The Spina Bifida Association of the Carolinas

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The Spina Bifida Association of the Carolinas Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from The Spina Bifida Association of the Carolinas, Nonprofit Organization, 2000 Duke Street, Suite 300, Arlington, VA.

10/20/2026

Good times. Great moments. No stopping us now! 💙

From dancing and favorite hobbies to family fun, milestones, and everyday adventures, the Spina Bifida community knows how to enjoy the moment.

For Spina Bifida Awareness Month, we invited people with Spina Bifida and their families to share videos and photos of moments that make them smile. And they delivered!

The result is a fun video filled with plenty of personality.

A big THANK YOU to everyone who contributed!
🎶 Keep spreading the word! Watch the full video and share it with others, then explore our Spina Bifida Awareness Month Toolkit for more ways to raise awareness!
🎥 Watch the full video: https://vist.ly/5p973
💙 Explore the Spina Bifida Awareness Month Toolkit: https://vist.ly/5p96s

🪥 REGISTRATION IS NOW OPEN!📣 DON’T MISS OUR NOVEMBER COMMUNITY INFORMATION SESSIONS!Join Dr. Alam, Speech-Language Patho...
10/20/2026

🪥 REGISTRATION IS NOW OPEN!📣 DON’T MISS OUR NOVEMBER COMMUNITY INFORMATION SESSIONS!

Join Dr. Alam, Speech-Language Pathologist, for two sessions focused on practical strategies for feeding, swallowing, oral care, and independence in the Spina Bifida community.

🍽️ November 3
Feeding and Swallowing in Spina Bifida: Understanding Challenges and Strategies
🔗 Register: https://vist.ly/5p6jg

🪥 November 10
Oral Hygiene and Independence in Spina Bifida: Practical Strategies for Daily Care
🔗 Register: https://vist.ly/5p6j8

⏰ Both sessions begin at 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT

💬 Each session includes practical information and an opportunity to ask questions.

Save the dates and join us!

💙 Happening This Friday!Looking for practical ways to manage stress? Join the Spina Bifida Association of the Carolinas ...
10/19/2026

💙 Happening This Friday!

Looking for practical ways to manage stress? Join the Spina Bifida Association of the Carolinas this Friday for “Finding Your Calm in a Stressful World.”

Disability advocate and consultant Shameka Andrews will lead a conversation about practical ways to manage stress, practice self-care, and find moments of calm in everyday life.

📅 Friday, October 23
🕖 7:00 p.m. ET
💻 Via Zoom: https://vist.ly/5p48a

This conversation is for everyone!

📋 Resource Spotlight: Guidelines for the Care of People with Spina BifidaDid you know SBA publishes Guidelines for the C...
10/19/2026

📋 Resource Spotlight: Guidelines for the Care of People with Spina Bifida

Did you know SBA publishes Guidelines for the Care of People with Spina Bifida to support healthcare professionals in providing quality, evidence-based care?

Today, we’re highlighting the latest update to the Mental Health Guidelines — a helpful resource for healthcare professionals caring for people with Spina Bifida.

🔎 Explore the guidelines and learn more about mental health and Spina Bifida.

https://vist.ly/5nzkv

For many young adults with Spina Bifida, the transition from pediatric to adult care comes with a serious gap. We need t...
10/18/2026

For many young adults with Spina Bifida, the transition from pediatric to adult care comes with a serious gap. We need to do better.

Explore SBA's transition resources at https://vist.ly/5nw7k

10/16/2026

📣 ICYMI: What’s Happening at SBA! 💙

There’s a lot happening across the Spina Bifida community during Spina Bifida Awareness Month! Have you caught up on the latest edition of What’s Happening? Here’s a peek at what’s inside. 👀

🎶 Don’t Stop Us Now! — Celebrate Spina Bifida Awareness Month with our high-energy community video!

👟 Walk-N-Roll® for Spina Bifida — Find an upcoming event, join Team Spina Bifida, or participate your way.

📚 Upcoming Educational Events — Explore upcoming webinars on feeding and swallowing, oral hygiene, and independence.

💡 Resource Spotlight — Learn more about precocious puberty in children with Spina Bifida and hydrocephalus.

📅 SBA Chapter Events — Discover opportunities to connect, learn, and celebrate with chapters across the country.

🔬 Participate in Research — Explore current studies and research opportunities for adults, children, families, and expectant families.

💙 Backbone Alliance — Help us welcome 10 new monthly donors this October to support SBA’s mission.

🤝 Sponsor Spotlight — Check out resources and information from our corporate partners on incontinence care, catheterization, and more.

📩 Catch up on everything happening!

Read the latest What’s Happening newsletter: https://vist.ly/5nrvw

For many children with Spina Bifida, complex medical care begins early in life. Awareness starts with understanding the ...
10/15/2026

For many children with Spina Bifida, complex medical care begins early in life. Awareness starts with understanding the experiences and support children and families may need.

Explore resources: https://vist.ly/5nk9h

🎉 Greater Greensboro, it’s almost time to Walk-N-Roll!Join us this Saturday, October 17, at Keeley Park for the Greater ...
10/15/2026

🎉 Greater Greensboro, it’s almost time to Walk-N-Roll!

Join us this Saturday, October 17, at Keeley Park for the Greater Greensboro Walk-N-Roll for Spina Bifida! 💙

We’ve got a fun day planned with:
👑 Princesses
🎯 Fun yard games
🎶 Music
🍿 Snacks
🎟 Raffle
🎉 And more!

Come celebrate the Spina Bifida community, connect with others, and help raise awareness and support research, education, advocacy, and programs for people living with Spina Bifida.

Event is rain or shine. 🌧 🌞

💙 Help us make an impact! Fundraise and share your page to support the Spina Bifida community.

📅 This Saturday, October 17
📍 Keeley Park | Greensboro, NC
4100 Keeley Rd, McLeansville, NC 27301
⏰ Check-in begins at noon

👉 Register today and Walk-N-Roll with us: https://vist.ly/5njc4

🪥 REGISTRATION IS NOW OPEN!COMMUNITY INFORMATION SESSION: Oral Hygiene & Independence in Spina BifidaMaintaining oral hy...
10/15/2026

🪥 REGISTRATION IS NOW OPEN!

COMMUNITY INFORMATION SESSION: Oral Hygiene & Independence in Spina Bifida

Maintaining oral hygiene can be challenging when motor skills, sensory needs, positioning, or independence affect daily care. Join SBA for a practical session exploring strategies to support successful oral hygiene routines and greater independence.

📅 November 10, 2026
⏰ 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT

Topics include:
🪥 Factors that can impact oral hygiene skills
🛠️ Adaptive tools and toothbrushing strategies
💪 Supporting independence with daily care and self-feeding
🤝 Collaborating with healthcare professionals

🎤 Featuring Dr. Alam, Speech-Language Pathologist

A 30-minute interactive Q&A will follow the presentation, with an opportunity to ask questions about feeding, swallowing, and oral care.

🔗 Register today: https://vist.ly/5nhj7

Address

2000 Duke Street, Suite 300
Arlington, VA
22314

Opening Hours

Monday 8am - 6pm
Tuesday 8am - 6pm
Wednesday 8am - 6pm
Thursday 8am - 6pm
Friday 8am - 6pm

Telephone

+12026184754

Website

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