Cancer is the leading cause of death by disease in children. Ewing sarcoma is the second most common bone cancer in children. Fast Facts – Ewing Sarcoma is:
Nasty: It can occur in any bone. Surgery, often amputation or bone removal, is the preferred method of removing the tumor. Another option is radiotherapy when surgery is not possible. Many patients have a combination of both treatments. Agg
ressive: It seeds itself throughout the body. Successful treatment requires over 50 days of harsh chemotherapy in the best circumstances. Without chemotherapy, the survival rate is less than 10%. Relentless. It requires constant vigilance. A person who is declared NED (No Evidence of Disease) must have multiple CT, PET, and MRI scans each year for the next five years. Relapses are common. Ewing sarcoma is considered a pediatric cancer. But it can occur at any age. The overall odds of occurrence are 1 in 1.5 million. A more detailed analysis indicates the following:
Odds of Occurrence
Age 1 – 20 3 per million
Age 20 – 30 1 in 50 million
Age 30 – 40 1 in 100 million
Over 40 1 in 200 million
The Ewing Sarcoma Coalition is dedicated organization raising awareness and providing educational resources for those affected by Ewing sarcoma. Our Mission
Community building. We are creating a support network for patients, families, and friends. Awareness campaigns to highlight Ewing sarcoma. With awareness come funds for research. Resources for those battling Ewing sarcoma. Providing assistance in a time of need. Education is central to everything we do. Our goal is to educate the public, patients, and caregivers. Awareness = Research = Cure
Our Goals
Provide educational materials about Ewing sarcoma both online and at the place of treatment. Build a network of medical professionals to collaborate in treatment of this rare cancer. It is not uncommon for an oncologist to have never treated a case. Organize support groups to allow patients, caregivers, and medical professionals to come together face-to-face. Educate the public about Ewing sarcoma. The first most people hear of this disease is when they are informed by their doctor their child has bone cancer. With awareness comes research, which hopefully results in a cure. Currently, Ewing sarcoma is being treated with the same protocols from 40 years ago.
