CdLS Foundation

CdLS Foundation This page is where people can connect with each other and the CdLS Foundation staff. We serve the United States in our office, but those outside of the U.S.
(2)

The CdLS Foundation provides a host of services that educate and unite families touched by this little-known genetic syndrome. Each day, we enlist the support of hundreds of dedicated volunteers throughout the United States, as well as the expertise of professionals from the fields of genetics, medicine, education, psychiatry, and more, in our effort toward advancing both societal and scientific u

nderstanding of CdLS. can find more information and contacts by visiting http://www.cdlsworld.org/xwiki/bin/view/Main/WebHome. The CdLS Foundation does not discriminate based on the basis of race, color, religion, disability, national origin, genetic information, s*x (including pregnancy), age, s*xual orientation, gender (including gender identity and expression), marital status, protected veterans status, citizenship status or any other characteristic protected by applicable law.

Celebrate and join us in making the world a more inclusive place for LGBTQ+ families caring for a child with CdLS.The ...
06/04/2026

Celebrate and join us in making the world a more inclusive place for LGBTQ+ families caring for a child with CdLS.
The CdLS Foundation continues to work towards a brighter future for all.
Together, let's foster acceptance, love & kindness!

Thank you to Joanne B. and her friends for hosting a basket-weaving fundraiser for International CdLS Awareness Day; it ...
06/03/2026

Thank you to Joanne B. and her friends for hosting a basket-weaving fundraiser for International CdLS Awareness Day; it was a great success! Everyone had fun and made a beautiful basket. They discussed CdLS, and attendees asked thoughtful questions. In addition to the basket, everyone went home with CdLS informational materials and a copy of Reaching Out. They raised a total of $250 for the Foundation.

Thank you so much for raising awareness and funds for the CdLS Foundation!

If you would like to host a similar event, please contact Lisa Schroeder at [email protected] or 860.899.1227.

Dance the night away! Do you have prom 2026 photos to share? Send them our way! Whether your loved one with CdLS attende...
06/02/2026

Dance the night away! Do you have prom 2026 photos to share? Send them our way! Whether your loved one with CdLS attended the big night, or posed in photos - we want to see them!
Share them by clicking the link then clicking the action - "prom photo" - http://CdLSFoundation.memfox.io/submityourphotos

Don't miss these family gatherings! 💜Find out more information on our website, or email our Family Services Team - famil...
06/01/2026

Don't miss these family gatherings! 💜
Find out more information on our website, or email our Family Services Team - [email protected]

Let's celebrate AANHPI Heritage Month! 🎉Asian American and Native Hawaiian/Pacific Islander Heritage Month has a special...
05/29/2026

Let's celebrate AANHPI Heritage Month! 🎉

Asian American and Native Hawaiian/Pacific Islander Heritage Month has a special place in our hearts and history, having been first declared in 1977 by lawmakers from New York and Hawaii. It was chosen to honor the contributions of Asian American immigrants and commemorate their arrival in 1843 and the completion of the Transcontinental Railroad in 1869.

You may have seen our web and social media series about individuals with CdLS. These stories are inspiring, relatable, a...
05/29/2026

You may have seen our web and social media series about individuals with CdLS. These stories are inspiring, relatable, and educational to our families.
Join us in sharing your unique experience. All ages welcome!
*Submit photos and a write-up here - http://CdLSFoundation.memfox.io/jqyojh

*By sending in your photos, vidoes, and/or story, you permit the CdLS Foundation to use your content on social media, future publications, videos, and/or on the Foundation's website.

Address

30 Tower Lane, Suite 400
Avon, CT
06001

Opening Hours

Monday 8:30am - 5pm
Tuesday 8:30am - 5pm
Wednesday 8:30am - 5pm
Thursday 8:30am - 5pm
Friday 8:30am - 5pm

Telephone

+18007532357

Website

Alerts

Be the first to know and let us send you an email when CdLS Foundation posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to CdLS Foundation:

Shortcuts

Share

Category