Down Syndrome Pregnancy

Down Syndrome Pregnancy We provide support and information to families awaiting the birth of a baby with Down syndrome. We are ready to support them.

We help expectant parents in the journey from diagnosis to delivery. An increasing number of members of the Down syndrome community receive a prenatal diagnosis.

📚 20% OFF Lettercase & Down Syndrome Pregnancy resources! October is Down Syndrome Awareness/Acceptance Month, and we're...
10/01/2026

📚 20% OFF Lettercase & Down Syndrome Pregnancy resources!

October is Down Syndrome Awareness/Acceptance Month, and we're celebrating with 20% off Lettercase and Down Syndrome Pregnancy books and resources through October 31!

Our balanced, up-to-date, and medically reviewed resources support families and healthcare professionals navigating a Down syndrome diagnosis, with resources available in multiple languages.

Purchasing printed resources helps us send free resources to families, develop training for healthcare providers, carry out meaningful research, and advocate for disability justice.

❤️ Shop the sale: LettercaseBooks.org

Our resources are also available for free online through Lettercase.org and DownSyndromePregnancy.org!

Beyond creating resources for families, Lettercase and Genetic Support Foundation also provide lectures for genetic coun...
09/24/2026

Beyond creating resources for families, Lettercase and Genetic Support Foundation also provide lectures for genetic counselors and other healthcare providers on important topics, including:

❤️ Disability history, justice, and health equity
❤️ How to sensitively deliver a diagnosis based on family experiences and preferences
❤️ Resources to improve health outcomes for people with disabilities

Last year, we trained over 300 healthcare providers and 140 students across 12 genetic counseling and disability studies programs!

Your support helps us continue providing these important educational opportunities and advancing more inclusive, equitable healthcare for people with Down syndrome and other conditions.

Please consider donating today to support our lectures: GeneticSupportFoundation.org/donate

🎉 We're thrilled to celebrate an exciting new chapter for Dr. Stephanie Meredith!On September 1, Stephanie began a one-y...
09/17/2026

🎉 We're thrilled to celebrate an exciting new chapter for Dr. Stephanie Meredith!

On September 1, Stephanie began a one-year fellowship in Washington, DC, as a Joseph P. Kennedy, Jr. Foundation Public Policy Fellow. Through her fellowship placement with the U.S. Senate Finance Committee, Stephanie will focus on Medicaid and Home and Community-Based Services (HCBS) waivers.

These policies have a significant impact on people with disabilities and their families, and Stephanie is bringing her decades of experience in disability advocacy and family support to this important work.

While Stephanie is spending the year in DC, she remains deeply connected to the communities and families she serves through Lettercase and Down Syndrome Pregnancy. We are so proud of her and excited to see the impact she will make in this new role! 💙

Happy Grandparents Day! Today, we're highlighting "Your Loved One Is Having a Baby with Down Syndrome," a book for grand...
09/13/2026

Happy Grandparents Day! Today, we're highlighting "Your Loved One Is Having a Baby with Down Syndrome," a book for grandparents, family members, and friends who are welcoming a new baby with Down syndrome.

Learning that a loved one is expecting a baby with Down syndrome can bring questions, uncertainty, and emotions. This book offers information and perspective to help you navigate those first reactions, better understand Down syndrome, and feel prepared to welcome the new baby into your family.

💙 Read online for free: DownSyndromePregnancy.org/book/your-loved-one

💙 Purchase a printed copy: LettercaseBooks.org

Si ou fèk aprann ke tibebe w la gen Trizomi 21, ou pa poukont ou.Liv Konprann Dyagnostik Trizomi 21 nou an disponib koun...
09/03/2026

Si ou fèk aprann ke tibebe w la gen Trizomi 21, ou pa poukont ou.

Liv Konprann Dyagnostik Trizomi 21 nou an disponib kounye a an kreyòl Ayisyen. Resous fyab sa a bay enfòmasyon ekilibre ak ajou sou Trizomi 21.

❤️ Kòmande yon kopi enprime lè w vizite LettercaseBooks.org.

❤️ Li liv konplè nou an sou entènèt gratis nan UnderstandingDownSyndrome.org (klike sou ikòn glòb ki nan kwen anwo dwat la pou chanje lang).

Tanpri pataje resous sa a pou ede plis fanmi jwenn aksè a enfòmasyon ki egzak e ki montre konpasyon.

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If you've recently learned that your baby has Down syndrome, you are not alone.

Our Understanding a Down Syndrome Diagnosis bifold is now available in print in Haitian Creole. This trusted resource provides balanced, up-to-date information about Down syndrome.

❤️ Order a printed copy by visiting LettercaseBooks.org.

❤️ Read our free, comprehensive online book at UnderstandingDownSyndrome.org (click the globe icon in the upper right corner to change languages).

Please share this resource to help more families access accurate, compassionate information.

August is National Breastfeeding Month! 🤱 This month, we're highlighting a resource designed to help families access the...
08/13/2026

August is National Breastfeeding Month! 🤱 This month, we're highlighting a resource designed to help families access the information and support they need when learning about breastfeeding a baby with Down syndrome.

📖 Breastfeeding and Down Syndrome: A Comprehensive Guide for Mothers and Medical Professionals was developed by Julia's Way, a non-profit program now integrated into the MDSC National Parents First Call Center. This book includes information on everything from preparing to breastfeed, breastfeeding after heart surgery, getting to the breast after tube feedings, and much more.

💛 This comprehensive resource is available through the Lettercase Bookstore at LettercaseBooks.org and can also be downloaded for free at DownSyndromePregnancy.org!

🎧 Have you listened to our CODED: Genetics podcast?Join Dr. Stephanie Meredith and Katie Stoll, MS, CGC as they explore ...
08/06/2026

🎧 Have you listened to our CODED: Genetics podcast?

Join Dr. Stephanie Meredith and Katie Stoll, MS, CGC as they explore the most pressing issues at the intersection of genetics, healthcare policy, and bioethics.

Check out our top 3 podcast episodes:
⭐ Echoes of Eugenics in Modern Tech
⭐ Beyond Headlines: Down Syndrome and CRISPR
⭐ Understanding Medicaid's Crucial Role for People with Disabilities

Listen at buzzsprout.com/2455086 or wherever you get your podcasts!

What an incredible week at the Down Syndrome Affiliates in Action (DSAIA) and National Down Syndrome Congress (NDSC) con...
07/29/2026

What an incredible week at the Down Syndrome Affiliates in Action (DSAIA) and National Down Syndrome Congress (NDSC) conferences! 💙

Our team, including Viviane Polarson, MS, CGC, Dr. Stephanie Meredith, and Dr. Nicholas Wright from Gonzaga University, had the opportunity to connect with Down syndrome advocates, families, healthcare professionals, and community organizations from across the country. Together, we shared our medically and community-reviewed resources for new and expectant parents learning about Down syndrome.

We also led sessions with wonderful colleagues on:
⭐ Finding and writing successful grant applications for nonprofit organizations
⭐ Building partnerships between local Down syndrome organizations and healthcare providers to better support new and expectant parents
⭐ Using personal stories to advocate for meaningful policy change

Thank you to everyone who stopped by our booth, attended a session, presented alongside us, and shared in these important conversations. We're grateful to be part of such a passionate community working to support people with Down syndrome and their families. 💙

07/28/2026

"What stood out most about our Down syndrome diagnosis was how much the tone and framing of the conversation mattered. In those early moments, reassurance, compassion, and hope were just as important as medical facts. While we were learning about potential challenges, we were also discovering that our child was first and foremost a baby, deserving of celebration, joy, and unconditional love."
- Jack's Basket Recipient

⬆️ This right here is why we are equipping medical providers with the tools & resources to deliver a Down syndrome diagnosis with compassion.

Help us change the way the story starts for new families! Share our Provider Resources with the doctors, nurses, social workers, and genetic counselors in your community:
https://jacksbasket.org/provider-resources/

07/28/2026

Penny, our oldest daughter, is 20 years old and has Down syndrome. I could narrate her life through a lens of deprivation. She doesn’t drive a car or ride a bike. She wears glasses and has mild hearing loss and uses orthotics in her shoes. She belongs to a historically marginalized and oppressed group of people.

But I can also tell a different story. Penny attends a program for young adults with intellectual disabilities at a local college. She follows the Yankees so faithfully she has vowed never to move to Boston. She always wants the best for the people she loves and can laugh at herself easily.

The overwhelming majority of people with Down syndrome and their family members report happiness and satisfaction with their lives and relationships. And when people with Down syndrome tell their stories, they use words like, “I love my life.”

A diagnosis of trisomy 21 might seem like a straightforward set of facts. But every diagnosis—and every indication of a potential diagnosis—is its own story, told within a network of medical information, families and communities, and social supports and messaging. We are humans who need one another and give of ourselves to one another, humans who cannot avoid suffering but who can decide to move toward one another in love.

The way we tell the complex story of Down syndrome—the language we use, the statistics we present, and the anecdotes we share—both reflects who we are as a society and shapes who we are becoming...

Read the full essay: https://thedispatch.com/article/down-syndrome-narrative-ridgway-children/
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[image description: Peter holds baby Penny. She is wearing a white sunhat and pink swimsuit at the edge of the ocean. She looks toward the waves as Peter smiles and lifts a hand to adjust her sunhat.]

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PO Box 2649
Atlanta, GA
98507

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+14048280290

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