Down Syndrome Pregnancy

05/20/2026

Join us for the 2026 DNA Dash on Saturday, June 13th! Whether you walk, run, roll, or complete a personal goal, every step supports our important services. 💙

🔎 What does your DNA Dash ticket fund?

Your registration helps us send free, balanced resources to families learning about a new diagnosis, including conditions such as:
📚 Down syndrome
📚 Klinefelter syndrome
📚 Turner syndrome
📚 Jacobsen syndrome
📚 Spina Bifida

🔎 Why do we need your help?

Too many new and expectant parents are not provided up-to-date, balanced resources when learning about a genetic condition in their baby. But these resources can help families find support and services and improve long-term outcomes for families.

By joining DNA Dash, you can help us send trusted resources to parents and healthcare providers nationwide to support families when it matters most.

💙 Learn more, register, and share by visiting GeneticSupportFoundation.org/dna-dash-2026!

05/07/2026

This Mother's Day, help us ensure that every new and expectant mom receives the support and information they need following a diagnosis of Down syndrome!

💌 A donation of just $21 helps us send a free printed book on Down syndrome to a new or expectant mom through Priority Mail.

💌 Larger gifts help us maintain, update, translate, and create new resources. Larger gifts also help us share resources with healthcare providers nationwide so families receive thoughtful, accurate information from the very beginning.

Please consider making a gift today and sharing our campaign with your loved ones: https://donorbox.org/mothers-day-campaign-2026 ❤️

05/06/2026

DNA Dash is BACK!

Join us on Saturday, June 13th for our second annual DNA Dash virtual 5K fundraising event! This event is your chance to walk, run, roll, or accomplish a goal to help raise funds for Genetic Support Foundation.

💬 How does it work?
This event is virtual, so complete your 5K anytime, anywhere on June 13th. You can also choose a different activity or goal to complete, like a crafting, coloring, or reading race! If you'd like to complete the event with a group, teams can register together at a discount.

💬 What will I get?
Once you register, you will receive a package in the mail with a DNA Dash wristband and sticker. If you raise $50, you will also receive a GSF tote bag with extra goodies!

💬 What will my ticket fund?
All money raised from this event will directly fund GSF's important work, from direct patient care to disability advocacy.

Register, donate, and learn more by visiting GeneticSupportFoundation.org/DNA-Dash-2026!

04/21/2026

Each year, about 70,000 parents, advocacy leaders, and healthcare providers turn to our Lettercase and Down Syndrome Pregnancy websites for trusted information and support following a new diagnosis. All of our resources are available online at no cost, and we provide nearly 3,000 free printed books annually to families and providers who need them.

Our goal is simple: to ensure that every new and expectant mom receives the information and support they need following a diagnosis of Down syndrome.

This Mother's Day, you can help make that possible. Your donation allows us to ship free printed resources to families through Priority Mail, and to hand them directly to healthcare providers at medical conferences.

❤️ Give today to provide a lifeline for moms when it matters most: https://donorbox.org/mothers-day-campaign-2026

❤️ Set up an easy peer-to-peer fundraising page to help us raise funds for Mother's Day: email [email protected]

04/17/2026

Why become a Genetic Support Foundation recurring donor? Bernice Hall shares her story!

"My grandson with Down syndrome was born in 2000 and is now my part-time roommate. He says my house is his place too, and he helps me take out the trash and blow the leaves in my yard. He is such a blessing to me! I know how much it meant for my daughter to get support after he was born 26 years ago, so I donate $21 per month to Genetic Support Foundation to cover the cost of sending a book packet to a family of a new baby with Down syndrome. By the end of the year, I will have supported 12 families! As Andy's "Mama" and Stephanie's mom, I'm so happy to support this meaningful work."

Join Bernice in sending resources to families with Down syndrome by visiting GeneticSupportFoundation.org/donate and choosing to support us with a monthly donation. ❤️

04/09/2026

Dr. Jason Eberl and Dr. Stephanie Meredith teamed up as guest editors for the latest issue of Narrative Inquiry in Bioethics: Narrative Symposium on Parenting Children with Down Syndrome.

This special collection highlights stories from a diverse group of parents raising children with Down syndrome. As the editors note, "These stories convey that parents of children with Down syndrome are not a monolith. They are funny; they are insightful; they are frustrated; they are vulnerable and raw; they come from a range of backgrounds; they represent an array of prenatal diagnosis, postnatal diagnosis, and adoption experiences; and most importantly, they authentically love their children who also reflect a constellation of identities."

Thank you to NIB Managing Editor, Heidi Walsh, for keeping us on track and to Rosemarie Garland-Thomson for bringing us together and for her ongoing leadership as a trailblazer in disability rights!

These narratives can be accessed for free at the following link: https://muse.jhu.edu/pub/1/issue/56243

03/31/2026

🎧 World Down Syndrome Day: Reframing a Diagnosis with Jack's Basket

In our latest CODED: Genetics podcast episode, we sit down with Carissa Carroll, founder of Jack's Basket, and Lauren Talhelm, Jack's Basket Medical Education Coordinator. We celebrate Jack's 13th birthday, talk about what families actually experience when learning about a diagnosis of Down syndrome, and how the language used by providers can shape this experience.

Listen now wherever you get your podcasts or by visiting buzzsprout.com/2455086!

03/21/2026

Happy World Down Syndrome Day! 💙💛

Today, Stephanie Meredith shares a heartfelt story in the new Down Syndrome Pregnancy article, "Filling in the Answers: Adult Life with Down Syndrome."

As the mother of Andy, a young adult with Down syndrome, Stephanie reflects on his journey into adulthood. She highlights his rich social life, professional experience, and what has helped over the years.

This article is a meaningful resource for anyone, and especially for new or expectant parents looking to better understand what the future can hold!

📖 Read the article: https://downsyndromepregnancy.org/articles/

03/21/2026

Happy World Down Syndrome Day! Today I wanted to share what life is like 26 years after our diagnosis ...

"When Andy was born 26 years with Down syndrome, I could never have predicted the rich life he would have today. Back then my mind was flooded with worry: would he live with us forever? would people be mean to him? would he have real friends? I had so many questions that gnawed at me even though I quickly just got to work being a first time mom of a newborn with feeding schedules, diaper changes, and play dates. But today, so many of those questions have been answered in unexpected and rich ways that have taught me new and better ways to look at the world."

https://downsyndromepregnancy.org/filling-in-the-answers-adult-life-with-down-syndrome/

While we officially celebrate on 3.21, we actually celebrate every day through our Down Syndrome Pregnancy program at the Genetic Support Foundation where we provide Down syndrome education materials to families and medical professionals nationwide, speak at conferences about how to sensitively deliver a new diagnosis, and do research on how to improve those experience. Please also consider donating to support today: https://geneticsupportfoundation.org/donate/

03/21/2026

Happy World Down Syndrome Day! Today I wanted to share what life is like 26 years after our diagnosis ...

"When Andy was born 26 years with Down syndrome, I could never have predicted the rich life he would have today. Back then my mind was flooded with worry: would he live with us forever? would people be mean to him? would he have real friends? I had so many questions that gnawed at me even though I quickly just got to work being a first time mom of a newborn with feeding schedules, diaper changes, and play dates. But today, so many of those questions have been answered in unexpected and rich ways that have taught me new and better ways to look at the world."

While we officially celebrate on 3.21, we actually celebrate every day through our Down Syndrome Pregnancy program at the Genetic Support Foundation where we provide Down syndrome education materials to families and medical professionals nationwide, speak at conferences about how to sensitively deliver a new diagnosis, and do research on how to improve those experience. Please also consider donating to support today: https://geneticsupportfoundation.org/donate/

When Andy was born 26 years with Down syndrome, I could never have predicted the rich life he would have today. Back then my mind was flooded with worry: would he live with us forever? would people be mean to him? would he have real friends? I had so many questions that gnawed at me even though I qu...