Ben's Friends Patient Communities

06/06/2026

Welcome to Ben's Friends 🦋
You've found a safe place. Ben's Friends is a nonprofit network of free, peer-to-peer support communities for people living with rare diseases and chronic illnesses — and the caregivers and families who love them. We have 35+ communities covering conditions from Addison's Disease to Von Willebrand's Disease, Chiari Malformation to Lupus, Narcolepsy to Traumatic Brain Injury — and many more. We are run by patients, for patients. Every community is moderated by real people who have been where you are. "I have the disease. It doesn't have me." 👉 Find your community: bensfriends.org/communities 💙 Donate to keep our communities free: donate.bensfriends.org
🔗 bensfriends.org/communities

Community List Ben’s Friends Patient Communities for People with Rare Diseases Our Patient Communities Ben’s Friends is a network of safe and supportive patient communities for anyone affected by a rare disease or chronic condition. 33 Communities Listed Alphabetically Quick Navigation A 01 Addi...

02/19/2024

Caregiving provides a sense of fulfillment, but the ongoing demands of taking care of someone else coming to stress, weighr gain, lack of sleep, and isolation. That's why it's important for you to take car if yourself.
Check out these tips!

02/13/2024

Your friends & family may not get you.
But we do.
Check out our free, anonymous, PEER to PEER rare disease support communities.
No need to wait for a monthly meeting.

bensfriends.org/community-list/

02/06/2024

Do you experience pain in your extremities when exposed to cold temperatures?
Tingling?
Swelling?
Throbbing?

Join
livingwithraynaudsdisease.org

02/05/2024

It's February, which means we're officially closer to Rare Disease Day - the biggest event of the year in our calendar!

Did you know? There are 6000+ identified .

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02/02/2024

Most congenital heart defects are diagnosed during infancy, but some don't know they have defects until they develop symptoms as an adult.

Heart surgery can be complex. Recovery becomes more manageable when you have the right kind of emotional support
atrialseptaldefectsupport.org

01/09/2024

Former professional golfer and broadcaster, Karen Stupples needed hope and a resource. She reached out to another golfer who battled

We get it! Ben's Friends connects like-minded patients with the same disease or conditions, like Graves.

For Karen Stupples, the symptoms of Graves’ Disease came on nightmarishly fast at the start of 2023.

01/05/2024

Thank you to everyone who donated to Ben's Friends in 2023 and helped sustain emotional care for rare patients and their families ❤️🌺🌷

01/03/2024

What are your goals? We would love to hear!
Surround yourself with peers and providers that support you!

01/01/2024

Wishing you a year filled with laughter and endless possibilities!