Ben's Friends Patient Communities

02/19/2024

Caregiving provides a sense of fulfillment, but the ongoing demands of taking care of someone else coming to stress, weighr gain, lack of sleep, and isolation. That's why it's important for you to take car if yourself.
Check out these tips!

02/13/2024

Your friends & family may not get you.
But we do.
Check out our free, anonymous, PEER to PEER rare disease support communities.
No need to wait for a monthly meeting.

bensfriends.org/community-list/

02/06/2024

Do you experience pain in your extremities when exposed to cold temperatures?
Tingling?
Swelling?
Throbbing?

Join
livingwithraynaudsdisease.org

02/05/2024

It's February, which means we're officially closer to Rare Disease Day - the biggest event of the year in our calendar!

Did you know? There are 6000+ identified .

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02/02/2024

Most congenital heart defects are diagnosed during infancy, but some don't know they have defects until they develop symptoms as an adult.

Heart surgery can be complex. Recovery becomes more manageable when you have the right kind of emotional support
atrialseptaldefectsupport.org

01/09/2024

Former professional golfer and broadcaster, Karen Stupples needed hope and a resource. She reached out to another golfer who battled

We get it! Ben's Friends connects like-minded patients with the same disease or conditions, like Graves.

For Karen Stupples, the symptoms of Graves’ Disease came on nightmarishly fast at the start of 2023.

01/05/2024

Thank you to everyone who donated to Ben's Friends in 2023 and helped sustain emotional care for rare patients and their families ❤️🌺🌷

01/03/2024

What are your goals? We would love to hear!
Surround yourself with peers and providers that support you!

01/01/2024

Wishing you a year filled with laughter and endless possibilities!

12/27/2023

This holiday season, please join us in changing the lives of rare disease patients and their family.

Your $50 gift will give 500 patients comfort when they feel scared. bensfriends.org/subscription-page/

12/25/2023

On behalf of our entire community and the dedicated Ben's Friends team, a heartfelt THANK YOU for being a part of our journey.

Wishing you and your loved ones a joyful and festive holiday season!

12/24/2023

Here's to creating cherished memories and embracing the magic of the holiday season!