Avery Huffman DIPG Foundation

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Avery Huffman DIPG Foundation

The Avery Huffman DIPG Foundation was established in 2016 to raise awareness and funds for research

The Avery Huffman DIPG Foundation was established in 2016 to raise awareness and funds for research to find a cure for Diffuse Intrinsic Pontine Glioma, to End DIPG and to honor the legacy of our hero, Avery Huffman.

06/01/2026

In May, we were once again honored to receive a donation from the Ridgefield Rumble 3.0.

For the second straight year, at their May 23, 2026 CrossFit Competition, East Ridgefield CrossFit, Ridgefield Rumble and the Draper family communities came together to honor Wyatt Draper—a courageous DIPG angel warrior from Washington—and raised an amazing $18,425 for DIPG research. 💛

Wyatt’s family, who live just a few hours south of where Avery grew up, first reached out to us last year, wanting to make a difference in the fight against DIPG in his memory.

Their love for their little Warrior Wyatt, along with the support and love from so many of their friends and family and supporters, once again brought both critical awareness and support to the fight against this devastating pediatric brain tumor.

Every rep, every donation, every show of support—it all matters.

In two years, East Ridgefield CrossFit, Ridgefield Rumble and the Draper family has raised $28,425 for DIPG medical research!

More about Wyatt from his mom, Sara:

Wyatt was diagnosed with DIPG at age 5 the summer of 2018, 8 months later, right before his 6th birthday he went home to his Heavenly Father. Wyatt truly represented a true warrior and hero. Watching the way he faced each day through his battle was inspirational. He battled each day ready for whatever the day would throw at him. Wyatt loved spending time with his family, surrounded by the people he loved most. He was often found playing pretend with his sister, giggling with his baby brother, playing with his dinosaurs, creating art projects or supporting his siblings at their activities. Wyatt always had a special light about him, always wanting to make others smile through his kindness and fun personality. His smile was contagious, and he instantly stole hearts.

05/17/2026

Diffuse Intrinsic Pontine Glioma, DIPG, is a rare terminal tumor of the brainstem that occurs almost exclusively in children.

DIPG occurs in the most delicate area of the brainstem (the pons), which controls many critical functions, including breathing and blood pressure. Its location, as well as the way it infiltrates normal brain tissue, makes it especially difficult to treat. It cannot be surgically removed. The disease is intertwined around all the delicate brain tissues that sustain life.

There are about 300-350 new cases of DIPG diagnosed each year in the United States alone, usually in children under the age of 10. More than 90 percent of children diagnosed with DIPG will die within 2 years of diagnosis, and most children will live only 9 months. Overall survival is less than 1%.

To make matters worse, the symptoms of the tumor, coupled with the only known palliative protocols out there to help try and temporarily lessen symptoms, are excruciatingly difficult on the child as the tumor interferes and slowly robs them of all essential bodily functions.

We do our best to convey the why behind our mission. Why we can’t settle for doing nothing, why we need the support of others, why your commitment to do something with us is so vital.

So today, this seventeenth day of Brain Tumor Awareness Month and declared “DIPG Awareness Day,” we ask you to dig deep about how you can help.

Awareness requires action and action brings us closer to finding a cure so there are no bad days for children and families facing this disease. Awareness with action brings funding for the critical research that is so desperately needed.

05/05/2026

- Brain Tumor Awareness Month

Inverted eye.  Double vision.  Fatigue.  Dizziness.  Loss of mobility.  Loss of independence.  Full right-side paralysis.  Incontinence.  Severe steroid-induced weight gain.  Mood swings.  Body changes.  Severe, debilitating headaches.  Experimental drugs.  Vomiting.  Needles and pokes.  Countless MRIs and CT scans.  Hospital stays.  Constant nausea.  Brain surgeries.  Head shaves and patches of lost hair.  Softening of the voice.  Stretch marks and thinning skin.  Hearing loss.  Inability to move eyes side to side.  Drooling.  Full body paralysis.  Loss of swallowing.  Loss of eating.  Loss of speaking.  Loss of breathing.  Loss of living.  Loss of…everything…

These are just some of the symptoms of DIPG (Diffuse Intrinsic Pontine Glioma), all of which our Avery experienced in her fight.  In fact, she never saw any improvement with radiation, no “honeymoon period,” just a growing list of rapidly increasing symptoms.  We could see the level of severity of her tumor for ourselves as we painfully watched her rapid decline over a 7.5-month period.

We need you.  Our kids need you.  Awareness with action.  Join our fight.

https://averystrongdipg.org/donate

04/24/2026

It was wonderful to be back in Washington and joined by so many friends and family at the annual City of Auburn’s Clean Sweep, where we cleaned up Avery’s Playground at Lakeland Hills Park.

Thanks to our crew of volunteers, we painted the park benches, the tables at the BBQ area, weeded, distributed fresh bark, picked up garbage and extended the rock path drainage area right next to the playground and Avery’s sign.

Thank you to all who helped volunteer and make Avery’s Playground beautiful again!

02/24/2026

Our little cutie pie loved herself raw broccoli. Can’t say that about most young children, that’s for sure! Avery always kept us guessing and marched to the beat of her own drum. We miss her in every moment and we love her forever.

02/16/2026

Ten years ago today, at 11:11 a.m. on February 16, 2016, our 7-year old daughter Avery, took her final breath on earth. A decade later, she continues to inspire and impact while bringing hope and we continue to honor her and fight back against childhood brain cancer and DIPG. Loved, missed, but never forgotten
Read more: https://averystrongdipg.org/blog/february-16-2026-the-ten-year-mark-of-averys-passing

01/13/2026

January holds a lot of very difficult memories for us— those final weeks of Avery’s earthly life were filled with a lot of suffering. I wanted to share this sweet candid video from “before.” Before brain cancer came to know us all. Before. When joy was so easy to find (and see) in us all. The delicate and simple “before. “ In this short clip from January 2012, the kids are enjoying a new Christmas gift from Gpa— their own at home karaoke machine! Avery, at just 3 years old, really got into her turn singing a cute version of “Twinkle, Twinkle Little Star. “ It showcases her s***k, her creative spirit and her desire to do it all herself— traits we have always adored. Oh how we miss her here! But…how very thankful we are that she is healed and made perfect now in heaven. We love and miss her in everything.

12/25/2025

Merry Christmas from the Avery Huffman DIPG Foundation.

Thank you to all who continue to support us in our fight to and honor our hero.

A message from Avery, with Hoppy Jumpy, from her last Christmas, ten years ago, in 2015.

12/15/2025

Tonight at 7pm, families around the world will pause for Worldwide Candle Lighting Day, joining together in a wave of light to honor and remember children gone too soon—alongside

This is a sacred hour for grieving families everywhere, for the parents and siblings carrying love that never fades. We invite you to light a candle tonight in memory of a child you love, and to stand with all those whose hearts are forever changed.

Tonight, our candle burns for our precious daughter, Avery. For her joy and s***k, her tender heart, her giggles and songs, and her deep love of life. Oh, how we miss her. We also light our candle for every beautiful child who is forever loved and remembered—taken far too soon, but never forgotten.

Our family tree continues to glow throughout this month in Avery’s honor, a reminder that her light lives on in every moment.

We miss you, Aves. We love you forever. We will NEVER forget.

12/02/2025

Giving Tuesday (December 2) continues our “End of the Year 2025” giving campaign. Join with us on this national day of giving!

By donating to Avery Huffman DIPG Foundation, you are part of creating hope for kids facing this devastating cancer.

Raise awareness and funds for research to find a cure for Diffuse Intrinsic Pontine Glioma (DIPG) and honor our hero and inspiration, Avery Huffman, who battled DIPG with brAvery and was always

We are so thankful for your ongoing support. It means the world to our family — and to all families who have confronted this horrific disease.

Donate, share, invite your friends, and know that you are making a difference. Thank you for standing with us in the fight.

Visit our website for more details: https://averystrongdipg.org/blog/giving-tuesday-2025

Address

1402 Lake Tapps Pkwy SE Ste F104, Box #439
Auburn, WA
98092

Website

http://www.averystrongdipg.org/

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