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VA4PA VA Alliance advocating for meaningful action on post-infectious neuroimmune disorders (PANS/PANDAS)

Alliance of families and community members advancing legislation in Virginia for the diagnosis, and treatment of Neuroimmune Disorders PANS/PANDAS

Attention Virginia PANS and PANDAS warriors: Your passion and commitment made history today! Governor Abigail Spanberger...
05/14/2026

Attention Virginia PANS and PANDAS warriors: Your passion and commitment made history today! Governor Abigail Spanberger just signed HB328, which updates Virginiaโ€™s Essential Health Benefits (EHB) benchmark plan and includes coverage for medically necessary care for PANS and PANDAS.

This makes Virginia the FIRST STATE IN THE COUNTRY to explicitly include PANS and PANDAS in its EHB benchmark plan and helps set the baseline for what individual and small-group insurance plans in Virginia are required to cover. In practical terms, this strengthens access to care and reinforces that treatment for PANS and PANDAS is medically necessary, not optional.

We are deeply grateful to Governor Spanberger, Delegates Rip Sullivan, Patrick Hope, Adele McClure and all sponsors for their leadership. We also thank the many advocates and families whose persistence made this possible, including those who have worked tirelessly behind the scenes on behalf of the Virginia Alliance for PANS/PANDAS Action (VA4PA).

While this is real progress for Virginia, our work continues here in VA and across the country to ensure access, awareness, and equity in care for all affected by PANS and PANDAS.

๐Ÿ’ก Join Us in Arlington for PANS/PANDAS Awareness Day! ๐Ÿ’กNorthern Virginia friends and community members, we invite you to...
10/07/2025

๐Ÿ’ก Join Us in Arlington for PANS/PANDAS Awareness Day! ๐Ÿ’ก

Northern Virginia friends and community members, we invite you to a special lighting event to raise awareness for PANS/PANDAS.

๐Ÿ“… Date & Time: 7:00 PM
๐Ÿ“ Location: Ellen M. Bozman Government Center, 2100 Clarendon Blvd, Arlington, VA 22201

Weโ€™ve made progress, but thereโ€™s more work to do to ensure every young person in the Commonwealth gets prompt, adequate, and affordable care. Come stand with us and shine a light for hope and awareness! ๐Ÿ’š

Comment โ€œCount me in!โ€ if you can attend.

๐Ÿ“„ Read the full press release here: https://www.einpresswire.com/article/855716218/advocacy-group-shines-light-on-pans-and-pandas-debilitating-disorders-striking-virginia-s-young-people

10/05/2025
The Virginia Alliance for PANS/PANDAS Action is proud to recognize the power of collaboration in advancing care and awar...
10/05/2025

The Virginia Alliance for PANS/PANDAS Action is proud to recognize the power of collaboration in advancing care and awareness for those affected by PANS and PANDAS.

Partnership among advocates, legislators, and the Governorโ€™s Office reaffirms our shared commitment to increasing awareness and improving access to care for children and young adults across the Commonwealth.

Together, weโ€™re making meaningful progress toward a future where every child and young adult impacted by PANS/PANDAS receives the understanding, treatment, and support they deserve. ๐Ÿ’™

Friends in Virginia and beyond! We're close to reaching 200 landmarks to be lit up for World PANS PANDAS Awareness Day o...
09/25/2025

Friends in Virginia and beyond! We're close to reaching 200 landmarks to be lit up for World PANS PANDAS Awareness Day on Oct. 9, including 3 in Virginia.

We still need more VA landmarks, so please ask your local municipal officials about lighting up one of your buildings. We may have our legislation but our fight is far from over--please help!

Some landmarks to watch for:
โ€ข Palazzo di Cittร  | Taranto, Italy
โ€ข The Mansion House | Dublin, Ireland
โ€ข Niagara Falls | Niagara, Canada
โ€ข Wells Fargo Tower | Roanoke, USA
โ€ข Glasgow Science Centre | Glasgow, Scotland



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๐ŸŒ On October 9 โ€“ World PANS PANDAS Awareness Day โ€“ 93 landmarks (and counting) across the globe will shine green, spread...
09/11/2025

๐ŸŒ On October 9 โ€“ World PANS PANDAS Awareness Day โ€“ 93 landmarks (and counting) across the globe will shine green, spreading awareness and hope.

Just a few highlights:
โ€ข Christchurch Spire | Coventry, United Kingdom
โ€ข Teatro Massimo | Palermo, Italy
โ€ข Kล‚adka Ojca Bernatka | Cracow, Poland
โ€ข CN Tower | Toronto, Canada
โ€ข Union Street Bridge | Salem, USA

Can you help us add landmarks in Virginia?!

๐Ÿ’š Each glowing landmark is more than a lightโ€”itโ€™s a call for compassionate, multidisciplinary care that acknowledges the brainโ€“bodyโ€“immune connection in PANS/PANDAS. Itโ€™s a powerful reminder of the urgent need for awareness, inclusion, and support for families navigating this complex journey.

Hereโ€™s how you can be an advocate:
โ€ข Add a profile frame: https://tinyurl.com/2025LightUpforPANSProfileFrame
โ€ข Light up your home or office
โ€ข Visit a landmark in your area
โ€ข Share your photos on social media



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๐Ÿ“ข Big news for Virginia families!Starting today, July 1,   is officially in effect! ๐Ÿ’™โœ… Requires insurance (incl. Medicai...
07/01/2025

๐Ÿ“ข Big news for Virginia families!
Starting today, July 1, is officially in effect! ๐Ÿ’™

โœ… Requires insurance (incl. Medicaid) to cover full treatment for PANDAS/PANS
โœ… Includes antibiotics, IVIG, behavioral therapy & more
โœ… No more denials or delays for necessary care

A huge step forward for kidsโ€™ health in VA! ๐Ÿ™Œ

Weโ€™re thrilled to kick off year two of our global landmark lighting partnership campaign! ๐ŸŒOn October 9 โ€“ World PANS PAN...
06/30/2025

Weโ€™re thrilled to kick off year two of our global landmark lighting partnership campaign! ๐ŸŒ

On October 9 โ€“ World PANS PANDAS Awareness Day, 13 advocacy organizations (including ours) from around the world will light up landmarks green.

๐Ÿ’š Why green? Based on a global partner survey, green was chosen as the 2025 campaign color because it symbolizes hope and mental health awareness โ€” an important entry point for families whose PANS/PANDAS journey often begins in the mental health system. It helps shine a light on the urgent need for multidisciplinary care, compassion, and understanding.

Now in its second year, this global collaboration continues to unite organizations and individuals to shine a light on PANS and PANDAS, support those affected, and drive meaningful change.

Together, we are stronger and more capable of making a difference.

๐Ÿ“… Stay tuned for monthly updates on landmark approvals โ€” shared on the 9th of each month!



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Arlington, VA

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