Ride For John

Ride For John Heard of Ataxia? No, it’s not a foreign cab. It’s a group of often fatal, degenerative neurological disorders. Approximately 150,000 people

02/27/2026
11/18/2025


U.S. Food and Drug Administration Dr. Marty Makary

10/19/2025

10/17/2025

Dana has embraced a remarkable challenge: a 26-mile hike through the Grand Canyon dedicated to raising awareness and vital funds for ataxia research. Having lived with ataxia for 20 years, I understand the daily struggles it brings, fundamentally changing our lives. It's changed my life with my two boys, now adults, from playing catch to riding a wave. On October 8th, we’ll also celebrate 37 wonderful years of marriage.

Dana has been rigorously training for this extreme hike for over three months. She has devoted her weekends to long walks and hit the gym three times a week, investing countless hours in researching the best equipment, shoes, and planning her food, water, and clothing for the journey ahead.

She’ll be hiking alongside 17 others, setting off at 3 a.m. with headlamps lighting their way. It’s expected to take about six hours to reach the canyon's bottom and another seven to eight hours to climb back up, so this trek is labeled extreme.

I have felt fortunate since I began dating Dana and throughout our marriage. She is the most humble and caring person I know. She took on this challenge without hesitation, and I couldn’t be prouder of my wife and best friend.

Dana will wear seven ribbons, each representing a close friend we’ve lost to ataxia (SCA). I take comfort in knowing they’ll be with her, watching over her as she undertakes this extreme journey.

Her courage is truly an inspiration to me and to the entire ataxia community. You can follow Dana's adventures and amazing photos and subscribe to her blog. https://8thwonder.blog

Ataxia is like a thief. It keeps taking until there’s nothing left to take.

Dana has embraced a remarkable challenge: a 26-mile hike through the Grand Canyon dedicated to raising awareness and vital funds for ataxia research. Having lived with ataxia for 20 years, I understand the daily struggles it brings, fundamentally changing our lives. It's changed my life with my two boys, now adults, from playing catch to riding a wave. On October 8th, we’ll also celebrate 37 wonderful years of marriage.

Dana has been rigorously training for this extreme hike for over three months. She has devoted her weekends to long walks and hit the gym three times a week, investing countless hours in researching the best equipment, shoes, and planning her food, water, and clothing for the journey ahead.

She’ll be hiking alongside 17 others, setting off at 3 a.m. with headlamps lighting their way. It’s expected to take about six hours to reach the canyon's bottom and another seven to eight hours to climb back up, so this trek is labeled extreme.

I have felt fortunate since I began dating Dana and throughout our marriage. She is the most humble and caring person I know. She took on this challenge without hesitation, and I couldn’t be prouder of my wife and best friend.

Dana will wear seven ribbons, each representing a close friend we’ve lost to ataxia (SCA). I take comfort in knowing they’ll be with her, watching over her as she undertakes this extreme journey.

Her courage is truly an inspiration to me and to the entire ataxia community. You can follow Dana's adventures and amazing photos and subscribe to her blog. https://8thwonder.blog

Ataxia is like a thief. It keeps taking until there’s nothing left to take.

Dana has embraced a remarkable challenge: a 26-mile hike through the Grand Canyon dedicated to raising awareness and vital funds for ataxia research. Having lived with ataxia for 20 years, I understand the daily struggles it brings, fundamentally changing our lives. It's changed my life with my two boys, now adults, from playing catch to riding a wave. On October 8th, we’ll also celebrate 37 wonderful years of marriage.

Dana has been rigorously training for this extreme hike for over three months. She has devoted her weekends to long walks and hit the gym three times a week, investing countless hours in researching the best equipment, shoes, and planning her food, water, and clothing for the journey ahead.

She’ll be hiking alongside 17 others, setting off at 3 a.m. with headlamps lighting their way. It’s expected to take about six hours to reach the canyon's bottom and another seven to eight hours to climb back up, so this trek is labeled extreme.

I have felt fortunate since I began dating Dana and throughout our marriage. She is the most humble and caring person I know. She took on this challenge without hesitation, and I couldn’t be prouder of my wife and best friend.

Dana will wear seven ribbons, each representing a close friend we’ve lost to ataxia (SCA). I take comfort in knowing they’ll be with her, watching over her as she undertakes this extreme journey.

Her courage is truly an inspiration to me and to the entire ataxia community. You can follow Dana's adventures and amazing photos and subscribe to her blog. https://8thwonder.blog

Ataxia is like a thief. It keeps taking until there’s nothing left to take.

Dana has embraced a remarkable challenge: a 26-mile hike through the Grand Canyon dedicated to raising awareness and vital funds for ataxia research. Having lived with ataxia for 20 years, I understand the daily struggles it brings, fundamentally changing our lives. It's changed my life with my two boys, now adults, from playing catch to riding a wave. On October 8th, we’ll also celebrate 37 wonderful years of marriage.

Dana has been rigorously training for this extreme hike for over three months. She has devoted her weekends to long walks and hit the gym three times a week, investing countless hours in researching the best equipment, shoes, and planning her food, water, and clothing for the journey ahead.

She’ll be hiking alongside 17 others, setting off at 3 a.m. with headlamps lighting their way. It’s expected to take about six hours to reach the canyon's bottom and another seven to eight hours to climb back up, so this trek is labeled extreme.

I have felt fortunate since I began dating Dana and throughout our marriage. She is the most humble and caring person I know. She took on this challenge without hesitation, and I couldn’t be prouder of my wife and best friend.

Dana will wear seven ribbons, each representing a close friend we’ve lost to ataxia (SCA). I take comfort in knowing they’ll be with her, watching over her as she undertakes this extreme journey.

Her courage is truly an inspiration to me and to the entire ataxia community. You can follow Dana's adventures and amazing photos and subscribe to her blog. https://8thwonder.blog

Ataxia is like a thief. It keeps taking until there’s nothing left to take.

U.S. Food and Drug AdministrationNational Ataxia Foundation

September 25th is International Ataxia Awareness Day, a special day for global awareness of ataxia.U.S. Food and Drug Ad...
09/16/2025

September 25th is International Ataxia Awareness Day, a special day for global awareness of ataxia.
U.S. Food and Drug Administration Dr. Marty Makary

Awareness video on how International Ataxia Awareness Day is recognized.

09/14/2025

SCA is a devastating and fatal disease. Patients urgently need access to a treatment. Troriluzole is under review - we must urge FDA to approve Troriluzole now!

Please repost/like/share/comment on Cameryn’s story and tag U.S. Food and Drug Administration and Dr. Marty Makary. The community needs to come together now more than ever!

09/10/2025
She was the first in her family to undergo testing
06/10/2025

She was the first in her family to undergo testing

Curious, knowledgeable wife of an Ataxian. My mission is to share reputable Ataxia information in short, simple, digestible servings. I want the world to become acquainted with Ataxia and the way it

challenges of daily life with ataxia
06/10/2025

challenges of daily life with ataxia

Jennifer Perry shares her experience with Spinocerebellar Ataxia (SCA3), a hereditary condition found in her family. Diagnosed in 2011, she was the first in ...

05/08/2025
05/01/2025

We need your help!
NAF recently published a petition on Change.org urging the FDA to consider treatment options for rare diseases with unmet needs, including spinocerebellar ataxia (SCA). NAF is hoping to reach a wide audience to increase awareness of SCA and reach congress members to bring to their attention the urgency of making treatment options available for the 15,000 people in the U.S. who are affected by this disease.

As such, I’d like to ask for your support in signing and sharing this petition. Together, we can amplify our voices and push for real change, and your signature can help make a real difference in the lives of those affected by SCA.

Please find the petition here: Urging FDA to Consider Treatment Options for Rare Diseases with Unmet Needs, including SCA

https://chng.it/g9ctYh2ksQ

https://www.change.org

Address

30 Goulding Drive
Auburn, MA
01501

Alerts

Be the first to know and let us send you an email when Ride For John posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Ride For John:

Share