Spina Bifida Association of Florida

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Spina Bifida Association of Florida To build a better and brighter future for all those impacted by Spina Bifida. Become a member. SBACFL Membership is free!

10/16/2026

📣 ICYMI: What’s Happening at SBA! 💙

There’s a lot happening across the Spina Bifida community during Spina Bifida Awareness Month! Have you caught up on the latest edition of What’s Happening? Here’s a peek at what’s inside. 👀

🎶 Don’t Stop Us Now! — Celebrate Spina Bifida Awareness Month with our high-energy community video!

👟 Walk-N-Roll® for Spina Bifida — Find an upcoming event, join Team Spina Bifida, or participate your way.

📚 Upcoming Educational Events — Explore upcoming webinars on feeding and swallowing, oral hygiene, and independence.

💡 Resource Spotlight — Learn more about precocious puberty in children with Spina Bifida and hydrocephalus.

📅 SBA Chapter Events — Discover opportunities to connect, learn, and celebrate with chapters across the country.

🔬 Participate in Research — Explore current studies and research opportunities for adults, children, families, and expectant families.

💙 Backbone Alliance — Help us welcome 10 new monthly donors this October to support SBA’s mission.

🤝 Sponsor Spotlight — Check out resources and information from our corporate partners on incontinence care, catheterization, and more.

📩 Catch up on everything happening!

Read the latest What’s Happening newsletter: https://vist.ly/5nrvy

For many children with Spina Bifida, complex medical care begins early in life. Awareness starts with understanding the ...
10/15/2026

For many children with Spina Bifida, complex medical care begins early in life. Awareness starts with understanding the experiences and support children and families may need.

Explore resources: https://vist.ly/5nk9j

🪥 REGISTRATION IS NOW OPEN!COMMUNITY INFORMATION SESSION: Oral Hygiene & Independence in Spina BifidaMaintaining oral hy...
10/15/2026

🪥 REGISTRATION IS NOW OPEN!

COMMUNITY INFORMATION SESSION: Oral Hygiene & Independence in Spina Bifida

Maintaining oral hygiene can be challenging when motor skills, sensory needs, positioning, or independence affect daily care. Join SBA for a practical session exploring strategies to support successful oral hygiene routines and greater independence.

📅 November 10, 2026
⏰ 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT

Topics include:
🪥 Factors that can impact oral hygiene skills
🛠️ Adaptive tools and toothbrushing strategies
💪 Supporting independence with daily care and self-feeding
🤝 Collaborating with healthcare professionals

🎤 Featuring Dr. Alam, Speech-Language Pathologist

A 30-minute interactive Q&A will follow the presentation, with an opportunity to ask questions about feeding, swallowing, and oral care.

🔗 Register today: https://vist.ly/5nhj5

💙 Join Us Next Week!Feeling stressed? Join the Spina Bifida Association of the Carolinas next week for “Finding Your Cal...
10/14/2026

💙 Join Us Next Week!

Feeling stressed? Join the Spina Bifida Association of the Carolinas next week for “Finding Your Calm in a Stressful World,” a Zoom conversation focused on practical ways to manage stress and practice self-care.

Shameka Andrews, disability advocate, consultant, and founder of Disability Empowerment Consulting, will share helpful strategies for managing stress and finding moments of calm in everyday life.

📅 Friday, October 23
🕖 7:00 p.m. ET
💻 Join Us Via Zoom: https://vist.ly/5nchc

✨ This conversation is for everyone!

📣 Email Address Reminder!As a reminder, all Spina Bifida Association email addresses now end in .org instead of .org.📧 E...
10/13/2026

📣 Email Address Reminder!

As a reminder, all Spina Bifida Association email addresses now end in .org instead of .org.

📧 Example:
Old: [email protected]
New: [email protected]

✅ Please update your contacts and add our new email addresses to your safe sender list to help ensure you receive our emails!

🔗 Find updated contact information: https://vist.ly/5n79w

💙🎉 THIS SATURDAY: WALK-N-ROLL YOUR WAY IN PANAMA CITY! 🎉💙Come out THIS SATURDAY, October 17 at FSU Panama City for a fun...
10/13/2026

💙🎉 THIS SATURDAY: WALK-N-ROLL YOUR WAY IN PANAMA CITY! 🎉💙

Come out THIS SATURDAY, October 17 at FSU Panama City for a fun-filled day celebrating the Spina Bifida community! 💙

✨ Here’s what’s waiting for you:
🎶 Live music
🫧 A slime station
💎 Permanent jewelry
☕ Great coffee
🍧 Slushes
🎨 Face painting
🎃 Pumpkin decorating

Bring your family and friends for a morning of fun, connection, and community!

📍 FSU Panama City – Holley Academic Center
4750 Collegiate Drive
Panama City, FL 32405

📅 Saturday, October 17
⏰ 10 AM–1 PM CST

🎉 Haven’t registered yet? Sign up today!
🔗 https://vist.ly/5n6fj

We can’t wait to see you there! 💙

📣 Study Opportunity: Living Well with Spina BifidaHow do teens and adults with Spina Bifida navigate health challenges l...
10/12/2026

📣 Study Opportunity: Living Well with Spina Bifida

How do teens and adults with Spina Bifida navigate health challenges like incontinence—and how does it affect everyday life?

The Indiana University School of Medicine wants to hear your experiences and how they change over time.

🔗 Learn more & participate: https://vist.ly/5n4d5

Spina Bifida Awareness Month may happen every October, but the conversations it starts can make a difference all year lo...
10/12/2026

Spina Bifida Awareness Month may happen every October, but the conversations it starts can make a difference all year long. 💙

This month is all about celebrating the Spina Bifida community, sharing information, highlighting important issues, and recognizing some of the people and programs doing incredible work on behalf of those living with Spina Bifida.

There’s still time to add your voice. Share a post. Start a conversation. Advocate for an issue that matters to you. Celebrate someone in the Spina Bifida community.

Find ideas and ready-to-share resources in our Spina Bifida Awareness Month Toolkit:
https://vist.ly/5mzww

Help us keep the conversation going throughout October and beyond. 💙

Tag us and use .

Spina Bifida Awareness Month | World Mental Health DayChildren and adults with Spina Bifida may face an increased risk o...
10/10/2026

Spina Bifida Awareness Month | World Mental Health Day

Children and adults with Spina Bifida may face an increased risk of depression and anxiety. Mental health matters at every age, and recognizing the signs is an important step toward getting support.

This Spina Bifida Awareness Month, take a moment to learn more about the connection between Spina Bifida and mental health, recognize signs and symptoms, and explore available support.

📖 Learn more: https://vist.ly/5mtqu

Let’s continue raising awareness, breaking down stigma, and supporting mental health throughout the Spina Bifida community.

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2000 Duke Street, Suite 300
Arlington, VA
22314

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+18006213141

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