The ALS Association

The ALS Association The ALS Association is the only national non-profit organization fighting ALS on every front. Start a Fundraiser: https://oclp.goodunited.io/lnvaVegq

The Amyotrophic Lateral Sclerosis Association - Fighting ALS, also known as Lou Gehrig's disease.

"I watched my mother be one of the most vibrant, happy women every day. She loved to smile, all the time. She was a smil...
06/17/2026

"I watched my mother be one of the most vibrant, happy women every day. She loved to smile, all the time. She was a smile; she was pure sunshine. And with ALS in her last few months of her life, she lost her ability to smile. And so, because I can, I do. Because I am able, I smile. It is a gift to be able to smile, and I don't take it for granted." - Tabitha Brown

Tabitha lost her mother to ALS in 2007 and often shares how her mother's strength and enduring presence continue to inspire her to live with faith, joy, and gratitude. Tabitha will bring her wisdom and inspiring spirit to the main stage at ALS Nexus 2026 – where community, hope, and action come together to make ALS livable and cure it. alsnexus.org

New York state demonstrates national leadership in several critical areas for ALS policy, earning top marks for Medigap ...
06/16/2026

New York state demonstrates national leadership in several critical areas for ALS policy, earning top marks for Medigap access, reforming prior authorization policies, and passing legislation to create an in-state ALS registry. However, critical gaps remain. New York is lagging in protecting people who pursue genetic testing from discrimination in accessing life, disability, and long-term care insurance. Without safeguards, people may avoid accessing genetic information that could inform medical care and family planning.

Read New York’s report card: https://www.als.org/blog/state-report-cards-grades-are-spotlight-new-york

We are saddened to share the passing of John Russo, an ALS Hero Award winner, devoted husband, and inspiration to many. ...
06/16/2026

We are saddened to share the passing of John Russo, an ALS Hero Award winner, devoted husband, and inspiration to many. Diagnosed with ALS in 2013 at the age of 57, John refused to let fear define him. Instead, he channeled his energy into fighting for others, advocating for increased ALS research funding, improved patient care, and landmark legislation like the ALS Disability Insurance Act.

Alongside his wife Loretta and the ALS Association, John spent over a decade working to make life better for people living with ALS across the country. He served as co-chair of the Patient and Caregiver Advisory Committee and was a huge champion of ALS Focus.

John was a Bronx native, Yankees fan, surf fisherman, hiker, biker, and golfer. He lived life fully before his diagnosis and with extraordinary purpose after it.

John, thank you for never giving up. Your legacy will live on in every life you helped change.

06/16/2026

ALS took away Carrie's ability to paint. But it couldn't take away her creativity.
She found a new way using her mouth to paint. Her story is a powerful reminder that the human spirit finds a way.

Creative Pursuits exists for people like Carrie.

Our program helps people living with ALS stay connected to the things that make them them — whether that's continuing a lifelong passion, rediscovering an old one, or picking up something entirely new. Online clubs and classes in visual arts, writing, music, reading, museum tours, nature immersion, digital board games, and improv comedy.
Because a diagnosis doesn't have to mean the end of your creative life.

Carrie's story didn't end there. Yours doesn't have to either.
Learn more about Creative Pursuits: https://www.als.org/support/programs/creative-pursuits-program

Stadiums are celebrating Lou Gehrig Day and striking out ALS all month long! Last weekend, we had the best time tailgati...
06/15/2026

Stadiums are celebrating Lou Gehrig Day and striking out ALS all month long! Last weekend, we had the best time tailgating with great music, food, family fun and, of course, good ol' fashioned baseball fun with the Milwaukee Brewers!

The Lou Gehrig Day Chasin' a Cure presented by Brewers Community Foundation is an annual tradition for Brewers fans in Milwaukee. The Milwaukee Brewers have been hosting the Chasin' a Cure event before Lou Gehrig Day. Lou Gehrig Day is one of only three league-wide days in MLB history dedicated to honoring legendary players, and it exists for a powerful reason: to raise awareness and strike out ALS.

Thank you so much to the Milwaukee Brewers for their continued support and commitment to striking out ALS!

“A-L-S. The three letters nobody ever expects to hear.Whether we realize it or not, we are all standing in line. We ofte...
06/14/2026

“A-L-S. The three letters nobody ever expects to hear.

Whether we realize it or not, we are all standing in line. We often celebrate when we get to move ahead, when the wait feels shorter and the path easier. But what if that line is your life—and you’re suddenly pushed to the front, to a place you weren’t ready to be, kicking and screaming and wishing you could return to where you were before?

That’s what being diagnosed with ALS feels like. In an instant, it’s as if someone flips your hourglass over and the sand begins to fall faster and faster. You’re suddenly part of a club nobody ever wants to join.

When my hourglass got flipped over, I gained a new perspective on life.

I have poured my heart and soul into my family, my friends, and my career. I am a wife and a proud mom of three. I worked as an elementary school teacher for over 20 years, and I have been fortunate to be part of the lives of countless children and their families. During the COVID-19 pandemic, my school district shifted to virtual learning. Around that time, I began experiencing changes in my speech and voice that were initially thought to be vocal cord strain. As it turned out, I was diagnosed in 2022 with bulbar onset ALS, and that diagnosis has profoundly changed the course of my life.

Bitter or better? A diagnosis of ALS could lead down either path, but I choose better. I am grateful for every single day, and I want to remind people to slow down, embrace every season of life, and find joy even in the chaos. I refuse to let ALS define me. I will continue to fight, and I will continue striving to make a meaningful impact in the lives of others living with ALS.” - Amy McKnight, Living with ALS.

Have you been impacted by ALS? Support others and the fight for a cure by sharing your story: als.org/stories

The World Cup has taken over northern California, and we are spotlighting those impacted by ALS near this breathtaking r...
06/13/2026

The World Cup has taken over northern California, and we are spotlighting those impacted by ALS near this breathtaking region.

Meet Dr. Christopher Campos. After nearly a decade of medical training, he had just begun his career as a neurologist at UC Davis when unexpected hand weakness and speech changes led to an ALS diagnosis. ALS has altered nearly every part of his daily life, changing his ability to work, cook, bake, practice yoga, swim, and move freely through the world he loved.

Yet through the support of his partner, family, friends, and the ALS Association, Dr. Campos finds strength, hope, and purpose. As both a physician and a person living with ALS, he offers a rare and powerful perspective that he uses when advocating for people living with ALS and the families who stand beside them.

"I want people to know that ALS affects people of all ages and genders. It demands significant resources, and many lack the support necessary to live well in the face of this challenging diagnosis."

Just like it takes a full team to win the World Cup, it takes a team of family, friends, and advocates to navigate ALS. Show your support today: als.org/donate

The Walk to Defeat ALS brings us one step closer to discovering treatments and a cure for , while also serving, advocat...
06/13/2026

The Walk to Defeat ALS brings us one step closer to discovering treatments and a cure for , while also serving, advocating for, and empowering people impacted by the disease to live their lives to the fullest. The Numotion Foundation is joining us once again in the fight against ALS.
Join us both and sign up at walktodefeatals.org

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