www.teamtylerallman.com
Tyler was once just like any of your children. He could read, write, play with his friends and enjoy all that life had to offer. That was until Tyler was diagnosed in June of 2009 with Batten Disease. Batten Disease is a neurodegenerative disorder that is fatal. Tyler is missing an enzyme that takes all of the bad proteins out of his brain, therefore the proteins have now
here to go and it is slowly killing his brain. This in turn has caused Tyler to become blind, suffer from seizures, as well the loss of his fine and gross motor skills. Tyler was a natural athlete and had hopes and dreams of being a business man like his dad. Batten Disease has taken all of Tyler's hopes and dream and smashed them. Batten Disease affects only 500 children in the United States and 1,200 Worldwide. Since there are so few affected, Federal Funding is sparse. It is up to us as his parents, family and friends to help slow or stop progression and ultimately find a cure. I work closely with Beyond Batten Disease Foundation and there IS hope! Because of the promising hope we cannot stop in our efforts to spread awareness like wild fire so we can BURN Batten! Every penny counts and will help us in our mission. Beyond Batten Disease Foundation (BBDF) is a 501(c)(3) and Tyler has a direct site in his honor to donate with all proceeds going to research. Please visit www.beyondbatten.org. We will also use this page as a place for you to follow along in Tyler's fight against Batten's and our mission to raise funds to help eradicate Batten Disease for ALL children. We will also use this page as a positive place to support Tyler and for you to follow and see what an amazing, strong-willed and loving child that Tyler is. Tyler has Juvenile Batten Disease which puts his life span at late teens to early 20's. Tyler is now 11...we have to fight hard; plain and simple. We thank you for your support! Love, Royer, Heather, Tyler and Ryan
