09/16/2026
This summer was an incredible season for the Cure Blau Syndrome Foundation. 💙
From gathering our community at the 2026 CBSF Gala to bringing families, physicians, researchers, and advocates together at the Blau Syndrome Summit, we were reminded just how much can happen when our small but mighty community works together.
After a busy summer, we’re turning our attention to what’s next.
This fall, we’ll be sharing more about:
🔬 New and ongoing Blau syndrome research
🏥 The Blau Center for Precision Medicine & Translational Research
🧬 Opportunities for families to participate in research
📊 The Blau Syndrome Registry and why patient data matters
📚 New resources and education for families
🤝 The researchers, physicians, patients, and advocates moving this work forward
There is so much happening in the Blau syndrome community, and we want to do a better job of bringing you along with us.
Over the coming weeks, we’ll be sharing more about each of these efforts and the people behind them.
Thank you for continuing to believe in our mission: bringing together patients, families, clinicians, and researchers to improve the lives of those affected by Blau syndrome and accelerate the path toward better treatments and, one day, a cure. 💙
