05/07/2026
As part of our 2026 monthly webinar series, the Wiskott-Aldrich Foundation continues to bring leading experts to speak directly with our global community of patients and families. For the May session, we are pleased to host Dr. Michael Albert who has kindly agreed to conduct the webinar on:
Management of Wiskott-Aldrich Syndrome is Changing: Understanding Today's Global Guidelines
This session is especially timely, as there are new global consensus guidelines for Wiskott-Aldrich Syndrome (WAS). These recommendations reflect a significant shift in how WAS is understood and managed—and we are committed to sharing this information early with our community.
Date: Saturday, May 23, 2026
Time: 11:00 AM – 12:00 PM EDT
Webinar focus:
The management of Wiskott-Aldrich Syndrome is undergoing important changes based on global consensus recommendations. Historically, treatment decisions were often guided by a narrower classification of disease severity, with clearer pathways primarily for the most severe cases. Today, a more nuanced understanding of WAS is shaping a broader, more individualized approach to care across the full disease spectrum.
In this session, Dr. Albert will provide an overview of how the approach to WAS is evolving, including:
* A new classification system for WAS that better reflects disease variability
* Updated HSCT guidelines for all patients, including both mild and severe forms of the disease
* Management of the untransplanted patient with WAS
New recommendations on which patients should be considered for gene therapy
* For the first time, the inclusion of mental health and psychosocial care guidelines as part of comprehensive WAS management
This webinar will help families understand what these changes mean in practice and how they may influence care decisions moving forward.
To register, please go to: https://forms.gle/UeycW6EvNbBxsq2ZA
You will receive the Zoom link a few days before the session.
Speaker:
Michael Albert, M.D.: Dr. Albert brings decades of experience in hematopoietic stem cell transplantation and caring for patients with primary immunodeficiencies. He previously served as Head of the Stem Cell Transplant Program in the Department of Pediatric Hematology/Oncology at Dr. von Haunersches Children’s Hospital, where he led clinical and research efforts in Wiskott-Aldrich Syndrome (WAS) and related disorders.
His work has contributed to several influential publications that have shaped the current understanding and treatment approaches for WAS. More recently, Dr. Albert transitioned to DKMS, as Pediatric Stem Cell Transplantation Expert where he is applying his extensive clinical and scientific expertise to support and expand transplant programs globally, with the goal of improving access to curative therapies for patients worldwide.
Moderator:
Prof. Fabio Candotti, Professor of Medicine at the University of Lausanne and Head Physician in Immunology and Allergy at Lausanne University Hospital, Switzerland. An internationally recognized expert in primary immunodeficiencies, his work has focused on Wiskott-Aldrich Syndrome, ADA deficiency, and gene therapy. Dr. Candotti is the Chairman of the Scientific Advisory Board of the Wiskott-Aldrich Foundation and has advised the foundation in all scientific matters for the past 17 years.
We encourage patients, caregivers, and family members to join us for this informative session and the opportunity to ask questions.
Who can attend:
This webinar is designed for and open only to patients, parents, and family members with Wiskott-Aldrich Syndrome and their families (participants should be over 18 years of age).
We hope you will be able to join us for this meaningful conversation.
How Does Registration Work?
Registered participants will receive an email several days before the meeting containing information about joining the meeting. The email will include a link on how to join the meeting and will include phone numbers where you can join by telephone.
Please RSVP by May 20 , 2026. If you have specific questions for the doctors, please enter them on the registration form.
There is no cost to attend.
REGISTER HERE: https://forms.gle/UeycW6EvNbBxsq2ZA
