Foundation for Mitochondrial Medicine

04/06/2020

Tomorrow is moving day. This page will close. Hope continues to fly here - please join the conversation at: https://www.facebook.com/theUMDF/

The United Mitochondrial Disease Foundation provides research and support for the mito community.

03/31/2020

Thanks for dropping by --- we invite you to join us at here https://www.facebook.com/theUMDF/ today.

The United Mitochondrial Disease Foundation provides research and support for the mito community.

03/23/2020

Hi everyone, just a reminder – we are closing this page on April 7, 2020. Please join the conversation here: https://www.facebook.com/theUMDF/

The United Mitochondrial Disease Foundation provides research and support for the mito community.

03/17/2020

Hello friends, while we are closing this page April 7, 2020, hope continues to fly here https://www.facebook.com/theUMDF/. Please join us today.

The United Mitochondrial Disease Foundation provides research and support for the mito community.

01/03/2019

Happy New Year! We are honored to welcome the Foundation for Mitochondrial Medicine to the United Mitochondrial Disease Foundation.
UMDF continues the great work of FMM through the legacy of its scientists, patients, families, volunteers and donors.

We are delighted to unify as one group so we can all go faster towards a cure for mitochondrial disease.
Please visit us at www.umdf.org or on Facebook at www.facebook.com/unitedmitochondrialdiseasefoundation

01/01/2019

Happy New Year! We close the year full of gratitude for our wonderful community, and full of hope. So here is to Hope Flying in 2019!! #2019

12/31/2018

Michael Gravante loves theater. The high school senior has been acting in local performances since he was in first grade and he plans pursue a theater major when he goes to college next year. His mother, Elaine Gravante, describes him as a walking, talking Broadway encyclopedia. But Michael’s autism spectrum disorder makes some theater experiences inaccessible to him.

He has a hard time coping with sudden changes, disturbing images and unexpected elements.

Sensory-friendly productions, which alter some technical and dramatic elements of a performance, are a way for neurodiverse communities to access theater.

12/31/2018

A new collaboration between The Boise Philharmonics and St. Luke’s is helping those battling Parkinson’s disease through music and movement.

Today was their first event held at the Esther Simplot Performing arts Center, it featured professional dancers and musicians to get people with Parkinson’s moving. The disease affects movement and the new dance classes are aimed to improve motor skills. Those who showed up today are already feeling the positive effects.

A new collaboration between The Boise Philharmonics and St. Luke’s is helping those battling Parkinson’s disease through music and movement.

12/31/2018

A toddler from Lawton who has a rare disease has been given new hope by an experimental medication and some fundraising work by his sister.

1-year-old old Russell Cruzan has Mitochondrial DNA Depletion Syndrome No. 13, a gene mutation on the FBXL4 gene, which causes extreme muscle weakness due to a buildup of lactic acid in his muscles and ammonia throughout his body. Russell is fed 24/7 through a tube; he can’t speak, he can’t sit up for very long, and he was given only two to four years to live.
https://trib.al/avSc75y

12/31/2018

A toddler from Lawton who has a rare disease has been given new hope by an experimental medication and some fundraising work by his sister.

1-year-old old Russell Cruzan has Mitochondrial DNA Depletion Syndrome No. 13, a gene mutation on the FBXL4 gene, which causes extreme muscle weakness due to a buildup of lactic acid in his muscles and ammonia throughout his body. Russell is fed 24/7 through a tube; he can’t speak, he can’t sit up for very long, and he was given only two to four years to live.