08/05/2020
Ace walked out of his hospital room after being in the same room for 52 days! He walked down the halls lined with nurses cheering him on listening to his favorite song by Travis Scott. He spent the night in his own bed last night. He surprised Miles, who wasn’t expecting him.
The nurses taught Jeanae how to administer his medications, as Ace still needs his IV medications through his port every morning and his insulin injections due to the steroids he’s on for the graft vs host disease of the skin. He’ll still be on his BMT diet for a while, but at least he can eat food on his own, even if it doesn’t taste the same to him. The chemotherapy and radiation has changed the way he tastes things.
He is now an outpatient staying close by the hospital, going to the clinic Monday, Wednesday and Friday to be closely monitored.
Tomorrow is the bone marrow biopsy to make sure that he’s 100% donor DNA and free of cancer. Even though his bloodwork says it is, this is a more definitive test, because cancer cells tend to hide in your bone marrow. We’ll be waiting on pins and needles for these results to come back.
The photo below is of Ace in front of the WALL OF HEROES. The staff nominated him because of his positive outlook on his condition, his caring nature and his help in wanting to give back to other patients going through the struggle. The next big accomplishment Ace is looking forward to is ringing the bell. After his first year anniversary of being declared cancer free, he’ll get to ring the giant bell on the oncology ward and everybody stops what they’re doing to recognize the patient.
