Canavan Disease Research

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Canavan Disease Research World leader in the effort to cure Canavan disease while networking and helping affected families. Our son, Max Randell, was diagnosed with Canavan disease.

On March 6th 1998, we were given the news that no parent ever wants to hear. Our beautiful 4½ month old baby boy was dying of Canavan disease, a degenerative brain disease for which there was no cure or treatment. At that point we decided to fight for our dear little Max and all the other children with Canavan disease. We immediately made the decision to fund experimental to save Maxie's life, and also help all families affected by Canavan disease. Our family founded Canavan Research Illinois, AKA Canavan Disease Research, a 501(c)(3) public charity dedicated to raise funds to support medical research, increase public awareness, and network Canavan families. As a direct result of the cutting edge medical research we support, many of the children battling Canavan have had dramatic improvements in vision and their quality of lives. Because of our dedication - children diagnosed today have therapies available to them that previously did not exist. Because Canavan serves as a model for other neurological diseases, our advancements can also benefit millions suffering from debilitating neurological diseases such as ALS, Parkinson's, Alzheimer's, Multiple Sclerosis, and stroke.

Address

1434 Mill Creek Drive
Arlington Heights, IL
60089

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+18472220736

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