The Catherine Elizabeth Blair Memorial Foundation

The Catherine Elizabeth Blair Memorial Foundation Our mission is to support funding for neuroblastoma research and treatment development.

charitable organization funding research for the childhood cancer neuroblastoma

Freedom Day  #15: A reflection from her big brother: Fifteen years ago today, Catherine finally freed herself from the s...
04/01/2026

Freedom Day #15: A reflection from her big brother:
Fifteen years ago today, Catherine finally freed herself from the shackles of cancer that robbed so much of her life from her. I have struggled a lot with what to say on this anniversary. What can be said that hasn’t been said already? On holidays, I wonder what she would have gotten for my parents. During the week, I wonder if she’d make fun of my terribly messy car. On her 21st birthday, I wondered what kind of drink she’d order for her first. The mundane is the most painful. The idea that grief lessens over time is not really true in my experience. When someone passes so far before their time, every day is another what-if. Another chance to imagine what should have been, but wasn’t. As I struggle to find my place in the world, I wonder what words of advice my sister would have for me. I grieve for the words that will never be spoken.
One thing Catherine was especially good at was putting mind over matter, far beyond the capabilities of the average eight-year-old girl. She used to love playing school with her dolls, drawing intricate scenes and narrating them, and especially playing life-simulator style games on her bright pink Nintendo DS. The thread that ties all of these together is control. Staying sane when your own body is trying to kill you, when your days are spent in doctors’ offices, when your friends are far away, is nearly impossible. In diving into the hobbies she loved, she got to create her own worlds where she was fully in control.
As I get older, the more I take inspiration from that brave little girl that I am so lucky to call my sister. There is so much in the world that nobody can control. Bad things happen no matter how hard you try to avoid them. Learning to accept that, finding your own ways to find peace, exercising your own little teaspoon of “control” is the only way to stay sane in this world.
Fifteen years of grief is fifteen years too many. While it doesn’t get any easier, Catherine wouldn’t want me to despair forever. Just as she did all those years ago: accept what you can’t change, and find little things that you can. While I am not exactly a fan of playing with dolls like she used to, I find solace in playing some of the same types of life-simulation games she liked. I am not one to draw, but I do like taking photographs. Little pieces of control. Little things that make me think of Catherine.

This week, we celebrate because the most comprehensive childhood cancer legislation in more than a decade has become LAW...
02/04/2026

This week, we celebrate because the most comprehensive childhood cancer legislation in more than a decade has become LAW. You have helped make this happen. Thank you for your support!

01/31/2026

🚨📰 After a week of intense negotiations in Washington, the Senate has just passed a multi-agency funding package that includes the Mikaela Naylon Give Kids a Chance Act, the Accelerating Kids' Access to Care Act, and slight increases in funding for the NIH and its National Cancer Institute.

Because this package has been amended since it passed the House earlier this month, it now goes back to that chamber for a new vote -- likely on Monday. In the meantime, the government enters a partial shutdown at 12:01 tonight -- which includes NIH and NCI.

Despite the delays, we remain optimistic that we will soon see these childhood cancer priorities signed into law. Thank you to every advocate who's helped us to get this close to the finish line!

our little snow angel 💙❄️
01/26/2026

our little snow angel 💙❄️

Happy 23rd birthday to our sweet, fierce girl.  Miss you forever.  🩷🦋🩷
01/02/2026

Happy 23rd birthday to our sweet, fierce girl. Miss you forever. 🩷🦋🩷

12/16/2025

Dear Santa, I mean Dear Senate,
Our children need the passed. The best holiday gift for our kids.
Click here to learn more about the Act: https://kidsvcancer.org

Senator Chuck Schumer U.S. Senator Bernie Sanders U.S. Senator Bill Cassidy Leader John Thune

12/02/2025
Urgent: the vote on this is today. Please contact your congressional representatives today! (link below)
12/01/2025

Urgent: the vote on this is today. Please contact your congressional representatives today! (link below)

In partnership with KIDS V CANCER, ACCO requests you contact your House Representative asking them to pass the newly renamed Mikaela Naylon Give Kids a Chance Act, saving children with cancer, at no cost to taxpayers.

The bill reauthorizes the pediatric priority review voucher (60+ new drugs for kids) and supports drug combination studies, key to new cures.

Write Congress today to support this critical bill: https://www.congressweb.com/KVC/14/

11/23/2025

Dr. Anthony Sandler, our long-time partner in neuroblastoma research at Children's National Hospital, sends a message of gratitude for our donors. We are thankful for you all.

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