PDSA-Atlanta ITP Support Group

PDSA-Atlanta ITP Support Group The PDSA-Atlanta ITP Support Group is part of the PDSA: Platelet Disorder Support Association.

We support those persons in Atlanta and surrounding areas with ITP and other blood disorders.

02/11/2024

We want to hear from YOU! If you think a study examining the experiences and outcomes of patients on a second-line treatment for the first time would be important for ITP patients, leave a comment below! ⬇️

03/15/2020

ITP patients who have had a splenectomy are not predisposed to getting the COVID-19 virus. However, they might have trouble handling certain bacterial infections which might happen as a complication after a COVID-19 infection. That is why patients without spleens are encouraged to make sure they are up to date with their three vaccines: H influenzae (this is not the flu vaccine), Pneumococcus, and N meningitis.

IMPORTANT INFO FOR SPLENECTOMIZED PATIENTS:
In general, the most common cause of an overwhelming blood stream infection after one has had a splenectomy is from pneumococcus, which is a type of strep. The best way to prevent, avoid and treat it are:
1. Get the pneumococcal vaccine every five years and check the response to it by having blood sent for antibody levels
2. Always have antibiotics available at home so if anything happens they can be started immediately
3. Plan to go to the emergency room immediately at any time there is a fever of 101 degrees or higher no matter how you feel. Do not wait to see if the fever responds to Tylenol and do not wait until the morning. If the fever happens at 3 a.m. you should be leaving home at 3:05 a.m. You will need to have a thermometer on hand and should take your temperature whenever you feel ill even if you do not feel very warm. Ideally, when you get to an emergency room, a blood culture would be done, a blood count would be drawn, your blood pressure and other things like your temperature, pulse, respiration (breathing) rate would be assessed and ideally you would get an antibiotic such as ceftriaxone right away. After that you need to be observed.

Some physicians recommend antibiotic prophylaxis to be taken daily for life after splenectomy and that’s usually penicillin.

As part of our ongoing commitment to the ITP community, PDSA will continue to provide helpful information to our patients and caregivers on COVID-19 and it’s potential to affect ITP patients.

Please share this information and help us educate the greater community, alleviate anxieties and ensure the safety of all. Visit PDSA.org for the latest developments and information.

03/12/2020

Hi, everyone. Unfortunately, the March 21st Atlanta meeting has been canceled. Please see explanation below:

With the recent incidents of COVID-19 expanding in the US and the CDC warning individuals to avoid hospital settings if they are not currently sick, we have made the decision to cancel our ITP support group meeting.

We will continue to monitor the situation and provide information to our patients and caregivers on COVID-19 and how it might affect ITP patients. Please continue to check the PDSA website, page and other communications from PDSA.

As always, we are here for you should you have a question or concern, so please contact the PDSA office at 877-528-3538 (toll free) or email us at [email protected].

We apologize for this inconvenience and we thank you for your understanding as we take appropriate precautions to ensure the health and safety of our PDSA members.

02/28/2020

******************MEETING CANCELED!!!************************
******Atlanta ITP SUPPORT GROUP MEETING-March 21, 2020******

CONNECT WITH OTHERS NAVIGATING LIFE
WITH IMMUNE THROMBOCYTOPENIA

DATE:
Saturday, March 21, 2020

TIME:
1:00PM to 2:00PM

PLACE:
The Copper Coin
400 Chambers Street
Woodstock, GA 30188

Food and drink available for purchase.

A meeting for patients, caregivers and families,
driven by patients, caregivers and families.

RSVP REQUESTED:
LOW RESPONSE MAY RESULT IN MEETING CANCELLATION
Facilitator: Joan Coppolino
PHONE:
770-924-2258 (leave message)
EMAIL:
[email protected]

Sponsored by the Platelet Disorder Support Association.
No charge to attend.
Open to patients, caregivers, families, friends and health care providers.

EDUCATION. ADVOCACY. RESEARCH. SUPPORT.
The foundation on which PDSA was built.
It's what we care deeply about, how we connect with patients and the ITP community, and how we empower people with ITP. Together, with PDSA members, we can continue to drive public policy, develop new treatment options, fund research and improve the lives of individuals affected by ITP
and other platelet disorders.

Be Empowered - Join the Movement
Become a PDSA Member today!

07/10/2019

Hi, everyone! The PDSA Atlanta ITP Support Group is currently looking for a new facilitator. If you are interested, please contact Jody Shy at the PDSA:

Jody Shy
[email protected]

or contact PDSA, (877) 528-3538

02/26/2018

NEXT MEETING:
Saturday, March 24, 2018
****THERE WILL BE A SPEAKER!!! Read on for more!****

TIME:
11:15 am to 12:45 pm

PLACE:
Mountain View Regional Library
3320 Sandy Plains Road
Marietta, GA 30066
770-509-2725

A meeting for patients, caregivers and families,
driven by patients, caregivers and families.

SPEAKER:
Ana G. Antun, MD
Winship Cancer Institute of Emory University
Department of Hematology and Oncology
Emory University Hospital Midtown

Light refreshments provided

RSVP REQUESTED:
Facilitator: Joan Coppolino
EMAIL:
[email protected]

10/17/2017

REMINDER-Next meeting this Saturday! See post below for more info.

09/21/2017

*****NEXT ATLANTA MEETING!!! OCTOBER 21, 2017*****

Please Join Us!

DATE:
Saturday, October 21, 2017

TIME:
11:15AM-12:45PM

LOCATION:
Mountain View Regional Library
3320 Sandy Plains Road
Marietta, GA 30066
770-509-2725

Facilitator: Joan Coppolino
[email protected]

RSVP Requested:
Email: [email protected]

Light refreshments provided

05/24/2017

*******NEXT MEETING-Saturday, June 24, 2017*******

Please Join Us!

TIME:
11:00AM-12:00PM

LOCATION:
Mountain View Regional Library
3320 Sandy Plains Road
Marietta, GA 30066
770-509-2725

Facilitator: Joan Coppolino
[email protected]

GUEST SPEAKER:
Mimi Siami
Nutrition and Immune System

RSVP Requested:
770-924-2258 or email: [email protected]

Light refreshments provided
Shortened meeting discussion prior to Guest Speaker arrival

The Atlanta GA Area ITP Support Group is associated with
PDSA, 8751 Brecksville Road, Suite 150, Cleveland, OH 44141
Toll free 877-528-3538, FAX 1-844-270-1277
Email [email protected]

03/02/2017

Hi, all. I had just posted that there would be a meeting later in March but it has been cancelled. Sorry about that!

10/12/2016

********NEXT MEETING********

DATE:
Saturday, November 12, 2016

TIME:
12:15 p.m. - 1:45 p.m.

LOCATION:
Mountain View Regional Library
3320 Sandy Plains Road
Marietta, GA 30066
(770) 509-2725

RSVP:
Facilitator: Joan Coppolino
[email protected]
Contact Joan at (770)

The Atlanta GA Area ITP Support Group is associated with
PDSA, 8751 Brecksville Road, Suite 150, Cleveland, OH 44141
Toll free 877-528-3538, FAX 1-844-270-1277
Email [email protected]

OUR STRENGTH IS IN OUR MEMBERSHIP

With the help of our members and supporters, PDSA will move forward with renewed commitment toward raising awareness and educating patients, family members, friends and medical professionals about ITP. PDSA will continue to encourage and support the development of research into the causes of ITP and of safe, effective treatments for all.

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Atlanta, GA

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