanks to our friends at LeadPost, iPads with durable cases will be gifted to individuals with Angelman syndrome (US only).

👉 Deadline to enter: November 18, 2025
👉 Must have completed the ASF Contact Registry - https://sholink.to/registry
👉 Those who received an iPad last year, are not eligible

Enter to win: https://form.asana.com/?k=uLikt3wnHewyq9T5o2fI3w&d=1202851072486393

10/29/2025

Let’s celebrate your loved one with Angelman syndrome!🎉💙

Take a moment for a feel good! 💙💙

Check out the ASF Wall of Accomplishments to see the things individuals with Angelman syndrome are achieving every day.
Do you have an accomplishment to celebrate? Share a photo or video of your loved one with AS achieving a milestone, big or small.

Let's share reminders that show individuals with Angelman syndrome continuing to surprise, inspire, and achieve!

https://www.kudoboard.com/boards/MAoR86N7

10/01/2025

🚨 Two Applications Open Today! 🚨
Please note: families can only receive one of these opportunities.

✨ ASF Family Fund
Provides direct financial assistance for resources that improve quality of life for individuals with Angelman syndrome. From medical equipment to safety supports, this fund has helped hundreds of families access what they need most. Families will be notified within 8 weeks if approved.
👉 Apply here: [https://angelman.org/resources/asf-family-fund](https://angelman.org/resources/asf-family-fund)

✨ ASF Family Conference Scholarship
Covers registration & standard lodging so families can attend the 2026 ASF Family Conference—a life-changing event full of education, connection, and community. Families will be notified by December 14th if approved.
👉 Apply here: [https://asfconference.org/family-conference/ ](https://asfconference.org/family-conference/ )

Both of these programs are designed to make a tangible impact—whether by easing daily financial burdens or making it possible to attend the conference and be surrounded by the ASF community.

Two Applications Open Today! Please note, families can only receive one of these.

✨ The ASF Family Fund – financial assistance for resources that can improve quality of life for individuals with AS. Notified within 8 weeks if approved.
Apply here: https://angelman.org/resources/asf-family-fund

✨ The ASF Family Conference Scholarship – covers registration & standard lodging to help families attend the 2026 ASF Family Conference. Notified by December 14th if approved.
Apply here: https://asfconference.org/family-conference/